ME/CFS & FM Association NSW Inc.

19/03/2025

https://collider.com/golden-girls-sick-and-tired-episode/

Based on Susan Harris' personal experience, The Golden Girls episode "Sick and Tired" explores CFS and the issues of dismissive doctors.

15/10/2024

Alberto Macchione was part of the driving force to insist that the Government place Mental Health as a priority along with other physical illnesses in this marquee survey.

World Mental Health Day (Thursday, 10 October)
Enid Lyons Alcove, Parliament House – Speeches from 8.50am

Post Bondi Junction – clear shift in community
attitudes towards severe and complex mental illness

The extent to which Australians believe the Federal Government should increase support for people with severe and complex mental illness to reduce the risk of a repeat of the 13 April attack that killed six people in a Bondi Junction shopping centre will be unveiled on World Mental Health Day.

To be released in Parliament House six months following the tragic event, a YouGov poll of 1,619 Australians will reveal how events of the past year have made many Australians more aware of the impact of illnesses such as schizophrenia, bipolar disorder and major depressive disorder. Poll findings will also highlight agreement that severe mental illness is no less deserving of government funding than other diseases.

Commissioned by Mental Illness Fellowship of Australia, Psychosis Australia and Boehringer Ingelheim, the nationwide poll will reveal strong community support for the major political parties to release plans to address severe mental illness ahead of the next Federal Election.

Tony Stevenson, CEO of Mental Illness Fellowship of Australia said: “As a federal election approaches our goal is to engage with all sides of politics to ensure severe and complex mental health is never again placed in the too hard basket.”

Drop-in Breakfast from 8.00-10.00am
Thursday, 10 October in the Enid Lyons Alcove

Speeches from 8.50am, including:

Hon. Mark Butler MP, Minister for Health and Aged Care
Hon. Emma McBride MP, Assistant Minister for Mental Health and Su***de Prevention, Assistant Minister for Rural and Regional Health
Senator Hollie Hughes, Shadow Assistant Minister for Mental Health and Su***de Prevention
Tony Stevenson, CEO of Mental Illness Fellowship of Australia
Hannah Hyatt, Mental Health Advocate and Lived Experience Worker
Dirk Otto, General Manager of Boehringer Ingelheim Australia and New Zealand

Media Contacts: John Morton, 0416 184 044 or Houry Mayissian, 0415 685 600

28/02/2022

ME/CFS Australia made a submission to the Senate enquiry in relation to the Disability Support Pension.

The post below discusses the successful outcome of their submission.

https://www.facebook.com/1628039257514980/posts/3100638216921736/

The Senate Inquiry into the DSP has released its report, with 30 recommendations.

ME/CFS Australia was privileged to be invited to speak at a Hearing alongside MS Australia and Cystic Fibrosis Community Care, to discuss the challenges faced by people with complex chronic illness and fluctuating conditions.
We thank the Inquiry for listening. The first three recommendations reflect that Hearing.

Recommendation 1

The committee recommends that the Australian Government investigates how the requirement that a condition be ‘fully diagnosed, treated and stabilised’ is preventing people with conditions that are complex, fluctuating, or deteriorate over time, from accessing the Disability Support Pension, and could be modified to ensure people get the support they need.

Recommendation 2

The committee recommends that the Australian Government considers reforming the approach taken to determine whether a claimant has a ‘severe impairment’, so as to allow the accumulation of 20 points across any number of impairment tables to meet the definition of a severe impairment.

Recommendation 3

The committee recommends that the Australian Government undertake an in-depth, clinical review of the impairment tables in totality, that recognises comorbidity and draws on the lived experience of people with disability; with a view to working towards a social model of disability.

https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/DisabilitySupportPensio/Report/section?id=committees%2freportsen%2f024728%2f77015

03/12/2021

ME/CFS Australia is a registered charity with a key goal of influencing national health care decision makers to improve the care & treatment of people with ME/CFS.

THE CHALLENGE IS BACK!!!In 2018 I introduced the inaugural “Chair’s Christmas Challenge” to raise funds for ME/CFS Australia Ltd.Support for ME/CFS Australia ens

14/11/2021

"People with the condition will be recognized as disabled within a few weeks, and will be able to claim up to 40 percent of a full disability allowance," (Israeli Minister)

Patients once sidelined by skeptical doctors now given right to claim state allowance; decision impacts many in south whose illness is thought to be brought on by Hamas rockets

14/11/2021

“ and cannot now be offered as cures. The new guidelines vindicate the longstanding views of many people with , their carers and families.”

Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments

05/07/2021

https://m.facebook.com/1628039257514980/posts/2930494863936073/?refid=12&paipv=1

Each year we give $500,000 in grants based on your votes

05/07/2021

https://www.mycause.com.au/page/229710/troy-the-treasurers-tax-time-donation-drive?fbclid=IwAR0Q0WMTcdhOVE53QxMaENfvOn068YaACd87w5xvfF-oKMhpOEWRlRL9QjI

Hi, I'm Troy Johnson, ME/CFS Australia's Treasurer. I am also a Partner at Hartmann Cox Accountants in Brisban

23/05/2021

"Researchers at the Ohio State University Wexner Medical Center have, for the first time, identified a potential test to diagnose fibromyalgia with just a blood test"

Researchers at the Ohio State University Wexner Medical Center have, for the first time, identified a potential test to diagnose fibromyalgia with just a few drops of blood.

17/05/2021

Tiffiny Hall has bravely opened up about a long-term health battle she has been facing in an emotional post.