29/08/2025
Photos and videos sent to us by this lovely family. And mum wanted me to share to help celebrate this awesome dude's amazing work today.... And share how much harder than expected the journey is sometimes.
"Thank you again Lucy and Rory and Abby as always so kind.
I could cry with relief that you saw us.
Please post the video and photos
Because even as a nurse I was underprepared for this whole 2 year event. I would like to help others."
So what's the story behind this celebration?
A couple years ago, Ellis had a surgery to help improve positioning of his hips and legs, which involved leaving metalwork in there. After that first surgery, it took a while or him to get use to being able to stand and walk again and trusting his legs. This week he had to get the metalwork out, and by all accounts family were told that it's a quick and easy surgery. He'll be up and about quickly and we had planned for a therapy session next week.
This morning I got a call that his pre-discharge "walk" was more a very quick and traumatic standing transfer, and he didn't really take any weight. And he was very distressed about standing and in a lot of pain. Definitely wasn't going to be up to standing without some sort of equipment to help out.
So, I pushed my plans to complete a heap of paperwork this afternoon (sorry to those I promised would get things today!) and squeezed him in.
While initially he was happy to say hi, and was naming our collection of breath regulation cats and dogs, the fear of standing was so immediately evident once we were in the therapy room. He was actually shivering, face scrunching up and grimacing, flinching the I touched his knees (though, to be fair.... My hands do tend to be icey cold ❄️)
So we took it slow.
First half an hour, staying in her mobility chair. Gradually accepting using his lower limbs to move the balance board that controls computer games, but only while sitting. Gradually changing the position so that he had a bit more weight on the board and was more in perch than sitting.
Continued in comments....