Muscular Dystrophy Australia

24/01/2026

A huge thank you to our wonderful partners at Moose Toys for sprinkling a little extra joy into our Client Care Packs. Their world leading range of toys, puzzles and activities bring a touch of fun and creativity to individuals and families across our community.

Each toy is purposefully selected and packed alongside trusted resources, including a printed copy of our FREE Guide to Navigating Life with a Neuromuscular Condition, helping make every pack uniquely special to every MDA client.

Thank you, Moose Toys, for your generosity and for helping us sprinkle joy into the lives of our clients and community 💛

23/01/2026

Our annual MDA stakeholder survey is still open and we would love to hear from you. Whether you are a client, family member, carer, or part of the neuromuscular community, your feedback helps shape the future of our programs and services.

The survey takes around 10 to 15 minutes to complete and is anonymous, unless you choose to enter the prize draw. As a small thank you from the team at MDA, participants can go in the running to win a $500 Prezzee eGift card. We look forward to announcing the winner once the survey closes.

Take the survey here: https://www.surveymonkey.com/r/TRW3DQT

Please share this with others in the NMD community. The more voices we hear, the stronger our impact.

22/01/2026

Meet Kalvin, a 26-year-old wheelchair tennis player, YouTuber and disability advocate who has learnt that sometimes the biggest risk is not trying at all.

After being diagnosed with FSHD following a routine GP visit, sport has remained an important part of Kalvin’s life. From signing up for a Paralympics Australia program to taking a brave leap into accessible tennis, he shares how showing up to that very first session can matter more than anything else.

Kalvin reminds us that whether tennis is your thing or another accessible sport or activity entirely, there is something out there for everyone. Sometimes it starts by simply throwing your hat in the ring.

Read Kalvin’s story and discover what can happen when you give it a go, here: https://www.mda.org.au/muscular-dystrophy/posts/kalvins-story-from-keeping-secrets-to-winning-nationals

21/01/2026

We’re kicking off 2026 with a huge calendar of events at Muscular Dystrophy Australia 💛

From community days and workshops to creative and social programs, the year is already shaping up to be action-packed.

January sees MDA out and about at the All-Abilities Day at the Australian Open, followed by a full line-up of events throughout February, including:

✨ Come Try Fishing with Fid, 4 February
✨ Navigating Adult Relationships workshop, 9 February
✨ MDA Book Club, 12 February
✨ Online Art Therapy workshop, 26 February

And that's just the beginning… with plenty more programs, events and opportunities coming soon.

To learn more and get involved with MDA’s upcoming programs and activities, head to the link: https://www.mda.org.au/programs-and-events

18/01/2026

Huge congratulations to Leigh Bradford on completing his 450th parkrun!

Thank you Leigh for proudly wearing a Muscular Dystrophy Australia superhero cape alongside the Gillin Boys Foundation singlet and helping raise awareness in such a meaningful way.

We’re so grateful for your support and for the amazing NMD community working together. 💙💛

15/01/2026

Meet Katrina, one of the superstars behind the programs and events at Muscular Dystrophy Australia. Known for bringing a daily dose of giggles and laughter to the office, Katrina shares what it is like to work within the Programs and Impact team at MDA. She also reflects on some highlights from the past year and what she is most excited about in the year ahead ✨

If you have watched Katrina’s interview and would love to learn more about MDA’s programs, activities and events, head to the link: https://www.mda.org.au/upcomingevents

13/01/2026

Condition guide: Spinal Muscular Atrophy, or SMA, is a genetic neuromuscular condition that affects muscle strength and movement.

This content is part of a broader project at Muscular Dystrophy Australia, focused on raising awareness, education and advocacy across the spectrum of neuromuscular conditions classified within muscular dystrophy. Swipe across to read a top line overview of what SMA is, common symptoms, the different types of SMA, available treatment options, and how to find support through MDA.

To read the full overview of Spinal Muscular Atrophy, head to the link:

Learn about Spinal muscular atrophy (SMA) - a genetic condition which affects the nerves that control muscle movement– the motor neurons.

08/01/2026

A clinical trial for Myotonic Dystrophy Type 1 is currently recruiting in Victoria and New South Wales.

If you:
🔵 Are between 18 – 65 years old
🔵 Have a diagnosis of Myotonic Dystrophy Type 1

and are interested in participating in a clinical trial, click the link to learn more!

Muscular Dystrophy Australia : Make a donation today to support Muscular Dystrophy Australia

02/01/2026

In 2026, MDA InnovAITe returns as our monthly online program for kids and teenagers living with neuromuscular conditions. Each session brings together goal check-ins, inspiring guest speakers and time to connect with others in a space where everyone feels understood and supported.

Whilst MDA InnovAITE is typically a yearlong program, there are still 4 sessions available in 2026 at a heavily discounted price. To take advantage of this opportunity, express your interest via the link in our bio. We would love to have you join. 💙

Sign up here: https://www.mda.org.au/mdainnovaite

24/12/2025

It is officially Christmas Eve and our matched funds are still available🎄

In these final hours before Christmas, your gift will be doubled to supercharge your impact and support children living with neuromuscular conditions.

Every dollar you give is matched dollar for dollar. Give now via the link in our bio and make twice the difference before the clock strikes midnight. 💙

Give here: https://donations.mda.org.au/xmas-2025/give

23/12/2025

2025, what a year 💙

From Camp MDA and community days fishing by the water and on the court, to launching our new office, Client Care Packs and MDA’s online Book Club — this year was all about connection, support and belonging.

We sought out to support parents and carers, helped our community navigate the NDIS and worked alongside educators to better support children with neuromuscular conditions in the classroom.
Thank you to every member of our community who made this year possible.

Have a wonderful holiday season and we are excited for all that is to come in 2026.

22/12/2025

As we head into the holiday break, we want you to know that support is still available. Muscular Dystrophy Australia will be closed from 25 December to 5 January. If you need help during this time, please reach out to one of the support services listed in this post.

If you or someone else is in immediate danger, call Triple Zero on 000.

You are not alone and support is always available.

We wish our community a safe and gentle holiday break and we look forward to reconnecting with you in 2026 💙