Stroke Foundation

Stroke Foundation The Stroke Foundation partners with the community to prevent stroke, save lives and enhance recovery.
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We do this through raising awareness, facilitating research and supporting stroke survivors.

From Julie, "My life took an unexpected turn when I was just 38 years old. At the time, I'd been working full-time in a ...
05/02/2026

From Julie, "My life took an unexpected turn when I was just 38 years old.

At the time, I'd been working full-time in a busy job I loved. But I'd been unwell, so I was staying with my parents. That's when Dad found me on the floor. I couldn't get up. My left arm wouldn't move. I felt this sharp, tight snapping sensation in my neck. Dad asked why I was on the floor, but when I tried to speak, the words wouldn't come. Everything was jumbled.

My parents called triple zero (000), thinking maybe I'd had a seizure. But the operator said, "I think your daughter is having a stroke." My mum couldn't believe it - I was too young! The operator arranged for an ambulance, and I was whisked away to hospital where doctors ran scans and tests before confirming that I’d had a stroke.

I was transferred to rehabilitation. One night, coming back from the bathroom, I collapsed against the wall. I pressed the call button and nurses helped me back to bed. It wasn't until the next day that anyone realised what had happened. I'd had a second stroke - just ten days after the first. But by then, I'd lost the use of my left arm.

Back to hospital I went. More CT scans, more MRIs, more tests. The diagnosis was confirmed: another stroke.

My mobility was severely affected. I needed help with everything - showering, using the bathroom, getting dressed, cutting my food. I was given a wheelchair. This was how I'd get around now.

A simple visit to a local cafe meant going with someone's help or using the wheelchair. One time my sister took me out, and we laughed as she struggled to push her older sister around, both of us navigating this foreign world together.

I moved in with my parents. I couldn't live in my own house anymore. Twice a week, they'd make the long drive to take me to rehabilitation: physio, occupational therapy, speech pathology, social work. It was absolutely gruelling.

But I was determined to rebuild my life.

Almost 18 months after my strokes, I moved back into my house. The first big step in getting my life back! I returned to work a couple of hours a day, a few days a week. Around this time, I was discharged from community rehab.

The years that followed had their challenges. I was made redundant. I was devastated. I couldn't help thinking, “who’s going to want someone who can only use one arm?”

That's when Stroke Foundation came into my life - first as a volunteer, then later as an employee. I found my people, and I love it! I didn't know about Stroke Foundation in those early days. I wish I had. Even now, thirteen years later, I still find the resources and connections I’ve made so valuable.

And I'm still achieving goals! I've even been able to ride a bike! Something I never thought I'd do again.

But I know my story could have ended so differently.

If that triple zero operator hadn't recognised that I was having a stroke, if she hadn't arranged for the ambulance to come... I can only imagine what might have happened. Knowing the signs of stroke and acting quickly is so important.

I want to make sure everyone in Australia knows the signs and knows to call triple zero when they see those signs. You can help make that possible by donating to Stroke Foundation's current appeal: https://strokefoundation.org.au/how-you-can-help/ways-to-donate/our-current-appeals/janappeal/donate-now

To anyone out there still finding their way after stroke: I know it's not an easy road. It takes hard work. But there's still so much life to live after stroke. You can still have a fulfilling life, and support is available. You're not alone.

Never, ever give up!"

'Plateau' comes up often in stroke discussions, and there are myths worth unpacking.From Karen BaylyDoes Recovery Stop a...
04/02/2026

'Plateau' comes up often in stroke discussions, and there are myths worth unpacking.
From Karen Bayly
Does Recovery Stop and Start Again?

No, our brains remain plastic throughout life - they can rewire. Building new neural pathways takes time and effort but remains possible. While some damage is permanent, most people who experience stroke can keep making gains toward their goals with therapy and persistence. This can continue for years - recovery doesn't just switch on and off.

Why the Plateau Talk?

I believe and put simply, funding for public hospitals and health insurance is finite. For every person occupying a bed in a rehabilitation hospital, there’s another in acute care waiting to begin their rehabilitation. And yet another in the Emergency Department waiting for a bed on a ward. For every outpatient accessing hospital therapy hours, there is someone who has recently left hospital needing that appointment time. Regardless of investment in stroke care, budgets have limits, forcing hospital teams to make unenviable decisions about discharge timing so those waiting can begin their recovery.

Are People Being Misled?

It’s complicated. People recovering from stroke experience a wide range of emotions - from grief, depression, and anxiety, to fragility while coping with pain and discomfort, to fatigue and frustration with the ongoing hard work of rehabilitation. Understandably, these emotions affect motivation and engagement in therapy.

At some point, most people reach a stage of acceptance. Before then, they often cycle through phases of feeling more - or less - able or willing to engage in therapy. And long before that, hospital discharge typically happens to make space for the next person. In discharge conversations, the word “plateau” can be a kind way of saying, “We can’t help you right now because you’re emotionally overwhelmed,” or “Your enthusiasm and rate of improvement has decreased,” or even “We’ve taken you as far as we can - another patient needs this bed and our time more than you.” It makes the difficult task of discharge less uncomfortable for health professionals, but it is deeply disempowering for the person who has had a stroke - and it can lead to incorrect beliefs.

But Here's the Good News

Hospital discharge is rarely recovery's end - it's more often a pause, transition, or shift to healing in a different setting or pace. People living with stroke can keep pursuing goals through community or private therapy, research trials, local fitness centres, hobbies, or everyday experiences.

Equally, people who have had a stroke will eventually decide that where they are is enough - that it's time to stop being a patient and simply be themselves again - a person whose identity is richer and broader than their stroke. Perhaps that's the most meaningful plateau: reclaiming identity beyond stroke. Living with stroke is a process, not a destination - and you are in the driver's seat of your post-stroke life. The Stroke Foundation (StrokeLine 1800 787 653) and stroke peers are there to help you navigate.

Karen Bayly, survived and rehabilitated from a massive stroke, now spends her time parenting, working, volunteering, and relaxing.

03/02/2026

Occupational therapists rock. Full stop.
They help people rebuild everyday life after stroke - from getting dressed to slurping noodles.
Here's to the problem-solvers the cheerleaders, the adapt-and-try-again legends.

02/02/2026

Imagine a future where stroke rehabilitation evolves with you - where support doesn’t end at an arbitrary 3-month timeline, and where your goals shape your recovery.

We’ve already helped to transform acute stroke care through innovation and collaboration. Now it’s time to bring that same ambition to rehabilitation.

Together with clinicians, survivors and the stroke community, we’re working towards a system that supports recovery for as long as it takes - because living well after stroke is the goal.

is the start: https://strokefoundation.org.au/about-us/strategy #

01/02/2026

Toni lives with fatigue and sensory overload, so she’s thoughtful about the music she listens to. At her place, The Paper Kites are on repeat - gentle, grounding, and never overwhelming.

After her stroke, Toni also learned “She Used to Be Mine” by Sara Bareilles as part of her vocal training. She says once you really listen to the lyrics, you’ll understand why those verses sit so close to her heart now.

Music heals, people.
What do you listen to?

Philip is a pastor and writer who has shared his stroke story and reflected on how his Christian faith supported him thr...
29/01/2026

Philip is a pastor and writer who has shared his stroke story and reflected on how his Christian faith supported him through recovery. We recognise the importance of faith, spirituality or secular beliefs - whatever form they take - and the role they can play in healing, meaning and resilience after stroke.

From Philip, "On Sunday, August 4, 2024, it was our church's fifteen year anniversary. I'd been there since the start, and had been a pastor for the past seven years. It was meant to be a day of celebration. As we drove to church, our daughter Junie was nearly six months old, and sleeping in her capsule. Serena was driving. Just before 9am, driving along the Riverside Expressway, I was about to reply to a message, but I couldn’t lift my left arm.

“I can’t move my arm.”

“What do you mean, like you slept on it?”

As I tried to explain, the left side of my face began to fall, my speech slurred, and my left leg went dead. Even at 34 years old, something in me knew the signs. “I think it’s a stroke.”

There was a traffic jam ahead, but Serena pulled onto the on-ramp, and we were at the Royal Brisbane Hospital in a few minutes. We pulled into emergency, and Serena ran in to get help. For some reason, I tried to get out of the car on my own and fell face-first onto the pavement. A minute later I was on a stretcher, surrounded by doctors. As I was lifted onto another stretcher and eased into the CT scanner, I prayed the first words that came to mind, on repeat, with half my mouth fallen: “I lift my eyes to the mountains. Where does my help come from? It comes from the Lord, the maker of heaven and earth.”

The words of Psalm 121 had always been a comfort to me, but the question posed in it seemed more real than ever.

When they wheeled me back, Serena placed Junie on the bed beside me, and I broke. I couldn’t hold her. I could barely smile. I remember thinking: I don’t care if I can never work again. I just want to be able to hold my daughter. And: If I die right now, Junie won’t remember me. They were live questions.

The MRI confirmed a lacunar infarct in my basal ganglia - a small area, the communication hub between the left and right sides, the highway crossing of the brain. We sat, waiting for the thrombolysis to loosen the clot. I remember in those hours, as absurd as it seems now, going into my Google Drive and giving Serena access to the novel I’d been writing. It was called Maple Diction, and it was about a father writing letters to his infant daughter, because he was afraid that he might not be alive for much longer. I felt two things in that moment: I wanted to make sure that Junie could read it one day, and I felt sure that, if I could ever write again, that this moment was a line in the sand. Everything I’d written was the first half of
the story, and the book would start again from there.

It took about eight hours for me to feel any movement in my left side; first, I could swing my leg from the thigh; then, I could twitch my thumb. After a long and sleepless night in the neurology ward, little electric jolts began to travel down my arm and leg, and muscles came back online. By morning, without even standing yet, I knew: I can walk again.

Telling my story

There’s a power in hearing other people’s stroke stories. Not because they’re the same - they never are - but because they help us orient ourselves. They remind us that what feels singular and isolating might still be shared.

After having Junie, I was struck by how many mothers (and women hoping to become mothers) have said to me, “I love hearing birth stories, because every one is different.” It isn’t just variety that draws them in.

These stories echo our own. They help us knit our experience into something larger. They help us feel understood, known, and located.

The writer Meghan O’Rourke describes chronic illness as “camouflaged grief.” When what has happened to us is invisible, when it isn’t immediately legible on our bodies, we’re forced to carry the grief inside us.

Strokes leave scars on the brain, the heart, and the soul that can remain unseen even to the person who carries them. But they still ask to be spoken, because grief always has to find expression - if not through our words, then it will always boil over in other areas of our lives.

I spent six days in hospital. A few days after the stroke, almost all of the damage of the stroke was invisible. I went from health to paralysis to walking again in less than a day. But I know that it will take me years to process what happened that day.

On my first night home, I insisted on bathing Junie again. Sitting beside Serena as she fed her to sleep, the week finally caught up with us. We cried tears of grief, but also of gratitude.

Six weeks after the stroke, I cracked. I was trying to push myself, to do the kinds of things we used to do. Serena and I were meant to meet friends for lunch. Halfway there, my body told me I couldn’t go. Speaking required intense focus. My left arm felt leaden. My leg was dense. I started crying uncontrollably.

It wasn’t really about lunch. It was about powerlessness. About the fear beneath it all: that my brain will recover when it recovers, that my life will crawl toward equilibrium when it decides to, and that there may be scars I will never fully locate.

“I’m not sure if this body is my home, and I’m not sure if it ever was my home.” Maple Diction.

Just like I knew that I could walk before I stood up, for those first few months I knew that I couldn’t write. I could write words. I’d jot down phrases, sentences, poems. But I knew that I couldn’t write my book.

“These words are my refuge… they’re an affirmation to myself that there is humanity in me and beyond me, and it can still find coherence.” Maple Diction.

After a few months, though, I returned to the book, and it became a powerful voice in my recovery. The line in the sand meant that I had a freedom of narrative. I had to complete the story, but I gave myself permission to write whatever I needed to. It helped me to articulate my griefs and my fears, and my place within a larger story.

Amidst everything that’s happened in the past eighteen months, I’ve felt anchored by my Christian faith. We all need bigger stories to make sense of our lives. But for me, the Christian hope has helped me make sense of it all. One quote spoke to me powerfully throughout it all, from the pastor and philosopher James K. A. Smith: “God is a mosaic artist who takes the broken fragments of our history and does a new thing: he creates a work of art in which that history is reworked such that the mosaic could only be what it is with that history. God’s grace goes back to fetch our pasts for the sake of the future.”

Every loss, every deficit, every lunch you couldn’t make, every cell that's died in the stroke. There’s hope for those broken fragments, to be gathered up into a new thing, into a whole, into a greater story. Or, as the father in Maple Diction writes: “A part of my brain has permanently died, and another area has taken over its function."

That much is true. But even that seems absurd, that we’re capable of such things. The new
brain tissue knows its role and what’s dead can become alive again - what’s dark can find
its way back into the light. That’s my great hope.”

Telling your story

If you’re recovering from a stroke, and if your body no longer feels like home, I hope that you can find ways to share that experience. It doesn’t have to be writing. But any means to give a voice to the grief that’s been camouflaged in your body. It always takes time. But the process always starts with sharing it.

But tell your story, even if it’s unfinished. Write it, speak it, pray it. Let others help carry the things you can’t even name yet. Because, by God’s grace, there’s always value to what’s been lost. And as we share our stories together; as the things that have been camouflaged are truly seen; as our stories are knit into a greater story, we can work to find that hope together.

25/01/2026
Ever thought about volunteering in a hospital? Matthew shares what it’s really like, plus some helpful tips if you’re co...
22/01/2026

Ever thought about volunteering in a hospital? Matthew shares what it’s really like, plus some helpful tips if you’re considering it.

"I have found volunteering at a hospital to be very rewarding for not just for myself as a survivor, but also the patients and their visitors. Staff report that patients can feel more hopeful and more positive after speaking with “someone who has been there”. They can benefit from seeing and talking about life after stroke or sometimes just having a general chat. I answer any questions that the patients, their family or friends may have – or direct them to staff or other resources.

Volunteering gives me a sense of meaning to my experience but is not for everyone and there are other ways to give back, such as, getting involved with stroke research.

If you decide to volunteer, these lessons I have learned could be helpful:

Bring positive energy and a sense of realistic hope to the patients. Don’t promise but do talk of the possibility. Some suggested words I use (but make them your own) are: I can’t make any promises about your recovery, but I can tell you that the brain will recover at least a bit. It is all about neuroplasticity, the ability of your brain to form new connections. Recovery is all about repetition. Work with the rehab team here and do the suggested practice after your sessions when you’re alone in your room. Set yourself some achievable and meaningful goals to work towards.

Make sure the hospital has a volunteering service attached and use the hospital’s volunteer service as much as possible for police and working with vulnerable people checks, fire and OH&S training, hygiene training, etc.

Pace yourself – don’t do too much even though you’re keen. I do two mornings each month and that’s enough - it takes a surprising amount of energy.

Don’t do it alone.

Although we have some volunteers who prefer to do the rounds alone - I go around the ward with another volunteer. We catch up over coffee during our shift. This is very useful for discussing the wins but also the challenges and just generally doing a debrief, as well as a good opportunity to catch up in person with another survivor.

Our whole stroke volunteer team catches up over a sandwich / cuppa every few months – again, so we can share learnings, celebrate successes, debrief and also educate ourselves.

Resources to support you

Remember all the resources for yourself and the patients. There are the stroke info booklets and fact sheets which may already be in the ward. If not, they are available as downloads. There is also the StrokeLine service on 1800 787 653, Monday to Friday 9am-5pm (AEDT), except National and Victorian public holidays.
https://ow.ly/23Yq50Y10eE

You’re part of a team

Get to know the staff and talk with them and if you spot an area for improvement let them and/or other volunteers know as appropriate.

Let staff know. If you’re concerned about a patient, or a patient needs support that you can’t provide, let staff know. Also let staff know about anything else, any hazards, even if the plants need watering."

20/01/2026

A stroke strikes every 11 minutes in Australia.
Anyone. Anytime. Anywhere.
Follow Leo’s advice - know F.A.S.T.
Share this. Seriously...

Face Check their face. Has their mouth drooped?
Arms Can they lift both arms?
Speech Is their speech slurred? Do they understand you?
Time Is critical. If you see any of these signs call 000 straight away.

You’re not being difficult - you’re advocating.... Being your own best friend sometimes means becoming your own advocate...
12/01/2026

You’re not being difficult - you’re advocating....
Being your own best friend sometimes means becoming your own advocate.

Adrian’s advice is real, practical, and hard-earned:
👏Advocacy isn’t loud. It’s clear.
👏It’s not instant. It’s persistent.
👏And it starts with knowing what you need - and believing you deserve it.

Whatever your goal, access, fairness, dignity, change - you don’t have to fight perfectly.
You just have to keep showing up, protect your energy, and leave a path for the next person.
This is advocacy that lasts.
https://strokefoundation.org.au/media-centre/stroke-stories/practical-advocacy-adrian-s-real-world-advice-for-creating-change

Address

461 Bourke Street
Melbourne, VIC
3000

Opening Hours

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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+611800787653

Website

https://informme.org.au/, https://young.strokefoundation.org.au/, https://enableme.

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Stroke Foundation

The Stroke Foundation is a national charity that partners with the community to prevent, treat and beat stroke. We stand alongside stroke survivors and their families, healthcare professionals and researchers. We build community awareness and foster new thinking and innovative treatments. We support survivors on their journey to live the best possible life after stroke. We are the voice of stroke in Australia and we work to:


  • Raise awareness of the risk factors, signs of stroke and promote healthy lifestyles.

  • Improve treatment for stroke to save lives and reduce disability.

  • Improve life after stroke for survivors.