Consumer and Community Involvement Program

16/12/2025

Researchers invite people with lived experience of a neurodisability, neurodevelopmental condition or neurodiversity (as a carer or patient) to help guide a project about how these experiences can be better included in simulation-based health professional training.

We are looking for Research Buddies to work alongside the team at each stage, so the work is shaped by real experiences of families and individuals.

Experience required:

➡️ Lived experience as either a patient or carer of a child with a neurodevelopmental condition (E.g. cerebral palsy, intellectual disability, Autism Spectrum Disorder)
➡️ Familiarity with Microsoft Teams would be helpful because most meetings will be held online.
➡️ You do not need research experience. If you do have experience or interest, there may be an option to be more involved in the second phase of the project.

A $37.50 per hour honorarium is offered.

Find out more & apply 👉 https://bit.ly/4pyq30i

08/12/2025

What an inspiring day at Edith Cowan University (ECU) Nutrition and Health Innovation Research Institute & Nutrition Society of Australia Symposium! It was a pleasure for the CCIProgram’s Deb Langridge and Caroline Jones to be involved.

The theme, “An Appetite for Consumer-driven Research” sparked incredible conversations about the power of collaboration and a highlight were the researcher–consumer co-presentations, showcasing groundbreaking projects bringing together researchers, consumers, and WA’s research community to drive meaningful change.

05/12/2025

Have you experienced tendon or muscle problems?

We're looking for people with lived experience, whether from tendon overloading injuries (like ) or muscle/tendon wasting due to underuse, to share their insights.

Your voice matters! By getting involved, you’ll help shape a novel cell therapy treatment and ensure it reflects real-world needs.

✅ Why participate?

👉 Influence study design and recruitment strategies
👉 Make treatment outcomes more meaningful for patients
👉 Share what matters most for recovery

Find out more & apply here: https://bit.ly/4aeD7n8
Orthocell

27/11/2025

Your voice matters in medical research!

Consumers play a vital role in shaping health and medical research that truly makes a difference. The Medical Research Future Fund (MRFF) values your insights to ensure projects are relevant and impactful.

✅ Want to get involved?

➡️ Discover how MRFF supports consumer participation and learn about funding opportunities - https://bit.ly/3XS5Dnf
➡️ Put your hand up to join an MRFF Grant Assessment Committee – these independent panels help decide which projects receive funding - https://bit.ly/4okOzRI

Have you been part of MRFF-funded research? We’d love to hear your story! Share your experience by emailing 👉 MRFF@health.gov.au

Expression of Interest – MRFF Grant Assessment CommitteeThe Department of Health, Disability and Ageing and NHMRC are seeking interest from a range of stakeholders to assist in MRFF grant review and assessment processes as a member of a Grant Assessment Committee for MRFF grant opportunities.

26/11/2025

📣 WAHTN CCIProgram Annual Report 2024 – 2025 📣

We are pleased to share our Annual Activity Report for 2024-2025 and hope you enjoy reading about how the CCIProgram has been guiding and supporting WAHTN Partners.

It’s been exciting to deliver new tailored training programs to researchers, facilitated more Masterclasses than ever before with co-presentations from guest consumers and researchers.

WA have been active in the Western Australian and national research sector with our WA CCI Community of Practice membership continuing to grow. Working together with you, and lived experience voices - we know we can make research stronger.

Read the report 👉 https://bit.ly/4plDx01

21/11/2025

Researchers invite parents or carers of children who were investigated for or diagnosed with appendicitis to help improve how doctors diagnose and manage this condition in WA hospitals. This project will explore the best performing Clinical Prediction Scores (CPSs) to see whether these tools can help doctors make faster, safer decisions for kids. We are looking for Research Buddies to work alongside the team to ensure it is informed and guided by lived experience across all stages.

What Skills or Experience Do I Need?

We are looking for parents or carers whose children presented to any hospital ED in WA with abdominal pain and were investigated for or diagnosed with appendicitis. You should be comfortable contributing to discussions in a group setting, reviewing documents to provide constructive feedback, and be familiar with Zoom/Teams.

Find out more & submit your application 👉 https://bit.ly/4qR8PNb

13/11/2025

Researchers from Murdoch University invite older adults who are interested in being physically active and have lived experience related to dementia to help them adapt an existing online physical activity program. The program aims to increase physical activity levels and reduce dementia risk in older adults living in areas who are currently less active.

We are looking for Research Buddies to work across all stages of this project to make sure that it is shaped and guided by the people who the intervention is targeted at - older adults at risk of , living in regional communities.

Successful applicants will receive a $50 per hour honorarium.

Find out more & apply 👉 https://bit.ly/47rX5JD

11/11/2025

🌿 Heart-Healthy Eating Community Conversations – South West WA 🌿

We kicked off our Heart-healthy Eating Community Conversation series yesterday in Busselton and Donnybrook – thank you to everyone who joined us to help shape the future of heart-healthy eating support in your communities! 💬❤️

These workshops are for South West residents with lived experience of heart disease, stroke, or risk factors like high blood pressure, high cholesterol, or diabetes. Together, we’re exploring what’s needed to make heart-healthy eating achievable – from resources and support systems to research priorities that matter most to local families.

📍 We have a couple of spots left at the upcoming sessions this week:
• Wed 12 Nov – Bunbury
• Thu 13 Nov – Manjimup
• Fri 14 Nov – Collie & Dardanup

🔗 If you're a resident of any of the areas mentioned above, we encourage you to submit your EOI to attend, you can find your local session on our events and training webpage: cciprogram.org/events-and-training

Let’s shape a healthier future, together.

31/10/2025

Are you from the South West of WA? Heart health starts in our communities — and we want to hear from yours.

Throughout November, researchers from Edith Cowan University (ECU) and the CCIProgram will be travelling across the South West to hold a series of Community Conversations on heart-healthy eating.

We’re inviting people who have lived experience of heart disease, stroke, high blood pressure, high cholesterol, or diabetes — or who care for someone who does to share their stories, ideas, and local experiences.

These aren’t information sessions, they’re listening sessions. Your insights will help shape new research and community support for realistic, heart-healthy eating in everyday life.

Conversations will be held in Bunbury, Busselton, Dardanup, Collie, Boyup Brook, Bridgetown, Donnybrook, Nannup, and Manjimup.

🎁 Participants receive an $80 gift card and light refreshments as thanks for their time.

🗓️ Sessions run from 10–14 November 2025.

Find the link to your local session below and submit your Expression of Interest to take part - Registrations are essential.
📍 Bunbury - https://bit.ly/3VXgxHp
📍 Dardanup - https://bit.ly/4nOEMnu
📍 Collie - https://bit.ly/3L3ifEN
📍 Boyup Brook - https://bit.ly/4nCF40C
📍 Busselton - https://bit.ly/3KJZXbB
📍 Bridgetown - https://bit.ly/3IDGPeX
📍 Nannup - https://bit.ly/3IXzU0b
📍 Donnybrook - https://bit.ly/3WAsymg
📍 Manjimup - https://bit.ly/3KBx15N

Or you can find your nearest session and register here → https://cciprogram.org/events-and-training/

Please share this post to help us reach more South West community members who can contribute their experiences and ideas.

30/10/2025

Are you from Bunbury? We’d love to hear from you!
Eating for heart health sounds simple — but in real life, it’s not always easy.

Researchers from Edith Cowan University (ECU) together with the CCIProgram, are coming to Bunbury to listen to local experiences of heart-healthy eating — what helps, what makes it harder, and what kind of support would really make a difference.

If you or someone you care for has lived with heart disease, stroke, high blood pressure, high cholesterol or diabetes, this conversation is for you.

Join us for the Bunbury Community Conversation:
📅 Wednesday, 12 November 2025
🕛 12–2pm
📍 Stirling Street Arts Centre
🎁 Participants receive an $80 gift card and light refreshments as thanks for their time.

Registrations are essential, submit your EOI now: https://bit.ly/3VXgxHp

This is one of nine conversations being held across the South West throughout November. To see all locations and details, visit the CCIProgram Events and Training page on our website: https://cciprogram.org/events-and-training/

Please help spread the word by sharing this post with anyone in the Bunbury area who might like to take part.

24/10/2025

Researchers invite those with lived experience of a language impairment to help them better understand the effects of such impairment on daily communication and relationships.

We are looking for Research Buddies to work across all stages of this project to make sure that it is informed and guided by people that are knowledgeable regarding the impact of a language impairment.

What experience do you need?

➡️Lived experience of a diagnosed language disorder or a carer for someone with a language disorder.
➡️ No prior research experience is required.
➡️ Be comfortable contributing to discussions in a small group setting

Find out more about this project & apply👉 https://bit.ly/46VGUE5

20/10/2025

You are invited to make a change in how we manage transition of care (TOC) - the transfer of clinical governance between different healthcare locations, specialists, or other services, (pathology, radiology, pharmacy) to address changing patient needs.

We are looking for Consumer Advisory Group Members to improve our understanding of current transition of care pathways in the WA health system.

Experience required:

A lived experience (as a patient or carer) of being transferred between hospitals. No prior research experience is needed. Ideally you would feel comfortable contributing in a small group discussions.

Find out more & apply 👉 https://bit.ly/474xpkB