Long Covid Lens

Long Covid Lens Chronic illness warrior navigating Long Covid, POTS, EDS & more. Sharing my journey from collapse to recovery—through setbacks, strength & slow healing.

Here to shed light through the fog & offer hope to others walking this unseen path.

2. The Plan Was Set Aside QuietlyChapter use • Chapter 4 – Primary • Chapter 19 – Supporting Paragraphs to reference Cha...
27/01/2026

2. The Plan Was Set Aside Quietly

Chapter use • Chapter 4 – Primary • Chapter 19 – Supporting Paragraphs to reference Chapter 4 • Early paragraphs explaining bureaucratic decision-making structures • Descriptions of emergency governance replacing standing plans Chapter 19 • Commentary on divergence from established Australian models Summary guide This blog shows deviation, not failure yet. The key message is quiet replacement, not chaos....

Chapter use • Chapter 4 – Primary • Chapter 19 – Supporting Paragraphs to reference Chapter 4 • Early paragraphs explaining bureaucratic decision-making structures • Descriptions of emergency gover…

1. The Plan We Already HadWhat Australia’s 2019 Pandemic Management Plan actually said. Why it was designed for respirat...
22/01/2026

1. The Plan We Already Had

What Australia’s 2019 Pandemic Management Plan actually said. Why it was designed for respiratory viruses. Why vaccines were never expected to stop transmission. Book reference: Chapter 1 – What this Book is About Chapter 4 – The Bureaucrat (Robert Clancy)...

What Australia’s 2019 Pandemic Management Plan actually said. Why it was designed for respiratory viruses. Why vaccines were never expected to stop transmission. Book reference: Chapter 1 – What th…

Today I wanted to share something hopeful.After a very long, very exhausting, 2yr road, my TPD claim has been approved. ...
22/01/2026

Today I wanted to share something hopeful.

After a very long, very exhausting, 2yr road, my TPD claim has been approved. I’m sharing this not to celebrate money, but to acknowledge recognition. Someone finally looked at my medical history, my functional capacity, and the reality of living with POTS and Long COVID, and said yes, this is real, this is permanent, and this person deserves support.

For years many of us have lived in limbo. Too sick to work. Too “functional” to be believed. Explaining ourselves over and over while our bodies keep changing the rules. This outcome felt like validation after a lot of invisible suffering.

If you are in the middle of assessments, applications, or feeling like you are screaming into the void, please know this. These conditions are being recognised. Slowly, imperfectly, but genuinely. The medical evidence is catching up to lived experience.

I am deeply grateful to my fiance and carer, my incredibly supportive family an friends, my specialists and my GP, who supported me when I could barely advocate for myself. This decision has given me something I haven’t had in a long time. Breathing room. Safety. A sense that my future is allowed to exist again.

If you are walking this road too, please don’t give up. Your symptoms are real. Your limitations are real. And your life still has value, even if it looks nothing like you planned.

Holding hope for all of us.

In love and spoons xx

21/01/2026
I Thought People Knew. They Don’t.A few days ago, I shared my letter to the Health Minister on Facebook. It wasn’t drama...
18/01/2026

I Thought People Knew. They Don’t.

A few days ago, I shared my letter to the Health Minister on Facebook. It wasn’t dramatic. It wasn’t aggressive. It was factual, measured, and grounded in evidence. I expected disagreement. What I didn’t expect was the sheer number of Australians who genuinely had no idea what actually happened to us during Covid. Some of them are living with Long Covid....

A few days ago, I shared my letter to the Health Minister on Facebook. It wasn’t dramatic. It wasn’t aggressive. It was factual, measured, and grounded in evidence. I expected disagreement. What I …

The time has come to make a stand with our government on policy harm, particularly vaccine.  This is a letter I have sen...
16/01/2026

The time has come to make a stand with our government on policy harm, particularly vaccine. This is a letter I have sent to our local WA Health Minister. Please consider writing your own letter as the more voices we have, the louder we will be and the best chance of seeing effective change. The images are an excerpt from Covid Through Our Eyes which documents Australia’s journey through the Covid Vaccine experience. It clearly shows that our govt was well aware of the harm, before, during and after the mandates and clearly demonstrates they chose policy over clear medical, scientific and legal advice.

Dear Minister,
I am writing to you as a Western Australian who has been profoundly harmed by government health policy and then abandoned by the very systems responsible for that harm.

My life changed permanently following mould exposure and a serious adverse reaction to the
COVID-19 vaccine caused by an underlying connective tissue disorder that was unknown at the time, due to insufficient clinical testing for people like me. What followed was physical collapse and systemic failure. I developed complex, lifelong conditions including dysautonomia, POTS,
hypermobility spectrum disorder, fibromyalgia, chronic fatigue, Long COVID, Mast Cell Activation Syndrome, and chronic pain. I am also AuDHD, a neurodivergence that was previously well managed but has now become overwhelming due to neurological, autonomic, and sensory overload. These diagnoses are supported by multiple specialists.

The COVID vaccine was mandated by my employer in direct response to government regulation. Non-compliance meant losing my job. I did not have a safe option to decline. I complied because I trusted public health advice and believed that if harm occurred, support would follow. It did not.
Since becoming disabled, I have repeatedly been treated as drug-seeking rather than
pain-managed, despite being under the care of a pain specialist. I also experience severe sleep disturbance. At times, I do not sleep for four days in a row. This level of sleep deprivation is medically dangerous, yet it is met with suspicion rather than urgency.

General practitioners are overwhelmed. They are now facing unprecedented numbers of patients with multi-systemic conditions that were once considered rare. Many people are crashing at the same time, with complex needs that do not fit short consult models or rigid prescribing frameworks. Without adequate training, time, or systemic support, care fragments and patients are left without continuity.

In my case, decisions have been made that directly contradict specialist advice, without consequence for the harm caused and without support or guidance offered in its place. On more than one occasion, I was simply told, “I am not comfortable with that,” and sent away. That response
triggered a severe despair cycle and compounded my medical PTSD. Medical appointments now provoke intense anxiety and panic attacks. Seeking care itself has become harmful.

I was denied progesterone alongside estrogen due to generalised cancer risk concerns, despite clear evidence that estrogen-only therapy causes me constant, incapacitating nausea because of my connective tissue disorder. No alternatives, follow-up, or safety planning were offered.

When vaccine injury occurred, support mechanisms were dismantled. Assistance payments were scrapped before many Australians, including me, even knew they existed. There was no outreach,
no education, and no transition support.

I am now living in poverty. I rely on hand-me-downs from family and local food banks. Some
fortnights I must choose between food and medication. I am one person’s support away from homelessness. The Disability Support Pension does not cover the cost of complex chronic illness. Survival consumes everything.

I worked and paid taxes for 35 years, from the age of 15. I built a career and contributed to society wherever I could. I continue to contribute through advocacy and community support despite significant
limitations. I have no quality of life.

The despair is real and rational. It comes from being trapped in a body that no longer functions within a system that refuses responsibility for policy-driven harm.

How can this be the lucky country I grew up in?

I am asking for accountability, recognition, and a healthcare system that does not abandon people harmed by public policy decisions. Australians harmed by policy should not be erased by policy.

Sincerely,
Lani Jean Meyerinkm cere icce

08/11/2025

🔷💠 Why People with Chronic Illness(es) Can’t or Struggle to Do Grocery Shopping 💠🔷

Explaining why grocery shopping is so difficult—or completely impossible—for people living with chronic illnesses is like trying to describe climbing a mountain made of quicksand.

What looks like “just running to the store” can feel like a dangerous expedition through pain, exhaustion, overstimulation, and risk.

For many of us, grocery shopping isn’t a matter of convenience—it’s a matter of physical limitation, survival, and sometimes, self-protection.

💠We’re not lazy.
💠We’re not exaggerating.
💠We’re not “avoiding responsibility.”

We’re living in bodies that can’t handle what healthy bodies take for granted.

🔷 The Hidden Energy Toll 🔷
A grocery trip involves dozens of steps: getting ready, driving or finding transport, walking aisles, standing in line, lifting bags, putting everything away.

For chronically ill bodies, each of those steps can drain more energy than we have to give.

Conditions like ME, POTS, dysautonomia, EDS, autoimmune disease, long COVID, MCAS, fibromyalgia, and more mean our bodies can’t create, store, or use energy normally.

What seems like an hour-long errand can cost days—or even weeks—of recovery.

Some of us don’t start with a half-full tank. We wake up already empty.

🔷 Physical Symptoms That Turn Grocery Shopping Into an Ordeal 🔷
What others don’t see:

🔹 Standing in line can cause dizziness, tachycardia, or fainting.
🔹 Fluorescent lights, noise, and crowds can trigger migraines, sensory overload, or seizures.
🔹 Bending, lifting, or walking can lead to dislocations, flares, or collapse.
🔹 Heat or cold sensitivity can worsen dysautonomia or MCAS symptoms.
🔹 Exposure to cleaning chemicals, fragrance, or sanitizers can cause severe mast cell reactions.
🔹 For those who are immunocompromised, grocery stores can be infection hazards—filled with viruses, bacteria, and people who may not know they’re contagious.

Even with masks, filters, and precautions, the risk can be too high.

🔷 Cognitive & Neurological Barriers 🔷
“Brain fog” isn’t forgetfulness—it’s neurological dysfunction. Shopping requires multitasking, decision-making, and sequencing—all things many chronic illnesses disrupt.

We can lose track of what we need, get overwhelmed by choices, or forget where we are in the store. It’s not about being careless—it’s about our brains fighting to keep up with basic function.

🔷 Fluctuating Functionality 🔷
We don’t have predictable “good days.”
A task we managed last week might be impossible today.

Symptoms shift constantly, so there’s no reliable pattern—only constant calculation: "Can I afford to do this without crashing?"

A single grocery trip can wipe out our energy for the rest of the week, month or even year.

🔷 Emotional Weight & Stigma 🔷
Society treats grocery shopping like a basic adult skill—a marker of independence.

When chronic illness takes that away, we face judgment, guilt, and grief. We’re told to “just go during quiet hours” or “try harder,” as if determination could override disease.

We see the empty fridge, the missed ingredients, the growing grocery list—and it hurts. But this isn’t about willpower. It’s about physiology.

💠 We’re not lazy.
💠 We’re not avoiding adulthood.
💠 We’re protecting our health and managing survival.

🔷 Adaptive Tools Aren’t Luxuries 🔷
Many of us rely on grocery delivery, curbside pickup, or help from loved ones—not because we want convenience, but because it’s the only safe or sustainable option.

Even these alternatives can be exhausting—coordinating orders, unpacking deliveries, managing substitutions, or handling scents from packaging can still take everything we have.

🔷 For Some, It’s Simply Impossible 🔷
For many, grocery shopping isn’t just difficult—it’s not possible at all.

Leaving the house, walking through a store, or being around crowds can trigger physical collapse, infections, or dangerous symptom flares.

🔷 To Friends, Family & Society 🔷
If someone with chronic illness says they can’t go grocery shopping, believe them.
They’re not exaggerating. They’re explaining reality.

Offer help without judgment. A ride, a delivery, a shared list—these small gestures can mean everything.

Our worth isn’t measured by how full our fridge is. Our value isn’t defined by how often we show up at the store.

Our strength is found in enduring what healthy people never have to think about - and surviving in bodies that make the simplest tasks feel impossible.

💙👉 If posts like this resonate, follow Chronically Rising.

©️ All rights reserved by Chronically Rising.

08/11/2025

Golden hour at Morialta - this koala couldn’t resist stopping to admire last night's sunset over Adelaide.

7NEWS viewer Eugene Gapac captured the South Aussie view.

Send your weather videos and photos to 7NEWS Adelaide: https://m.me/7NEWSAdelaide

03/11/2025

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