Muscular Dystrophy Australia

22/02/2026

A huge thank you to our wonderful partners at Pinchapoo57664875]57664875] for adding a thoughtful self care touch to our Client Care Packs for the MDA community.

Each collection of hygiene and self care essentials is carefully packed alongside trusted resources, including a printed copy of our free Guide to Navigating Life with a Neuromuscular Condition, helping to make every pack truly special for each MDA client.

Thank you, Pinchapoo, for your generosity and for helping us bring a little extra joy to our clients and community 💛

20/02/2026

Camp MDA is shaping up to be an incredible multi-day camp this April. We are thrilled to welcome back one of our fantastic partner facilitators, PROJECT ROCKIT, for a second year of fun, interactive sessions designed especially for young people with neuromuscular conditions.

The PROJECT ROCKIT team will lead meaningful, youth-led conversations focused on building kindness and empathy, while also developing the skills to confidently challenge hate.

➡️ If you, or someone you know, would benefit from being part of Camp MDA alongside facilitators like Project Rockit, head to the link to find out more and get involved: https://www.mda.org.au/camp-mda

19/02/2026

Meet Zia, a university student and Whyalla City Council member living with limb girdle muscular dystrophy who is focused on building her independence.

As she prepares to move into her own home, she is exploring how assistive technology could support her next chapter. Staying involved in her community and focusing on what she can do continues to shape her everyday life.

Zia reminds us that independence is personal and often built step by step.

Read Zia’s story and follow her journey through independence via the link: https://www.mda.org.au/muscular-dystrophy/posts/zias-journey-towards-independence

18/02/2026

🎨✨ Still spots left – come join us! ✨🎨

Join us at Online Art Therapy for people living with neuromuscular conditions!

This unique art therapy experience is designed especially for people living with neuromuscular conditions – giving participants a creative, supportive space to connect, express themselves, and enjoy the benefits of art-based mental wellbeing and community connection. Art therapy can help with stress reduction, self-expression, confidence and connection with others.

🗓️ There are still spots available, so if you’re curious, creative, or just want to try something new, we’d love to see you there!

👉 Tag a friend who might be interested
✨ Share this post to help spread the word
📌 Grab your spot now:

Join us for MDA's first online art therapy session, a gentle introduction to creative expression and mindfulness designed specifically for our community.

12/02/2026

🌟 Emma Traver’s Walkathon Success! 🌟 Congratulations to Emma on an incredible walkathon and for tripling her fundraising goal! 💛

Emma’s highlight from the day: 'The walk went amazing a good turn out about 30 people came friends, family and people from the community. Nathan really enjoyed the walk and company. We walked about 6.5km and had a blast.'

Thank you, Emma, for your incredible efforts in raising funds to support Muscular Dystrophy Australia’s programs, activities, services and research.

06/02/2026

Curious about art therapy and how it supports people with neuromuscular conditions? 🎨✨

We spoke with Oceana, our Art Therapist for the upcoming workshop on 26 February, about how creative activities offer a welcoming space to explore healing and self expression.

Read our interview with Oceana here:

https://www.mda.org.au/muscular-dystrophy/posts/how-art-therapy-can-support-people-with-neuromuscular-conditions

04/02/2026

February is shaping up to be a big one, with an action-packed calendar of programs, activities and events. We cannot wait to see our community get involved in the mix of in person and online programs we have coming up 💛

Swipe across to explore the range of programs, activities and events you can take part in, including:

✨ Navigating Adult Relationships workshop, 9 February
✨ MDA Book Club, 12 February
✨ Adult Support Group Lunch, 14 February
✨ MDA InnovAITe: Building Future Me, 24 February
✨ Online Art Therapy workshop, 26 February

Head to the link to discover what’s coming up and get involved: https://www.mda.org.au/programs-and-events

03/02/2026

Meet Tugba, the ray of sunshine behind our content, community stories and the much loved monthly newsletter that keeps everyone in the know at Muscular Dystrophy Australia.

Think Lady Whistledown from Bridgerton, for those not living under a rock, but without the drama. If there is news to share from the neuromuscular community or the latest updates from MDA, Tugba is already on it and reporting back with care and heart.

Tugba shares what it is like working in the Marketing and Communications team, reflects on some highlights from the past year and chats about what she is most excited for in the year ahead ✨

If you enjoyed Tugba’s interview and want to stay up to date with everything happening at MDA, head to the link to sign up for the newsletter: https://www.mda.org.au/sign-up-to-our-newsletter

02/02/2026

Spotlight on .jade’s experience at Tuesday’s AO All Abilities Day 🎾💙

“I was kindly gifted ground passes to the AO All Abilities Day, which happened to fall on a sweltering 44-degree day 🔥 As someone living with a neuromuscular condition, the heat is definitely not my friend.

My first AO experience was, by necessity, short and sweet. It centred around the iconic peach ice cream, snippets of junior matches on shaded courts, and plenty of air-conditioned spaces, including the Mecca ‘Dream House’. Best of all, everything (and more) was accessible.

The vibe was joyous, relaxed and incredibly welcoming, so I am already looking forward to coming back next year and hopefully catching a match or two.”

30/01/2026

At MDA, our days are made by the stories shared by our clients, parents, carers and the wider community we work alongside to create meaningful impact.

Lisa Gloster, parent of Oscar, a 10-year-old living with Duchenne muscular dystrophy, and a member of our Engagement and Innovation Advisory Committee, shares her family’s experience at the launch of the new MDA office. She also reflects on receiving the MDA client care packs, filled with thoughtfully curated games and goodies, made possible with the generous support of our partners at Pinchapoo and Moose Toys.

To enquire about MDA's Guide to Navigating Life with a Neuromuscular Condition, head to the link in bio and complete the form: https://www.mda.org.au/navigating-life-with-a-neuromuscular-condition

29/01/2026

Relationships are an important part of adult life and everyone’s journey looks different. For young adults living with a neuromuscular condition, relationships can offer unique opportunities for connection, growth and self-understanding.

Everyone deserves relationships that support, respect and energise them. That might look like friendships, family connections, romantic partnerships or professional relationships with the people who support your care.

Like any skill worth having, building healthy relationships takes practice, self awareness and the right tools.

In our latest article, Navigating Adult Relationships with a Neuromuscular Condition, we explore these experiences and share practical insights to support connection, confidence and communication.

We have also teamed up with Relationships Australia Victoria to bring this conversation to life through a dedicated workshop for young adults in our community. Join us online on Monday 9 February 2026 from 5:30 to 7:00pm AEDT for an interactive session facilitated by RAV.

Read the full article and find out how to take part in the workshop via the link: https://www.mda.org.au/muscular-dystrophy/posts/navigating-adult-relationships-with-a-neuromuscular-condition

27/01/2026

We're incredibly proud to celebrate Eliza Hull, who has been awarded an Order of Australia Medal (OAM) for disability advocacy and service to the arts.

Eliza's work as a musician, author, podcaster and advocate has created meaningful representation for people with disability across the arts and media. Through her children's books, music, and advocacy, she's opened up important conversations and amplified voices that deserve to be heard.

Her commitment to making the music industry more inclusive and accessible, and her dedication to ensuring young people with disability can see themselves represented, embodies the strength and leadership within our community.

As a valued member of the Muscular Dystrophy Australia community, Eliza's achievements inspire us all.

Congratulations, Eliza!

I’m very excited to share that I have been awarded an Order of Australia Medal (OAM) for disability advocacy and service to the arts. I am still in shock!!

I feel incredibly proud of the work I’ve been part of over the years - from singing on stages in Australia and internationally, to writing and performing music for film and television. Alongside my music practice, I’ve had the privilege of creating children’s books that open up conversations about disability and have created podcasts that amplify the voices of people with disability.

At the heart of all of this, my proudest achievement has been creating representation for young people to see themselves in books and the media, and advocating for a music industry that truly reflects the talent, leadership and creativity of artists with disability, in ways that are inclusive and accessible.

I chose not to share this yesterday, as January 26 is not a day of celebration for everyone. I want to acknowledge the ongoing strength, resilience and leadership of First Nations people - the first storytellers of this land.

Thank you to everyone who has supported me over the years. This recognition belongs to the many communities, collaborators, advocates and artists who have created and advocated alongside me and believed in my work. I’m deeply grateful - and more committed than ever to continuing it. ❤️