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Muscular Dystrophy Australia

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Parkville, VIC
Muscular Dystrophy Australia

Delivering a brighter today and a more empowered tomorrow for people living with neuromuscular conditions.

Muscular Dystrophy Australia is your one-stop-shop for information, support, research, and connection. From the day of diagnosis, we're with you for your whole journey of living with a neuromuscular disease.

24/04/2026

The Commission for Children and Young People is creating its next 3-year strategic plan, and they want to hear directly from you.

If you’re aged 14–24, you can share your ideas, experiences, and priorities by completing a short survey. You can even submit your thoughts through art, video, or audio 🎨🎥🎧As a bonus, upon completing the survey you can go into the draw to win 1 of 10 x $100 gift cards!

Your voice matters 🙌 Make sure you complete the survey before it closes on Thursday 30 April, and shape the future for children and young people in Victoria.

👉 Complete the survey today: https://dhhschange.syd1.qualtrics.com/jfe/form/SV_50aZ3gZgg0s7Lym

23/04/2026

📚 This World Reading Day, we’re celebrating the power stories have to connect us all. Books open doors to new perspectives, spark creativity, and remind us of the joy of slowing down with a great read.

At MDA, reading is a big part of our culture. Our Book Club continues to bring people together to share ideas, reflections, and a love of stories. Our next read is The Spy and the Traitor, and our Finance Manager, Kristian, has already shared a thoughtful review of this gripping true story. Whether you’re deep into a page-turner or looking for your next read, we’d love you to join us at our next MDA Book Club event on June 11. 💙

📖 Discover our upcoming Book Club pick, read Kristian’s review, and explore what our team is reading here: https://mda.org.au/mda-book-club

21/04/2026

Meet Rita Havea👋a passionate disability advocate, model and public speaker - and we’re so excited to share her story with you.

✨Join Rita, as she sits down with Tugba from Muscular Dystrophy Australia for a warm and open conversation about her lived experience as a person living with Charcot-Marie-Tooth (CMT), the power of visibility, and why representation for people with neuromuscular conditions matters.

👀Keep an eye out for Tugba's interview with Rita which will be shared on the MDA website soon. It’s a powerful piece you won’t want to miss.

17/04/2026

We're at the Source Kids Disability Expo Melbourne at the Melbourne Convention and Exhibition Centre! 💛

🎉Today and tomorrow, our team are sharing resources, having meaningful conversations, and connecting with the incredible network of people and organisations who make this community so strong.

If you're in Melbourne, come and say hi 👋 Entry is free, and there's plenty to explore (including a few fun games and prizes at our stand)!

📍 Friday & Saturday
🕙️ 10am - 4pm

16/04/2026

Camp MDA 2026 just wrapped, and we had so many adventures! ✨

⚽ From adventures at Melbourne Zoo to powerchair sports with Powerchair Sports Victoria, tie-dye crafternoons with Rainbow Bri Tie-dye and workshops by Living Culture, Vicki J Baker, The School of Play .Co and PROJECT ROCKIT - every moment at Camp MDA was filled with joy and connection. A special shout out to Urban Camp for making our stay so comfortable!

👀 Keen to be part of Camp MDA 2027? Head over to our website to express your interest https://mda.org.au/camp-mda

10/04/2026

For 15 years, Super Dads MD Walk has been bringing people together for something truly special — community, connection, and an incredible show of support for Muscular Dystrophy Australia 💙

Founded by Brett and Katrina Bugeja, Super Dads has grown into a much-loved annual event, uniting more than 150 people for a day filled with walks, shared meals, raffles and plenty of laughter — all while raising vital funds for our community.

This year alone, nearly $60,000 was raised, bringing the total to an extraordinary $500,000+ over the life of the event.

At the heart of it all is family. Their son Ben is a valued member of our community — a dedicated volunteer, university student, and passionate Western Bulldogs supporter — who lives with Duchenne muscular dystrophy, and was there on the day to celebrate this incredible milestone.

This year’s event was made even more special with a visit from Michelle Payne, Melbourne Cup-winning jockey, who joined the walk and spent time with the Super Dads community.

We’re so grateful to the Bugeja family and the entire Super Dads community for their ongoing commitment, generosity and heart. You continue to make a real difference.

Thank you for 15 amazing years 💙

09/04/2026

Muscular Dystrophy Australia is deeply saddened to learn of the passing of Sandy Kervin, a respected leader, collaborator, and tireless advocate for the Duchenne and Becker muscular dystrophy community.

Sandy served as Chief Executive Officer of Save Our Sons Duchenne Foundation and was a valued member of our Scientific Advisory Committee.

Across more than three decades in the not-for-profit sector, she brought exceptional leadership, insight, and compassion to her work in rare disease, disability, and community services.

Sandy was a key figure in the Duchenne and Becker community in Australia, and her contribution to policy, research advocacy, and family support has left a lasting impact. She was deeply committed to amplifying the voices of those with lived experience, and she championed improved access to care, stronger support systems, and better treatment outcomes for individuals and families affected by Duchenne muscular dystrophy.

We are grateful for Sandy’s collaboration, wisdom, and unwavering dedication. She will be remembered not only for her professional achievements, but for her generosity, strength, and the meaningful relationships she built across our community.

Our heartfelt condolences go to Sandy’s family, colleagues, collaborators, and all those whose lives she touched.

07/04/2026

Cast a line, make connections and discover the joy of fishing these school holidays.

Whether you are trying something new as a complete beginner or you are already experienced, everyone is welcome.

Fishing with Fid is about more than just fishing. It is a chance to get outside, breathe in the sea air and enjoy some time together these school holidays.

Event details 🎣
Date: Wednesday 15 April 2026
Time: 10.00am to 12.00pm AEDT
Location: Launching Way, Patterson River

Head to the link to secure your spot: https://mda.org.au/wheels-and-reels-fishing

02/04/2026

Amid the busyness of the school holidays, April is shaping up to be a month full of activities at Muscular Dystrophy Australia. There are plenty of opportunities for our community to get involved, connect and try something new.

To find out more and register your interest, head to the link: https://mda.org.au/programs-and-events

30/03/2026

Meet Tom, a writer, Spotify artist and model.

As he navigates life, Tom has found strength in creativity, using writing and music to express his journey and connect with others.

His poetry book Still Fire reflects his story, his growth, and his decision to keep moving forward.

Tom’s mission is simple: to turn his lived experience into something that helps others through theirs.

Read Tom’s story of strength and creativity here: https://mda.org.au/muscular-dystrophy/posts/toms-story-finding-strength-through-words

28/03/2026

Community and supportive networks are not only enriching, but also an important part of our lives. This is especially true when it comes to connecting with people who share an understanding of lived and living experience of living with neuromuscular conditions.

At MDA, there are lots of ways to find the support you need, including joining one of our friendly support groups shown in this video.

Visit the link below to find out more and register your interest today: https://mda.org.au/neuromuscular-support-groups

26/03/2026

School holidays are just around the corner, and if you are looking for something meaningful, fun and truly transformative for your child, Camp MDA 2026 is taking place from 10 to 12 April.

We still have a few spots available, but they are filling quickly. This is your last chance to secure a place for your young person at this year’s camp. Applications close on Tuesday 31 March, so be sure to apply soon.

Three days of connection, confidence and fun await. Camp MDA brings together young people aged 10 to 17 living with neuromuscular conditions for an unforgettable experience in Melbourne. It is a chance to connect with others who truly understand, build confidence in a supportive environment, and simply have an amazing time.

Thanks to , we have two sponsored places available, offering a young person the opportunity to attend free of charge. Please reach out to us to claim one of these spots.

You can get in touch by sending us a message, emailing programs@mda.org.au or calling (03) 9320 9555.

For more information about Camp MDA, head to the link: https://mda.org.au/camp-mda

Address

369 Royal Parade
Parkville, VIC
3052

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+61393209555

Website

http://www.mda.org.au/

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