02/04/2026
The Molecular Therapy Lab at Murdoch University is inviting people with lived experience of rare genetic conditions to join a Consumer Advisory Group. This group will play an important role in guiding research into new and emerging treatments for rare and ultra‑rare diseases. We value diverse perspectives and experiences that can help ensure research is designed, communicated, and delivered in ways that truly meet community needs.
If you:
➡️ Have lived experience of a rare genetic condition, or are a carer or family member
➡️ Are comfortable contributing to group discussions
➡️ Are interested in improving research and how it connects with people
➡️ Can listen to and consider a range of perspectives
➡️ Are willing to contribute beyond your own individual experience
We encourage you to apply! A $50 per hour honorarium is offered - Find out more and submit your application 👉 https://bit.ly/4m0YI6F