Long Covid Lens

Long Covid Lens Chronic illness warrior navigating Long Covid, POTS, EDS & more. Sharing my journey from collapse to recovery—through setbacks, strength & slow healing.

Here to shed light through the fog & offer hope to others walking this unseen path.

08/11/2025

🔷💠 Why People with Chronic Illness(es) Can’t or Struggle to Do Grocery Shopping 💠🔷

Explaining why grocery shopping is so difficult—or completely impossible—for people living with chronic illnesses is like trying to describe climbing a mountain made of quicksand.

What looks like “just running to the store” can feel like a dangerous expedition through pain, exhaustion, overstimulation, and risk.

For many of us, grocery shopping isn’t a matter of convenience—it’s a matter of physical limitation, survival, and sometimes, self-protection.

💠We’re not lazy.
💠We’re not exaggerating.
💠We’re not “avoiding responsibility.”

We’re living in bodies that can’t handle what healthy bodies take for granted.

🔷 The Hidden Energy Toll 🔷
A grocery trip involves dozens of steps: getting ready, driving or finding transport, walking aisles, standing in line, lifting bags, putting everything away.

For chronically ill bodies, each of those steps can drain more energy than we have to give.

Conditions like ME, POTS, dysautonomia, EDS, autoimmune disease, long COVID, MCAS, fibromyalgia, and more mean our bodies can’t create, store, or use energy normally.

What seems like an hour-long errand can cost days—or even weeks—of recovery.

Some of us don’t start with a half-full tank. We wake up already empty.

🔷 Physical Symptoms That Turn Grocery Shopping Into an Ordeal 🔷
What others don’t see:

🔹 Standing in line can cause dizziness, tachycardia, or fainting.
🔹 Fluorescent lights, noise, and crowds can trigger migraines, sensory overload, or seizures.
🔹 Bending, lifting, or walking can lead to dislocations, flares, or collapse.
🔹 Heat or cold sensitivity can worsen dysautonomia or MCAS symptoms.
🔹 Exposure to cleaning chemicals, fragrance, or sanitizers can cause severe mast cell reactions.
🔹 For those who are immunocompromised, grocery stores can be infection hazards—filled with viruses, bacteria, and people who may not know they’re contagious.

Even with masks, filters, and precautions, the risk can be too high.

🔷 Cognitive & Neurological Barriers 🔷
“Brain fog” isn’t forgetfulness—it’s neurological dysfunction. Shopping requires multitasking, decision-making, and sequencing—all things many chronic illnesses disrupt.

We can lose track of what we need, get overwhelmed by choices, or forget where we are in the store. It’s not about being careless—it’s about our brains fighting to keep up with basic function.

🔷 Fluctuating Functionality 🔷
We don’t have predictable “good days.”
A task we managed last week might be impossible today.

Symptoms shift constantly, so there’s no reliable pattern—only constant calculation: "Can I afford to do this without crashing?"

A single grocery trip can wipe out our energy for the rest of the week, month or even year.

🔷 Emotional Weight & Stigma 🔷
Society treats grocery shopping like a basic adult skill—a marker of independence.

When chronic illness takes that away, we face judgment, guilt, and grief. We’re told to “just go during quiet hours” or “try harder,” as if determination could override disease.

We see the empty fridge, the missed ingredients, the growing grocery list—and it hurts. But this isn’t about willpower. It’s about physiology.

💠 We’re not lazy.
💠 We’re not avoiding adulthood.
💠 We’re protecting our health and managing survival.

🔷 Adaptive Tools Aren’t Luxuries 🔷
Many of us rely on grocery delivery, curbside pickup, or help from loved ones—not because we want convenience, but because it’s the only safe or sustainable option.

Even these alternatives can be exhausting—coordinating orders, unpacking deliveries, managing substitutions, or handling scents from packaging can still take everything we have.

🔷 For Some, It’s Simply Impossible 🔷
For many, grocery shopping isn’t just difficult—it’s not possible at all.

Leaving the house, walking through a store, or being around crowds can trigger physical collapse, infections, or dangerous symptom flares.

🔷 To Friends, Family & Society 🔷
If someone with chronic illness says they can’t go grocery shopping, believe them.
They’re not exaggerating. They’re explaining reality.

Offer help without judgment. A ride, a delivery, a shared list—these small gestures can mean everything.

Our worth isn’t measured by how full our fridge is. Our value isn’t defined by how often we show up at the store.

Our strength is found in enduring what healthy people never have to think about - and surviving in bodies that make the simplest tasks feel impossible.

💙👉 If posts like this resonate, follow Chronically Rising.

©️ All rights reserved by Chronically Rising.

08/11/2025

Golden hour at Morialta - this koala couldn’t resist stopping to admire last night's sunset over Adelaide.

7NEWS viewer Eugene Gapac captured the South Aussie view.

Send your weather videos and photos to 7NEWS Adelaide: https://m.me/7NEWSAdelaide

03/11/2025
03/11/2025

Patients are calling for better access to long COVID care after the closure of one of the country's last public clinics.

10/10/2025
I went to my GP with hope and a carefully prepared list. I asked for help with my workers comp paperwork.I needed suppor...
07/10/2025

I went to my GP with hope and a carefully prepared list. I asked for help with my workers comp paperwork.I needed support with my HRT.I wanted referrals for IV therapy, MCAS management, and dysautonomia testing. What I got instead was a wall of refusal. Not only did she refuse to help me with workers comp, she dismissed every single one of…...

I went to my GP with hope and a carefully prepared list. I asked for help with my workers comp paperwork.I needed support with my HRT.I wanted referrals for IV therapy, MCAS management, and dysauto…

03/10/2025

— a heart that listens. 🙏🏻🤍

03/10/2025

October is Dysautonomia Awareness Month!⁠

Many people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) also have a type of dysautonomia. There are different types of dysautonomia with different symptoms. ⁠

Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.⁠

People with EDS and HSD most commonly have a form of orthostatic intolerance. “Orthostasis” means to stand upright, so orthostatic intolerance refers to symptoms that occur due to standing up or being upright.⁠

The two most common types of orthostatic intolerance are:⁠

1️⃣ Orthostatic hypotension (OH) — low blood pressure on being upright.⁠
2️⃣ Postural orthostatic tachycardia syndrome (POTS) — an abnormal increase in heart rate when standing without a drop in blood pressure.⁠

Symptoms of dysautonomia include: ⁠ ⁠

● Tachycardia (fast heart rate)⁠ ⁠
⁠● Palpitations (feeling the heart racing or pounding)⁠
● Hypotension (low blood pressure)⁠
● Lightheadedness ⁠
● Presyncope (a sense of being about to faint)⁠
● Syncope (fainting)⁠
● ⁠Blurred vision⁠
😶‍🌫️Brain fog (problems with concentration and memory)⁠
● Headaches⁠
⁠● Chest pain ⁠ ⁠
⁠● Shakiness⁠
💤Chronic fatigue⁠
⁠● Exercise intolerance and feeling worse after exercise⁠ ⁠
● Swelling and/or discoloration of the legs after standing for short periods of time⁠
● Cold, discolored hands and feet⁠ ⁠
⁠● Temperature dysregulation⁠ ⁠
🥵Sweating⁠
● Sleep disturbance⁠
● Gastrointestinal issues⁠
● Nausea⁠
🚽Bladder dysfunction⁠

Click the link to learn more about dysautonomia, how it's diagnosed, and management strategies to help: https://www.ehlers-danlos.com/dysautonomia/

03/10/2025

Happy Friday! Hope you’ve had a great week so far. And either way, you’ve shown up through it all which means something💜

01/10/2025
26/09/2025

To you. 💛

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Perth, WA
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