Fibrous Dysplasia/McCune Albright Syndrome Australia

Fibrous Dysplasia/McCune Albright Syndrome Australia Fibrous Dysplasia/MCune Albright Syndrome Australia has two purposes.
1. Raise awareness about the

Today, we join the world in celebrating and supporting those with Rare Diseases! 💙Fibrous Dysplasia/McCune-Albright Synd...
27/02/2025

Today, we join the world in celebrating and supporting those with Rare Diseases! 💙

Fibrous Dysplasia/McCune-Albright Syndrome is just one of over 300 million people worldwide living with a rare disease. 🌏

Rare Disease day is the globally coordinated movement on rare disease working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Because EVERY voice matters to make rare diseases visible!

Meet Deputy Mayor Councillor Laura Cowell who shares their journey of resilience and strength while living with FD/MAS. ...
26/02/2025

Meet Deputy Mayor Councillor Laura Cowell who shares their journey of resilience and strength while living with FD/MAS. 🌟 https://fdmasaustralia.com.au/fd%2Fmas-stories-1

💭 “Every day, we have a choice—to be defined by our challenges or to rise beyond them. I choose to lead with purpose, focus on the possibilities, and serve others with kindness. Our struggles may shape us, but they will never limit who we can become.” – Laura Cowell

Each person with FD/MAS has a unique experience, but together, we amplify our voices for awareness, research, and better care.

💬 Drop a 💙 in the comments if you support those living with FD/MAS!

Want to support the FD/MAS community? Here’s how YOU can help🤗 Share this post to spread awareness🤗 Join our community –...
26/02/2025

Want to support the FD/MAS community? Here’s how YOU can help

🤗 Share this post to spread awareness
🤗 Join our community – follow us & engage
🤗 Donate to support FDMAS Australia's mission
🤗 Advocate for better care & policies

Awareness leads to action. Action leads to change. Be a part of it!

https://fdmasaustralia.com.au/

Rare Voices Australia Genetic Alliance Australia FDMAS Alliance

Did you know that ongoing research is bringing hope to those living with FD/MAS?Scientists are working to✅ Understand th...
25/02/2025

Did you know that ongoing research is bringing hope to those living with FD/MAS?

Scientists are working to
✅ Understand the genetic causes of FD/MAS
✅ Improve treatment options
✅ Develop potential therapies for better quality of life

💙 Every voice and every donation brings us closer to breakthroughs.

www.fdmasaustralia.com.au

What is Fibrous Dysplasia/McCune-Albright Syndrome?FD/MAS is a rare, complex genetic disorder affecting the bones, skin,...
24/02/2025

What is Fibrous Dysplasia/McCune-Albright Syndrome?
FD/MAS is a rare, complex genetic disorder affecting the bones, skin, and endocrine system. It can cause fractures, hormonal imbalances, and chronic pain, with no current cure.

🔍 Raising awareness is the first step towards better treatments and support for those living with FD/MAS.

💙 Help us spread the word! Share this post and tag someone who should know about FD/MAS.

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