Stroke Foundation

Stroke Foundation The Stroke Foundation partners with the community to prevent stroke, save lives and enhance recovery.
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We do this through raising awareness, facilitating research and supporting stroke survivors.

23/12/2025

Samford State School, Grades 4-6, have a Christmas message for you!
A huge thank you, Early Act Club! Reading your comments warms our hearts and brings happy tears to our eyes - we’ll carry your kind words with us throughout the holiday season.
Rotary Club of Samford Valley Samford State School

Your packaging struggles = powerful feedback. This December, our friends at Arthritis Australia want to hear your BEST a...
19/12/2025

Your packaging struggles = powerful feedback.
This December, our friends at Arthritis Australia want to hear your BEST and WORST packaging experiences for the That’s a Wrap 2025 campaign.
👉Easy-grip lids, big tabs, simple opens?
👉Or packaging battles that end with scissors or knives?
Every story is shared directly with brands and retailers to show what’s working, what isn’t - and how design impacts independence and your daily life.
Your voice helps drive real change for more inclusive, accessible packaging.
Comment on campaign posts Arthritis Australia or tell us your story: https://arthritisaustralia.com.au/accessible-design-division/consumer-information/thats-a-wrap-the-best-and-worst-packaging/taw25/
Let’s make packaging work for everyone!

Gillian shares her story, "On 20 June 2022, my life changed without warning. I was arriving at a conference where I was ...
18/12/2025

Gillian shares her story, "On 20 June 2022, my life changed without warning. I was arriving at a conference where I was due to present when, just moments later, I had a stroke. One minute I was stepping into my professional world as I always had, confident, capable, in motion - and the next, everything I knew about myself shifted.

The stroke affected almost every part of me: my speech, face, swallowing, my right arm and hand, my right leg, and elements of my cognitive processing. Overnight, the tools I relied on, my voice, fluency, mobility, and leadership, were suddenly no longer there in the same way.

It changed not only what I could do, but how I experienced the world. The pace of my life slowed dramatically, and so did my sense of identity. But in that space, something else began to grow a deeper presence, compassion, patience, and an appreciation for moments and people I might once have rushed straight past.

Music has always been part of my story. I grew up singing, playing piano, joining choirs and bands, and music has followed me through most of my life. After my stroke, singing was the first thing I tried to return to. For some people, their singing voice improves after a stroke. Unfortunately, I wasn’t one of them. I even took lessons, but no matter how hard I tried, it just wasn’t working.

After a few years, I realised I needed something creative again, something that wasn’t just another rehab exercise, but a way to reconnect with a part of myself that existed long before stroke.

That’s when I saw DJ on The Piano. I became completely determined to find him. It didn’t matter where in Australia he lived or whether we met in person or on Zoom - I just knew I wanted to connect with him.

A week later I finally got through and discovered he lived in Sydney which was close enough for a lesson. And then he casually asked if I could come the following Wednesday. I was so excited I could hardly believe it.

DJ teaches classical piano in the same style I learned until I was about 13, so returning to that music has felt deeply nostalgic and grounding. These days, I’m working on a piece I learned as a child, playing it entirely with my left hand. My right hand still doesn’t move, and rests quietly on my thigh while I play.

That decision wasn’t about rehabilitating my hand; it was about playing for joy. But music has a way of working quietly in the background. The repetition, posture, coordination and concentration all gently support my physical recovery. Reading music has been a gift to my brain, helping with memory, sequencing, focus, and processing, yet it never feels heavy or clinical. Music wakes up the brain without overwhelming it.

There are challenges, of course. Playing with one hand means adapting everything. But there’s a surprising amount of left-hand-only music out there, and DJ has been incredible at finding or arranging pieces that are both beautiful and achievable. We break everything into tiny sections, small bites of success that build confidence instead of frustration. I’ve learned not to push, fatigue after stroke is real, and kindness to your body always works better than force.

Slow five-finger exercises, tapping patterns away from the piano, and gentle left-hand scales help build flow. And even though my right hand can’t move yet, imagining the movements still lights up something inside - a reminder that every pathway matters.

Emotionally, playing piano has changed everything for me.

It grounds me.
It lifts me.
It gives me a sense of progress - something I’m building, not just recovering from.

Most of all, it reconnects me with creativity and capability, a feeling I worried I might never experience again.

For anyone thinking about learning or returning to an instrument after a stroke, my advice is simple: start gently and with curiosity. Choose something that brings you joy, not something that feels like another task on your rehab checklist or another reminder of what you’ve lost.

Celebrate the tiniest milestones, because they’re not tiny at all. And find the right teacher, someone who understands both music and recovery. Support changes everything.

Your music won’t sound like it used to, and that’s okay. It doesn’t have to.

You aren’t going backwards. You’re creating something new.

For me, the piano has become both a companion and a doorway, letting me express what words sometimes can’t, while opening moments of calm, nostalgia, joy and hope.

It has shifted how I think about recovery altogether. I’m no longer trying to “get back” to who I was. Instead, I’m discovering who I’m becoming.

And that feels like music in its own right."

P.S. DJ provides Piano lessons, please comment below if you are interested in connecting.

If this story resonates with you and you have question, please call the team on StrokeLine 1800 787 653.

When Pregnancy and Stroke Collide - Women are finally being heard!!  For mums, Letisha, Elisha and Melita, pregnancy was...
17/12/2025

When Pregnancy and Stroke Collide - Women are finally being heard!!
For mums, Letisha, Elisha and Melita, pregnancy was not only a time of excitement - but it was also when their lives changed forever with stroke. For years, their experiences felt unseen and under-researched.
Now, that’s finally changing.

At ANZSOC, new research into pregnancy and stroke took to the stage, and for the first time, these women felt their stories were being recognised.
“For the first time, it felt like my story was being told.”

We’re incredibly grateful to Letisha, Elisha and Melita for courageously sharing their stories and reflections on this growing research focus, helping pave the way for better understanding, care and outcomes for women in the future
Read their full story on the blog: https://strokefoundation.org.au/media-centre/stroke-stories/when-pregnancy-and-stroke-collide-why-research-matters

Melbourne’s Second Mobile Stroke Unit: Bringing the Hospital to the Doorstep 🚑 When 50-year-old Shane collapsed at home,...
16/12/2025

Melbourne’s Second Mobile Stroke Unit: Bringing the Hospital to the Doorstep 🚑
When 50-year-old Shane collapsed at home, his wife Michelle knew something was wrong straight away.

“Every Sunday night, I watch 'Inside the Ambulance' and all those medical shows. I looked at Shane and I just knew it was a stroke, so I called an ambulance (000) immediately,”

On the way to hospital, the ambulance was met by Melbourne’s second Mobile Stroke Unit, allowing specialists to begin assessment and treatment before Shane even reached the Monash Hospital emergency department.

“Shane was already in the ambulance when they met the Mobile Stroke Unit - it was incredible,” Michelle said. “They were able to help him straight away.”

For the MSU team, delivering care directly at a patient’s home is deeply meaningful.

It’s extremely satisfying and humbling to help patients right where they are,” said Dr Valente. “You’re shifting the dynamics of their care dramatically. Sometimes you can see the effect of treatment almost immediately - watching the stroke begin to resolve is incredibly rewarding.”

Why does this matter so much? Because during a stroke, around 1.9 million brain cells are lost every minute. Every minute saved means more brain saved - and a better chance of recovery.
https://monashhealth.org/news/mobile-stroke-unit-bringing-life-saving-care-to-communities-in-melbournes-south-east/
Melbourne’s second Mobile Stroke Unit is saving time and changing lives.

Monash Health Ambulance Victoria

All of us at Stroke Foundation are heartbroken by the attack at Bondi Beach.Our thoughts are with everyone affected by t...
15/12/2025

All of us at Stroke Foundation are heartbroken by the attack at Bondi Beach.
Our thoughts are with everyone affected by this horrific act of violence, particularly members of the Jewish community – our staff, volunteers, supporters, fellow Australians, and friends. You are valued, you belong, and you have our full support.
Violence, hatred and antisemitism have no place in our society. They are not Australian values. Stroke Foundation stands for care, respect, inclusion and looking out for one another, especially in moments like these.
We stand together in compassion, reject violence in all its forms, and recommit to caring for one another and our communities.
If, like us, you are looking for ways to help and if you can give blood, Australian Red Cross Lifeblood urgently needs donations, particularly O-type blood. Please make an appointment in the coming days at: https://ow.ly/4O5i50XJoeA
If you need more support services: https://ow.ly/SSxG50XJoeB

It means so much to share this beautiful letter from Craig (Pop) to his grandson Lakyn. This family has faced the heartb...
11/12/2025

It means so much to share this beautiful letter from Craig (Pop) to his grandson Lakyn. This family has faced the heartbreak of watching their precious little boy experience multiple strokes due to Moyamoya. Get your tissues ready!

"Dear Lakyn, my little larrikin,

Pop is writing you this letter because I want you to always know how proud I am of you - not just today, but every day as you grow into the amazing boy (and one day, the great man) I know you’ll be.

You are one tough little kid. Every time the doctors said something might be too hard, you proved them wrong. When they said you might need a wheelchair, you decided you’d walk instead - and you keep showing everyone just how strong and determined you are. You always know what you want, and I love that about you.

One of my favourite things in the whole world is when you come to Dee, Gigi and Pop’s house. Going for a drive with you and Gigi - my little mate who loves the open road - always makes me so happy. I love hearing you laugh, watching your big smile, and sharing Allens lollies together. You make the world brighter just by being in it.

In the car with pop

And when you go swimming? Oh boy, Pop could watch you splash around all day. You’re full of energy and joy - you just get on with things, and most people would never even know you’ve had a stroke. That’s how much of a survivor you are.

I love taking you to the movies, hearing your big laugh, and seeing how you look after your little brother. You’re a great big brother, a kind kid, and you’ve already got a personality bigger than the sky.

Next year you’re going to preschool, and Pop can’t wait to see all the new things you’ll learn and all the friends you’ll make. I look forward to watching you grow and seeing the incredible person you’re becoming.

I love you very much, mate.

You’ll always be Lakyn the Larrikin to me - the boy who smiles, survives, protects his brother, and takes on the world with courage.

Love,

Pop (Gigi and Brydee)"

10/12/2025

If you’ve experienced a haemorrhagic stroke, this interview is especially for you!
Bleeding in the brain can affect younger adults too - and for many people, the cause is never clearly identified. One possible reason is cerebral amyloid angiopathy, a condition where protein builds up in the blood vessels of the brain.

Through the SEARCH Project (Screening for Early-Onset Amyloid-Related Cerebral Haemorrhage), Professor Vincent Thijs and his team are working to change that. Their research is exploring whether tools like PET brain scans and blood tests can help detect amyloid earlier in people aged 18–70 who have had a brain bleed - bringing us closer to answers, earlier diagnosis, and better care.

We are incredibly grateful to Prof Thijs for sharing his expertise and his passion for this vital work. Research like this gives hope to survivors and families searching for clarity and improved outcomes.

Learn more about the SEARCH Project and Vincent’s work here: https://strokefoundation.org.au/media-centre/stroke-stories/the-takeaway-talking-with-prof-vincent-thijs-about-the-search-research-project
The Florey Institute of Neuroscience and Mental Health

Strong messages save lives! Great work, South East Tasmanian Aboriginal Corporation (SETAC) community who recently, shar...
09/12/2025

Strong messages save lives! Great work, South East Tasmanian Aboriginal Corporation (SETAC) community who recently, shared the F.A.S.T. signs of stroke at a StrokeSafe session.

Knowing the signs, Face drooping, Arm weakness, Speech difficulty, Time to call 000 - can make all the difference.

Time lost equals brain lost. Acting F.A.S.T. helps people get treatment sooner, which can save lives and reduce disability.

A huge thank you to everyone at SETAC for your energy, engagement, and commitment to keeping your community informed and safe. Together, we’re spreading awareness that truly makes a difference.

Jennifer shares a gentle reminder to show yourself kindness to yourself through her poem - 💙Some days the road feels ste...
08/12/2025

Jennifer shares a gentle reminder to show yourself kindness to yourself through her poem - 💙
Some days the road feels steep and endless,
The sun hides low, the skies turn grey,
Your weary heart beats slow and heavy,
And hope feels half a world away.

Those are the moments to turn inward,
To hold yourself with tender grace,
To breathe a sigh, release the struggle,
And let compassion find its place.

The world will call with hands extended,
With needs that never seem to cease,
But kindness whispers, “Rest a moment…”
And grants your soul a touch of peace.

For love begins in quiet stillness,
Not in the noise, nor in the race,
Be gentle with your heart, dear traveller —
And watch the world grow soft with grace.

Address

461 Bourke Street
Melbourne, VIC
3000

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+611800787653

Website

https://informme.org.au/, https://young.strokefoundation.org.au/, https://enableme.

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Stroke Foundation

The Stroke Foundation is a national charity that partners with the community to prevent, treat and beat stroke. We stand alongside stroke survivors and their families, healthcare professionals and researchers. We build community awareness and foster new thinking and innovative treatments. We support survivors on their journey to live the best possible life after stroke. We are the voice of stroke in Australia and we work to:


  • Raise awareness of the risk factors, signs of stroke and promote healthy lifestyles.

  • Improve treatment for stroke to save lives and reduce disability.

  • Improve life after stroke for survivors.