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Down Syndrome NSW

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Parramatta, NSW
Down Syndrome NSW

Down Syndrome NSW works with passion to support people with Down Syndrome and their families
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Down Syndrome NSW champions the right of people with Down syndrome to have the same access to society as everyone else. This means the right to health, education, work, family and being part of the community.

27/01/2026

Flashback to an incredible achievement!

Our Platinum Partners, Fugen, raised over $79,000 for Down Syndrome NSW by taking on the Cole Classic, and we’re still feeling the impact of their amazing effort!

Thanks to this support, we’ve been able to reach over 20 schools in regional communities, delivering tailored, in-person assistance to educators working with students with Down syndrome. These visits go beyond a single moment. They’re the beginning of ongoing, meaningful support that helps create inclusive classrooms where every student can thrive.

Got a personal challenge coming up? Whether it's a run, swim, hike or something unique, why not make it even more meaningful by fundraising for Down Syndrome NSW?

Send us a DM or email partnerships@downsyndromensw.org.au to get started.
Together, we can create a more inclusive future, one challenge at a time.

22/01/2026

Learning new ways to tell our story
As a small not-for-profit, we’re always looking for innovative ways to showcase the incredible things our community is doing and to highlight the programs and services that support people with Down syndrome across NSW.

That’s why we’re so grateful to Vidzero for hosting an in-person “How to Film on Your Phone” session with our team. Building these skills is a big step forward in how we share stories, celebrate achievements, and amplify the voices of our community.

A huge thank you as well to Campari Group for generously providing the meeting space and helping make this session possible.

Together, we’re building confidence, capability, and connection, one story at a time

20/01/2026

Flashback to World Down Syndrome Day!

At i STEAM Ahead Early Learning Centre, students and staff came together to celebrate Lots of Socks Day in honour of student Leo, a day filled with bubbles, music, colour and love!

Leo’s mum Reggie shared:
"The outpouring of love and care we received is truly overwhelming. It’s incredible to see how small acts of kindness can make such a big difference. Whether the donations were big or small, the real power lies in the future we are building together, one filled with hope, love, and inclusion."

Juliana from i STEAM Ahead Early Learning Centre said:
"The children may not fully understand what was happening while we were blowing bubbles, singing, and having fun, but I’m sure one day they’ll remember that they were celebrating life, just like the rest of us."

Thank you, i Steam Ahead, for showing us all the true meaning of community.
If you wish to host a Losts of Socks day send us a DM and we will send you all the information you need.

19/01/2026

A huge thank you to the Sydney Swans!

The Sydney Swans have been an incredible partner of Down Syndrome NSW providing our members with free tickets to games, exclusive behind-the-scenes experiences and employment opportunities for our members.

We are so grateful for your ongoing support and commitment to celebrating and including the Down syndrome community.

16/01/2026

Thank you BTIG!
We’re thrilled to share that BTIG supported Down Syndrome NSW for a second year as part of their annual Charity Day!

We are incredibly grateful for their generosity and the impact it has created. The funds raised have helped us sustain our existing programs and will also enable us to launch an exciting new workshop and opportunities for people with Down syndrome.

Stay tuned for more details, we can’t wait to share what’s coming next!

14/01/2026

We're on our way to Tamworth! On Sunday 18 Jan, Down Syndrome NSW will be hosting a Community Consultation and Social Event as part of our Growing, Connected project. We’d love to hear your thoughts on what services and supports would most benefit the local community. It’s also a wonderful chance to connect with other families, share ideas, and enjoy some morning tea on us.

📅 Sunday 18 Jan, 2026
🕙 12.30 - 2.00pm
📍 Location: Southgate Inn, 16A Kent St, South Tamworth NSW 2340
☕ Lunch Provided

👉 Register here: https://events.humanitix.com/growing-connected-tamworth-community-consultation-and-social-event

14/01/2026

Celebrating 5 Years of Partnership!
We are so grateful to the Botanic Gardens of Sydney for continuously providing a beautiful venue for our flagship event, Up! For Fun.

This event is more than just a day out it's an opportunity for our community to come together, share stories, celebrate achievements, and provide support to one another. Every year, the Botanic Gardens of Sydney create a welcoming space where the Down syndrome community can truly shine.

Our partnership has now spanned over five wonderful years, and we couldn’t be more grateful. Thank you for helping us celebrate the Down syndrome community and make events like Up! For Fun possible.

08/01/2026

Meet our Health Ambassadors!

Our Health Ambassadors are people with Down syndrome who work to make health care better.

They come from across Australia and work with health professionals and students. They share real experiences and practical advice about communication, respect and being included in decisions about health.

Health Ambassadors:

– run training and workshops for health students and professionals
– help create accessible resources like Easy Read guides and apps
– speak at conferences, webinars and events
– share real experiences to help improve health care in practice

In their words:

“I love presenting and making my voice heard.” Olivia

“I am very proud of my work to improve what health care workers should know when working with people with intellectual disability.” Naomi

“We get good feedback from the people we present to.” Rohan

“I like how we work together as a team.” Caitlin

Learn more about our Health Ambassadors: https://buff.ly/c8sgaeM

30/12/2025

Spring Your Confidence – Self-Advocacy Workshop and Dance Party

In November, our UP! Club community came together for Spring Your Confidence, a free event for UP! Club Spring Camp participants and our Blue Mountains members.

The evening began with a self-advocacy workshop facilitated by Me Plus More, where participants explored practical ways to speak up for themselves using role play, visual supports and group activities.

Following the workshop, everyone enjoyed a relaxed dinner, sharing conversations, laughs and good food. The night finished on a high with a spring-themed disco, and our Blue Mountains crew well and truly filled the dance floor with energy.

After UP! Club’s recent Self-Advocacy Workshop and Dance Party, Spring Your Step, we are excited to be hosting more self-advocacy-focused events in the new year.

To find out more about UP! Club, visit:
https://www.downsyndromensw.org.au/programs/upclub

24/12/2025

Happy Holidays from all of us at Down Syndrome NSW!

We wish you a safe, and joyful holiday season, spent with friends, family and loved ones in ways that are meaningful to you.

Here’s to rest, reflection and connection, and to another year of community, inclusion and belonging ahead.

As the year comes to a close, we’d like to say a heartfelt thank you to our incredible community, our members, families, volunteers, partners and supporters. Your support, kindness and commitment mean so much to us.

24/12/2025

What a truly magical End of Year Party shared with our Down Syndrome NSW community.

We kicked off the celebrations at the Art Gallery of New South Wales, gathering in Meers Hall before enjoying a special tour of the Mike Hewson Gallery. The space felt like a creative playground for adults and children alike, filled with interactive artworks, moments of discovery, and a wonderful buzz of excitement.

After the tour, everyone came back together in Meers Hall to enjoy delicious food and drinks. A heartfelt thank you to Margot Elliffe, and Deborah Begg for their beautiful speeches, which truly touched our hearts.

The photo booth was a highlight throughout the day, capturing laughter, playful poses and so many smiling faces. We sincerely thank Exclusive Photo Booths Sydney for their generosity and support.

Our younger members were especially thrilled when Santa made a surprise visit, spreading festive cheer and bringing big smiles all around.

We wrapped up the celebration with disco vibes in full swing, dancing, laughing and celebrating together as one connected community.

We also extend our sincere thanks to our sponsors and supporters. We are deeply grateful for your generosity and continued support.
• The End of Year Party is funded by the Australian Government Department of Health, Disability and Ageing
• The festive disco is proudly sponsored by Eleah

Thank you to everyone who joined us and helped make this celebration so special. It was a beautiful way to close out the year and welcome the festive season together.

21/12/2025

Office Closure Notice

Down Syndrome NSW will be closed from Monday 22 December 2025 and will reopen on Monday 5 January 2026.

During this time, our office and phone lines will be closed.

Urgent support during this period:

- Parent Line: 13 22 89
- 1800RESPECT: 1800 015 188
- Safe Steps: 1800 015 188
- Lifeline: 13 11 14
- Beyond Blue: 1300 224 636
- Disability Advocacy Support Line: 1300 365 085

We wish all our members, families and community a safe and happy holiday season, and a fantastic start to 2026.

Address

Parramatta, NSW

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

https://www.downsyndromensw.org.au/

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