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Macular Disease Foundation Australia

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Macular Disease Foundation Australia

MDFA is a charity committed to reducing the impact of macular disease in Australia.

MDFA is committed to reducing the impact of macular disease in Australia, including age-related macular degeneration, the leading cause of legal blindness in Australia.

05/01/2026

Jannette’s annual eye test revealed something she never expected – macular disease. Because it was picked up early, she started treatment straight away and her vision has stabilised.

Her story is a powerful reminder: regular eye checks can make all the difference.
Read Jannette’s experience: https://www.mdfoundation.com.au/news/jannettes-story-why-early-detection-made-all-the-difference/

Book your eye check today. For free information and support, call Macular Disease Foundation Australia’s national helpline on 1800 111 709.

30/12/2025

“Over the last 60 years I have watched

my mother and grandmother in their daily struggle to cope with loss of sight with dry macular degeneration. My decision to include Macular Disease Foundation in my Will has brought me great peace of mind. It gives me immense pleasure and satisfaction that my legacy will help others in the future.” – Mary, NSW

This Christmas, like Mary, leave a gift of hope for the 1.9 million Australians living with macular disease and their families.

Fight for the sight of the next generation. Leave a gift in your Will. Learn more at: https://www.mdfoundation.com.au/get-involved/leave-gift-in-will-bequests/leave-gift/

29/12/2025

This holiday season, balance celebratory drinks with plenty of water to stay hydrated during the heated festive season.

23/12/2025

Our office will be closed from midday on 24 December and will reopen on 5 January 2026.

If you have any eye health concerns, please contact your optometrist or ophthalmologist. If it’s an emergency, call 000 or go to an Emergency Room.

21/12/2025

If someone in your family is blind or vision impaired, this is a magical and accessible way to experience ballet together this summer at the Sydney Opera House.

Sydney Opera House – Drama Theatre
Saturday 27 December 2025, 2:00pm
Under 1 hour - perfect for introducing younger people to ballet.

What to expect:
• Tactile tour before the show (costumes, props, stage set)
• Preshow notes (digital and audio) sent in advance
• Live Audio Description (AD) via a headset so you can follow all the action on stage

AD is available to any patron who’ll benefit -children, parents, grandparents, aunts, uncles, close friends - so everyone can enjoy the performance together.

Limited AD ticket allocation - book via the dedicated link - https://my.australianballet.com.au/20894/21070?promoapplied=true

If you have issues booking, call the Sydney Opera House Box Office on 1300 764 849

[Image description: illustration of Nutcracker ballet performer and details of one-off AD performance.]

21/12/2025

If someone in your family is blind or vision impaired, this is a magical and accessible way to experience ballet together this summer at the Sydney Opera House.

Sydney Opera House – Drama Theatre
Saturday 27 December 2025, 2:00pm
Under 1 hour - perfect for introducing younger people to ballet.

What to expect:
• Tactile tour before the show (costumes, props, stage set)
• Preshow notes (digital and audio) sent in advance
• Live Audio Description (AD) via a headset so you can follow all the action on stage

AD is available to any patron who’ll benefit -children, parents, grandparents, aunts, uncles, close friends - so everyone can enjoy the performance together.

Limited AD ticket allocation - book via the dedicated link. Link in Bio.

If you have issues booking, call the Sydney Opera House Box Office on 1300 764 849

[Image description: illustration of Nutcracker ballet performer and details of one-off AD performance.]

20/12/2025

This Christmas, give the gift of sight for generations to come.

Through the many stories shared by our supporters, we understand the impact a diagnosis of macular disease can have on people’s independence, emotional wellbeing and quality of life.

By leaving a gift in your Will – or bequest, to Macular Disease Foundation, you can help fund vital research, support services, and education programs, for generations to come.

Fight for the sight of the next generation. Leave a gift in your Will. Learn more at https://www.mdfoundation.com.au/get-involved/leave-gift-in-will-bequests/leave-gift/

19/12/2025

As we come to the end of another remarkable year, we want to thank you for the strength, generosity and commitment you continue to show as part of the macular disease community.

This year has been defined by progress, innovation, and a deepening focus on the needs of Australians living with macular disease. We’re delighted to share our key achievements in our 2025 Impact: Fighting for Sight report -
https://cdn.mdfoundation.com.au/wp-content/uploads/2025/12/10145452/MDFA-Year-in-Review_2025.pdf?_ga=2.33325630.1826047415.1765940221-859161152.1762477975

Thank you for your support.

18/12/2025

A second new treatment for geographic atrophy (dry AMD) – brand name Izervay®, active ingredient avacincaptad pegol – was registered this December by the Therapeutic Goods Administration (TGA) for people with geographic atrophy, whose vision is threatened by the progression of their condition.

The treatment is not currently listed on the Pharmaceutical Benefits Scheme (PBS). However, the Pharmaceutical Benefits Advisory Committee (PBAC), the advisory body that recommends the listing of medicines on the PBS, will consider avacincaptad pegol for PBS-listing at its meeting in March next year.

If you would like to have your say about the PBS listing of avacincaptad pegol, you can participate in the public consultation.

The PBAC welcomes input from patients, carers, health professionals, consumer groups and members of the public on medicines submitted for PBAC consideration. The PBAC includes these public consultation inputs when considering the clinical and economic evidence presented by the manufacturer of the treatment.

The public consultation online survey for avacincaptad pegol can be accessed here: https://ohta-consultations.health.gov.au/ohta/pbac-march-2026/consultation/subpage.2021-08-13.1345934449/

If you would like to send a letter via email, you can download a hard copy of the consultation survey at the weblink above, and email it to: commentsPBAC@health.gov.au

The deadline for all submissions is 21 January 2026.

15/12/2025

Macular Disease Foundation Australia expresses our deepest sympathies to the people and families impacted by yesterday’s devastating events at Bondi Beach. Our thoughts are with everyone affected during this difficult time.

14/12/2025

Macular disease threatens the sight of millions of Australians. It is a future many of us will face.

This Christmas, leave a gift of hope for the 1.9 million Australians living with macular disease.

A gift in Will – or bequest – to Macular Disease Foundation, is a powerful way to leave a lasting and meaningful legacy.

Help us in the fight for sight. Leave a gift in your Will. Learn more at: https://www.mdfoundation.com.au/get-involved/leave-gift-in-will-bequests/leave-gift/

11/12/2025

As a Postdoctoral Fellow at the Centre for Eye Research Australia (CERA), Dr Sushma Anand is working at the cutting edge of vision science to develop new treatments for retinal diseases that currently have no cure – including Macular Telangiectasia Type 2 (MacTel) and Stargardt disease.

For people slowly losing their sight, her research offers hope: the possibility of preserving or even regaining vision.

Dr Anand and her team are exploring how exosomes – tiny, naturally occurring “delivery vehicles” – can transport medicines and genes directly to the cells in the eye that need them most.

Help us support researchers to bring hope for sight: https://www.mdfoundation.com.au/get-involved/donate/donate-to-our-christmas-appeal-2/

Address

Mezzanine, 383 Kent Street
Sydney, NSW
2000

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+611800111709

Website

https://www.mdfoundation.com.au/

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