Muscular Dystrophy Australia

11/11/2025

What happens when a child who feels isolated finds a community where they belong? Watch Emma's story 💙💛

Your donation funds programs that change lives. Help more children feel less alone this holiday season.

Emma, 12, was diagnosed with Charcot-Marie-Tooth disease. After years of hospital visits and feeling isolated, she found something life-changing at Camp MDA: community,…

06/11/2025

Hey MDA community 💙

We’ve got some exciting news to share! After many years of connecting with you through our current Instagram page, it’s time for a fresh start. Our old account is no longer giving us the features we need to properly share stories, updates, and connect with our amazing community — so we’re moving!

You can now find us at
We’d love for you to follow us there and continue being part of the MDA journey.

See you on our new page!

https://www.instagram.com/musculardystrophyaus

05/11/2025

The conversation surrounding a child's diagnosis is something that no parent should face alone. When Simon's son Ryan was diagnosed with Duchenne Muscular Dystrophy, their world changed.

At MDA, our programs seek to provide a sense of hope in the lives of kids like Ryan as they navigate life with neuromuscular conditions. Here is a snapshot of how MDA's programs have supported Ryan and his family:

✨ Ryan attended Camp MDA: "He had the best time, making new friends and came home more confident and happier at school."

✨ Simon attended Parents & Carers evening: "It was such a relief to talk with other families going through the same thing. You don't feel alone anymore."

Your donation supports children and their families, providing a sense of hope, care and community connection. Help support MDA's range of programs and Donate to Muscular Dystrophy Australia.

https://donations.mda.org.au/xmas-2025/give

03/11/2025

🎙️ New episode of You, Me & Muscular Dystrophy

In this episode, host Leanne's Wheel Life speaks with Paul Bugeja, Author and Muscular Dystrophy Australia Board, and Engagement and Innovation Advisory Committee Member.

Diagnosed with Facioscapulohumeral Muscular Dystrophy (FSHD) at 35, Paul shares how he approaches life with gratitude, humour and optimism - finding strength in community and purpose.

🎧 Listen now: https://www.youtube.com/watch?v=KBaMGpAT6Rk

Diagnosed at age 35 vibrant Paul Bugeja shares his personal journey with Facioscapulohumeral Muscular Dystrophy (FSHD). In this conversation with humour and ...

30/10/2025

Are you the next rising star ready to step into the spotlight? 🌟
Madison Peake Music is on the lookout for a talented performer to play Archie, a character written as a 13-year-old boy with Muscular Dystrophy. While the character must be portrayed as male, they welcome performers of any gender to audition.

MPM is committed to authentic and inclusive representation, giving priority to performers with a disability or lived experience.

Head over to the link below to learn more about the role and how to audition. 🎭 Information Booklet: https://drive.google.com/file/d/1aun3Hn65xW3js69jEHM8pplAc7OsaCFl/view

24/10/2025

🎄 It’s almost time for the2025 Variety Kids Xmas Party! 🎁

We’re so excited to once again join this magical event, bringing together Victorian kids living with illness, disability or disadvantage for a day full of joy, inclusion and connection.

Register now for free to join the MDA Group: https://www.surveymonkey.com/r/6QKYX3D

There’ll be rides, games, live entertainment, food — and every child will take home a special gift! 🎠🎈

🗓 Thursday 18 December 2025
🕙 10:00am – 1:30pm
📍 Melbourne Convention and Exhibition Centre

Let’s make this one to remember! ❤️

20/10/2025

This holiday season, we're launching our end-of-year appeal to help children with neuromuscular conditions feel less alone. 💚

Meet Ryan, 14, and Emma, 12. Both found connection and confidence through MDA programs.

41,000+ Australians live with neuromuscular conditions. Your gift funds Camp MDA, parent support programs, and vital services that bring hope and community to families.

✓ Tax deductible | ✓ Secure | ✓ Instant receipt

👉 Donate now https://donations.mda.org.au/xmas-2025/give

20/10/2025

When you have a student with a neuromuscular disability in your classroom, you want to get it right. You want them to feel included, supported, and able to learn alongside their peers. 💙

Join us for a one-day workshop where you'll learn from experts AND hear directly from students, parents, and experienced teachers about what actually works in real classrooms.

Plus, every ticket purchased goes into the running to win a The School of Play .Co prize pack!

📅 28 November 2025 ⏰ 9am - 5pm📍 Parkville

Teachers will walk away with:
✅ Clear understanding of neuromuscular disabilities
✅ Practical classroom strategies
✅ Mental health support techniques
✅ Assistive technology know-how
✅ Action plan ready to implement
✅ Ongoing support from MDA

This isn't just another PD day, it's practical, expert-led learning that will change how you support your students.

Limited spaces available. Register now 👉 https://inclusive-classrooms-understanding-and-supporting-students.raiselysite.com/

Know a teacher who'd benefit? Let them know!

17/10/2025

💬 FSHD Community Lunch – You’re Invited!

Join other adults living with FSHD for a relaxed afternoon of connection, conversation, and community. Whether you’re seeking support, friendship, or just a welcoming space to share experiences — this is for you.

📅 Saturday 8 November
🕐 1:00 PM – 3:00 PM
📍 Metropolitan Hotel, 265 William St (Corner of Little Lonsdale St), Melbourne

🚉 Close to Flagstaff Station
🚗 Parking available on Little Lonsdale St

Register here: https://forms.office.com/pages/responsepage.aspx?id=cR7VhOM6SU2EndtFXXaQo1qYJiHgistGlLoFFWsKe6NURDBNR1BJQlJRSFlXTjM0R1E4QUM0T0dLTi4u&route=shorturl

Come along, connect, and be part of our community 💙

Thank you to FSHD-Global Research Foundation

15/10/2025

🚀 Entering Adulthood: Where to Next?

A free, online event for adults (18+) living with neuromuscular conditions.
Hear from TAFE and university experts, and meet peers like Ben, who are building independence and chasing their dreams.

💬 Learn about:
✅ Study and work options after school
✅ Building confidence and independence
✅ Real stories from people living with NMD

🗓️ Tue 28 Oct | 12–1pm (AEDT)
💻 Online & accessible
🔗 Register now: https://mda-innovaite-sessions-entering-adulthood-where-to-next.raiselysite.com/

11/10/2025

What a day! 💛✨

Our very first Camp MDA: Connecting Little Legends was filled with laughter, creativity and connection — a special day just for younger kids living with neuromuscular conditions to play, explore and make new friends.

From high-energy games and movement sessions with The School of Play to getting creative with our amazing art teacher Steph, every moment was designed to help kids build confidence, express themselves and feel part of something bigger. 🌈

Seeing friendships form, smiles grow and imaginations come alive reminded us just how powerful it is when little legends come together. 💫

We can’t wait to do it all again next time. 💛