Epilepsy Australia

Epilepsy Australia National Epilepsy Support Service 1300 761 487.
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Epilepsy Australia is a coalition of state-based epilepsy associations raising our voices as one to advance the cause of all Australians living with epilepsy.

The Senate Community Affairs References Committee has announced an inquiry into Epilepsy in Australia, with a report due...
13/03/2026

The Senate Community Affairs References Committee has announced an inquiry into Epilepsy in Australia, with a report due by 10 September 2026. Submissions will close on 15 May 2026.

This inquiry creates an important opportunity to bring national attention to epilepsy. It gives people living with epilepsy the chance to share their experiences at the highest level of government and help shape better understanding, policy and support across Australia.

Learn more about the Inquiry and how to make a submission here:
https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

As part of the Amazon Web Services “Pull the Future Forward” campaign, there is a question around what we’re doing today...
24/11/2025

As part of the Amazon Web Services “Pull the Future Forward” campaign, there is a question around what we’re doing today that will become standard practice in the years ahead.

The answer lies in the groundbreaking work of the Australian Epilepsy Project (AEP).

The AEP is building a Digital Care Pathway for epilepsy using technology, AI, and automation to support clinicians in making faster, more accurate diagnosis and treatment decisions.

By combining:
🧠 Advanced MRI
📝 Cognitive testing
🧬 Genetic sequencing
📊 Patient surveys and medical history
… each person receives a full, data-driven view of their epilepsy - something that was once too time-consuming or complex to deliver at scale.

With a national MRI network and testing that can be done from home, this approach is reaching more people, including those in regional and rural communities. Every new case strengthens the system, helping clinicians deliver better outcomes for everyone.

This is National Platform Healthcare: one powerful, continually learning system that can transform care for epilepsy and, in the future, other complex conditions.

Epilepsy Australia is proud to support this work and excited for what it means for the future of epilepsy care in Australia 💜

Learn more about the project by watching the campaign video: https://lnkd.in/gSs3dS6T

31/10/2025

To every person who walked, ran, rode, donated, fundraised, shared their story or helped raise awareness - Thank you 👏💜

You have helped shine a light on epilepsy, raise vital funds, and start powerful conversations as we walked and talked for the 1 in 25 Australians diagnosed with epilepsy.

Whether you clocked 1km or 100km (or more), every step made a difference 👟

Together, we’ve raised awareness, built community, and shown what is possible when we move with purpose 💜

On behalf of our ambassadors, sponsors and all of us here at Walk for Epilepsy - we’re incredibly grateful for your support 💜

Until next year ...

Donations can still be made up until 20 December 2025. Donate at www.walkforepilepsy.org.au

This incredible Walk for Epilepsy campaign wouldn’t be possible without the generous support of our partners:🤝 Nexon Asi...
26/10/2025

This incredible Walk for Epilepsy campaign wouldn’t be possible without the generous support of our partners:

🤝 Nexon Asia Pacific – Our long-standing Major Partner, walking alongside us to create lasting change for the 1 in 25 Australians diagnosed with epilepsy.
🤝 – Our valued Supporting Partner, helping power every step, story and conversation.

Your support has amplified our impact, driven awareness, and helped us fund vital services, research, and support for the epilepsy community across Australia 💜

From all of us at Walk for Epilepsy - thank you for stepping up and standing with us 👏

It's not too late to donate. Visit www.walkforepilepsy.org.au

Learn more about Nexon Asia Pacific at www.nexon.com.au

Learn more about UCB at www.ucbaustralia.com.au

To every single one of you who walked, ran, rode, talked, donated and cheered - Thank you 👏 Together, we’ve stepped up, ...
25/10/2025

To every single one of you who walked, ran, rode, talked, donated and cheered - Thank you 👏 Together, we’ve stepped up, spoken out, and made a real impact for the 1 in 25 Australians diagnosed with epilepsy 👟💜

But the journey doesn’t end here.

While the walk stops today, fundraising continues until the end of the year - and there's still time to reach your goals, climb the leaderboard, and support life-changing programs and research.

🏆 Plus, if you or your team top the national leaderboard by the end of October, you could win an incredible $1,000 shopping voucher (for individual leaderboard) or $1,000 Red Balloon voucher (for teams leaderboard), thanks to our generous sponsor, Shop for Shops 🤝

So let’s finish strong:
📱 Share your page one more time
🎉 Celebrate your achievements
💜 Remind your community there’s still time to give.

You’ve walked 👟 You’ve talked 💬 And you’ve made a difference 💜

Donate at www.walkforepilepsy.org.au

The Epilepsy Smart Australia Peer Support Program is exploring the demand for peer support groups across New South Wales...
19/10/2025

The Epilepsy Smart Australia Peer Support Program is exploring the demand for peer support groups across New South Wales - and we want to hear from you 📝

We know that connecting with others who understand the experience of living with or caring for someone with epilepsy can make a huge difference 💜

Your input will help us understand what’s needed, where groups are most wanted, and how best to provide support - whether in-person, online, or a mix of both. We’ll use any information collected to guide the development of support opportunities and keep you informed as groups form in your area.

If you are living with epilepsy or caring for someone with epilepsy, register your interest by completing our short form at https://forms.office.com/r/YjGS9uS50a

Together, we can help build a stronger, more connected epilepsy community in NSW 💜

16/10/2025

⏰ Today only – Friday, 17 October – every dollar you raise for Walk for Epilepsy will be matched to the amount of $112,000 thanks to our amazing sponsors 🙌

That means your impact is doubled:
$10 = $20
$50 = $100
$500 = $1,000

Whether you're walking, talking, or sharing your fundraising page - today is the day to rally your community and make every donation count twice as much 💜

Let’s make this our biggest day of giving yet!

👟 Walk 💬 Talk 💜 Donate 💜💜 Double it!

A massive thank you goes to our generous sponsors, Nexon Asia Pacific and UCB, for making this possible 🤝

Double your impact now at www.walkforepilepsy.org.au

On this SUDEP Action Day, we remember those lost to Sudden Unexpected Death in Epilepsy (SUDEP) and pay our respects to ...
14/10/2025

On this SUDEP Action Day, we remember those lost to Sudden Unexpected Death in Epilepsy (SUDEP) and pay our respects to the family and friends they left behind 💜

Today is a time to take action - to expand our knowledge, understanding, and conversations around epilepsy and SUDEP.

For people living with epilepsy, this means speaking with your GP or neurologist, or contacting your local epilepsy service provider, to learn more about the risk factors associated with SUDEP and how to best manage your wellbeing.

For carers, these conversations are equally important. Accessing clear information and supporting your loved one in managing their epilepsy can make a real difference.

We know that talking about SUDEP can be difficult - but it’s a conversation worth having.

For further information around SUDEP and epilepsy, and support, please contact the National Epilepsy Support Service on 1300 761 487 or support@epilepsysmart.org.au
Face-to-face meetings are by appointment only.

14/10/2025

📅 Mark your calendars: Friday, 17 October is the day your impact goes twice as far 💜🙌

Thanks to the incredible generosity of our sponsors, every donation made to Walk for Epilepsy from 5:00am (AEST) on Double Donation Day will be matched dollar-for-dollar to the amount of $112,000 - doubling the support for the 1 in 25 Australians diagnosed with epilepsy 💜

$10 becomes $20, $50 becomes $100 - you get the gist! And every step you take helps even more 👟

So get ready to walk and talk, share your fundraising page, and rally your supporters for this powerful day of giving 👟💬

A huge thank you goes to our amazing sponsors, Nexon Asia Pacific and UCB, for making this possible 🤝

Donate at www.walkforepilepsy.org.au

30/09/2025

It's go time - Walk for Epilepsy 2025 starts today 👟🙌 And this year, we're not just moving - we're starting conversations 💬

Here are some things we encourage you to do this month:
💰 Fundraise, fundraise, fundraise - The more funds you raise, the more impact you have on the lives of people living with epilepsy.
🗣️ Talk, learn, and understand - Have conversations about epilepsy with family, friends and colleagues. We challenge everyone to finish the month with more knowledge about epilepsy than when it started.
📖 Share your story - Let the community know your journey, your why.
💪 Share your progress - Post on social media to share your progress proudly and gather support.

Whether you're taking on the 1 in 25 Challenge, walking with a team, or going solo - this month, we walk united, we walk loud, and we shine purple for the 1 in 25 Australians diagnosed with epilepsy 💜

Walk to raise funds 👟 Talk to raise awareness 💬 Let's do this!

It's not too late to get involved. Register at www.walkforepilepsy.org.au

One day to go ⏰ Walk for Epilepsy 2025 kicks off tomorrow 👟🙌Are you ready to walk, run or ride, raise funds, and spark p...
30/09/2025

One day to go ⏰ Walk for Epilepsy 2025 kicks off tomorrow 👟🙌

Are you ready to walk, run or ride, raise funds, and spark powerful conversations as we walk and talk for epilepsy?

Whether you're taking on the 1 in 25 Challenge or going at your own pace, travelling solo or rallying a team - this is your chance to make an impact in the lives of the 1 in 25 Australians diagnosed with epilepsy 💜

Let’s step into October with purpose and purple pride. Together, we’re going the distance 🚶‍♀️🏃

There's still time to get involved. Visit www.walkforepilepsy.org.au to register.

Please note: All current website distance tracking will be reset at 11:59pm tonight.

🔸 270,000 Australians live with epilepsy.🔸 1 in 25 will be diagnosed in their lifetime.🔸 1 in 10 will have a seizure.🔸 T...
28/08/2025

🔸 270,000 Australians live with epilepsy.
🔸 1 in 25 will be diagnosed in their lifetime.
🔸 1 in 10 will have a seizure.
🔸 There is no cure.
🔸 And every year, lives are lost.

This isn’t rare. This is real. And this is why we walk.

For better treatments, more awareness, and less stigma.

Every step counts 👟 Every dollar changes lives 💜

Register at www.walkforepilepsy.org.au

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About us

Epilepsy Australia is the national coalition of Australian epilepsy organisations working together to keep our communities informed on the latest medical breakthroughs, social research, publications, news and policy about epilepsy. Our vision is for inclusive communities where people with epilepsy can live and participate free of stigma and discrimination.