Consumer and Community Involvement Program

31/10/2025

Are you from the South West of WA? Heart health starts in our communities — and we want to hear from yours.

Throughout November, researchers from Edith Cowan University (ECU) and the CCIProgram will be travelling across the South West to hold a series of Community Conversations on heart-healthy eating.

We’re inviting people who have lived experience of heart disease, stroke, high blood pressure, high cholesterol, or diabetes — or who care for someone who does to share their stories, ideas, and local experiences.

These aren’t information sessions, they’re listening sessions. Your insights will help shape new research and community support for realistic, heart-healthy eating in everyday life.

Conversations will be held in Bunbury, Busselton, Dardanup, Collie, Boyup Brook, Bridgetown, Donnybrook, Nannup, and Manjimup.

🎁 Participants receive an $80 gift card and light refreshments as thanks for their time.

🗓️ Sessions run from 10–14 November 2025.

Find the link to your local session below and submit your Expression of Interest to take part - Registrations are essential.
📍 Bunbury - https://bit.ly/3VXgxHp
📍 Dardanup - https://bit.ly/4nOEMnu
📍 Collie - https://bit.ly/3L3ifEN
📍 Boyup Brook - https://bit.ly/4nCF40C
📍 Busselton - https://bit.ly/3KJZXbB
📍 Bridgetown - https://bit.ly/3IDGPeX
📍 Nannup - https://bit.ly/3IXzU0b
📍 Donnybrook - https://bit.ly/3WAsymg
📍 Manjimup - https://bit.ly/3KBx15N

Or you can find your nearest session and register here → https://cciprogram.org/events-and-training/

Please share this post to help us reach more South West community members who can contribute their experiences and ideas.

30/10/2025

Are you from Bunbury? We’d love to hear from you!
Eating for heart health sounds simple — but in real life, it’s not always easy.

Researchers from Edith Cowan University (ECU) together with the CCIProgram, are coming to Bunbury to listen to local experiences of heart-healthy eating — what helps, what makes it harder, and what kind of support would really make a difference.

If you or someone you care for has lived with heart disease, stroke, high blood pressure, high cholesterol or diabetes, this conversation is for you.

Join us for the Bunbury Community Conversation:
📅 Wednesday, 12 November 2025
🕛 12–2pm
📍 Stirling Street Arts Centre
🎁 Participants receive an $80 gift card and light refreshments as thanks for their time.

Registrations are essential, submit your EOI now: https://bit.ly/3VXgxHp

This is one of nine conversations being held across the South West throughout November. To see all locations and details, visit the CCIProgram Events and Training page on our website: https://cciprogram.org/events-and-training/

Please help spread the word by sharing this post with anyone in the Bunbury area who might like to take part.

24/10/2025

Researchers invite those with lived experience of a language impairment to help them better understand the effects of such impairment on daily communication and relationships.

We are looking for Research Buddies to work across all stages of this project to make sure that it is informed and guided by people that are knowledgeable regarding the impact of a language impairment.

What experience do you need?

➡️Lived experience of a diagnosed language disorder or a carer for someone with a language disorder.
➡️ No prior research experience is required.
➡️ Be comfortable contributing to discussions in a small group setting

Find out more about this project & apply👉 https://bit.ly/46VGUE5

20/10/2025

You are invited to make a change in how we manage transition of care (TOC) - the transfer of clinical governance between different healthcare locations, specialists, or other services, (pathology, radiology, pharmacy) to address changing patient needs.

We are looking for Consumer Advisory Group Members to improve our understanding of current transition of care pathways in the WA health system.

Experience required:

A lived experience (as a patient or carer) of being transferred between hospitals. No prior research experience is needed. Ideally you would feel comfortable contributing in a small group discussions.

Find out more & apply 👉 https://bit.ly/474xpkB

17/10/2025

Researchers invite those with lived experience of diabetes insipidus (DI/AVP deficiency) to help them to investigate self-management strategies that people living with DI use to keep themselves healthy. We are looking for Research Buddies to work across all stages of this project to make sure that it is informed and guided by people with DI.

An honorarium of $37.50 per hour is offered to successful applicants. Apply now 👉 https://bit.ly/4nTakII

15/10/2025

✨ We’ve just wrapped up our final Masterclass of 2025 – CCI and Successful Grant Writing!

Researchers from organisations such as UWA, Edith Cowan University (ECU) and the Child and Adolescent Health Service came together to learn how to make their grant applications stronger with consumer and community involvement.

A big thank you to Mar Knox for sharing expert tips on what grant panels look for! We really appreciate you joining us.

This year, we welcomed 146 attendees across our Masterclass Series – thank you for being part of this journey!

📌 Don’t miss out on 2026! Registrations are now open👉 cciprogram.org/events-and-training

13/10/2025

Living in the South-West: Have your say on heart-healthy eating in your community

Researchers from Edith Cowan University (ECU), in partnership with the CCIProgram, are inviting community members across the South West to help shape future programs and support services for heart-healthy eating.

These Community Conversations are designed for people who have experienced heart disease, stroke, or live with risk factors such as high blood pressure, high cholesterol or diabetes. By sharing your lived experience, you’ll help identify what resources, supports and practical solutions are truly needed to make heart-healthy eating realistic and achievable for local families.

An $80 honorarium (gift card) and light refreshments are provided as thanks for your time.

Find your local session below and submit your Expression of Interest to take part:

📍 Bunbury - https://bit.ly/3VXgxHp
📍 Dardanup - https://bit.ly/4nOEMnu
📍 Collie - https://bit.ly/3L3ifEN
📍 Boyup Brook - https://bit.ly/4nCF40C
📍 Busselton - https://bit.ly/3KJZXbB
📍 Bridgetown - https://bit.ly/3IDGPeX
📍 Nannup - https://bit.ly/3IXzU0b
📍 Donnybrook - https://bit.ly/3WAsymg
📍 Manjimup - https://bit.ly/3KBx15N

25/09/2025

🌟 Your Voice Matters: Help Shape Mental Health Research 🌟

Are you a parent or carer of a young person (12–18) experiencing mental health challenges? Researchers want to hear from you!
Join us as a Research Buddy and work alongside researchers to ensure projects reflect real family needs.

✅ Share your lived experience
✅ Help design better supports
✅ Make a difference for families like yours

💰 Honorarium: $50 per hour
👉 Find out more & apply now! https://bit.ly/3W8Des8

25/09/2025

Want to shape the future of lung cancer research?
TRACKER is seeking a WA Consumer Committee member! Bring your lived experience to shape research & make a difference.
Apply now 👉 http://trackerbiobank.com/for-patients
📧tracker@onjcri.org.au

23/09/2025

RESOLVE SHOCK: understanding why patients deteriorate or recover after shock

The RESOLVE-SHOCK research team is inviting people with lived experience of ICU care, especially those who have had shock (very low blood pressure) or sepsis as well as their family members and carers, to partner with us.

We want to better understand why some patients recover while others deteriorate. Your unique insights will help shape our research questions, inform the study’s design and ensure our findings are shared in ways that matter to patients, families, and the community.

Find out more and submit your application 👉 https://bit.ly/4gBC5CZ

09/09/2025

👩‍⚕️ Help Improve Pharmacy Care for CALD Communities 👨‍⚕️

Researchers are exploring ways community pharmacists can better support people from culturally and linguistically diverse (CALD) backgrounds.

We’re inviting:
✅ Individuals with low English proficiency
✅ Their caregivers (e.g., children, close family members)

To join us as a Research Buddy and share your lived experience to help shape this important project to make sure it is informed and guided by culturally and linguistically diverse communities.

Find out more & apply: 👉 https://bit.ly/4m4DzXq

08/09/2025

All.Can Australia seek people affected by cancer to tell them about their experiences to help inform understandings of areas of need and improvement so policies can be developed and services improved to help them live well with and beyond a cancer diagnosis.

This research will allow a better understanding of the changing unmet needs and inefficiencies to help inform desired service improvements in Australian cancer care.

Find out more and complete the survey: https://bit.ly/4m60IJ0 - Survey open until the 17 September 2025.

Send a message to learn more