Epilepsy Queensland

10/11/2025

Have you heard of the Australian Epilepsy Project - AEP?

If you have been newly diagnosed with epilepsy, have recently experienced your first unprovoked seizure, or have been diagnosed with drug-resistant epilepsy, you may be eligible to join the AEP and gain access to advanced testing including imaging, cognition, and genetics, to improve your treatment pathway.

Check your eligibility and/or register your interest to join at https://www.epilepsyproject.org.au/participant-living-with-seizure

26/10/2025

This incredible campaign wouldn’t be possible without the generous support of our partners:

Nexon Asia Pacific – Our long-standing Major Partner, walking alongside us to create lasting change for the 1 in 25 Australians diagnosed with epilepsy.
UCB – Our valued Supporting Partner, helping power every step, story and conversation.

Your support has amplified our impact, driven awareness, and helped us fund vital services, research, and support for the epilepsy community across Australia.

From all of us at Walk for Epilepsy - thank you for stepping up and standing with us.

It's not too late to donate. Visit bit.ly/EQ_W4E

Learn more about Nexon Asia Pacific at www.nexon.com.au
Learn more about UCB at www.ucbaustralia.com.au

25/10/2025

To every single one of you who walked, ran, rode, talked, donated and cheered — Thankyou! Together, we’ve stepped up, spoken out, and made a real impact for the 1 in 25 Australians diagnosed with epilepsy 🧡💜

But the journey doesn’t end here.

While the walk stops today, fundraising continues until the end of the month - and there's still time to reach your goals, climb the leaderboard, and support life-changing programs and research.

Plus, if you or your team top the national leaderboard by the end of October, you could win an incredible $1,000 shopping voucher (for individual leaderboard) or $1,000 Red Balloon voucher (for teams leaderboard), thanks to our generous sponsor, Shop for Shops!

So let’s finish strong:
👉 Share your page one more time
👉 Celebrate your achievements
👉 Remind your community there’s still time to give

You’ve walked. You’ve talked. And you’ve made a difference 👏

Donate here: bit.ly/EQ_W4E

22/10/2025

Can you believe there are only 3 DAYS TO GO until Walk for Epilepsy 2025 is over!?

It has been so incredible to see our amazing community dig deep for the 1 in 25 Australians who will be diagnosed with epilepsy. We've seen you walking, running, swimming, cycling and spreading the word about epilepsy all throughout October and we couldn't be more grateful for your efforts so far 💜

With only a few days left, now is the time to knuckle down and get those last kilometres and fundraising dollars added to your pages!

We want to give a special mention to those at the top of our fundraising and distance leaderboards who have been absolutely smashing it! At the time of posting we have...
🏆 Top Individual Fundraiser: Amanda Hamilton
🏆 Top Team Fundraiser: Costello Group
🏆 Top Individual Distance: Aline Teixeira
🏆 Top Team Distance: Legging It For Luce

A massive round of applause to all of you! 👏

Whatever your goal, we want you to do your best to reach it over the next 3 days! Let's end with a bang 💥

16/10/2025

🚨 Today only – Friday, 17 October – every dollar you raise will be matched thanks to our amazing sponsors! 🚨

That means your impact is doubled:
$10 = $20
$50 = $100
$500 = $1,000

Whether you're walking, talking, or sharing your fundraising page - today is the day to rally your community and make every donation count twice as much. Every single donation made today, up to the total of $15,592.50, will be matched thanks to our generous sponsors Nexon Asia Pacific and UCB - thank you for making this possible!

Let’s make this our biggest day of giving yet!

Walk. Talk. Donate. Double it!

Double your impact now at bit.ly/EQ_W4E

15/10/2025

When Greg Smith's 25-year-old son, Finley, didn't show up for work one morning, life changed forever.

Finley had his first seizure at 22, had just got his driving licence back after a year seizure-free, but tragically passed away from Sudden Unexpected Death in Epilepsy (SUDEP).

Each year, around 300 Australians lose their lives to SUDEP. Despite this, awareness remains low, and many families only learn of the risk after a tragedy occurs.

In sharing his family’s story, Greg hopes to break the silence so that no other family has to face the same heartbreak.

Today is SUDEP Action Day - a day to remember all those who have lost their lives, and the families who miss them dearly. It's also a day to raise awareness—by talking about SUDEP and the factors that may reduce risk, we can empower families, educators, and health professionals to better support those living with epilepsy.

You can read more about Finley's story on our website.

SUDEP Action: Making every epilepsy death count

Australians urged to talk more openly about the silent and little-known risk of Sudden Unexpected Death in Epilepsy (SUDEP).

14/10/2025

🗓️ Mark your calendars: Friday, 17 October is the day your impact goes twice as far!

Thanks to the incredible generosity of our sponsors, every donation made to Epilepsy Queensland from 5:00am (AEST) on Double Donation Day will be matched dollar-for-dollar to the amount of $15,592.50 - doubling the support for the 1 in 25 Australians diagnosed with epilepsy.

$10 becomes $20, $50 becomes $100 - you get the gist! And every step you take helps even more.

So get ready to walk and talk, share your fundraising page, and rally your supporters for this powerful day of giving.

A huge thank you goes to our amazing sponsors, Nexon Asia Pacific and UCB, for making this possible.

Donate here: https://bit.ly/EQ_W4E

01/10/2025

It's go time - Walk for Epilepsy 2025 starts today 👟🙌 And this year, we're not just moving - we're starting conversations 💬

Here are some things we encourage you to do this month:
💰 Fundraise, fundraise, fundraise - The more funds you raise, the more impact you have on the lives of people living with epilepsy.
🗣️ Talk, learn, and understand - Have conversations about epilepsy with family, friends and colleagues. We challenge everyone to finish the month with more knowledge about epilepsy than when it started.
📖 Share your story - Let the community know your journey, your why.
💪 Share your progress - Post on social media to share your progress proudly and gather support.

Whether you're taking on the 1 in 25 Challenge, walking with a team, or going solo - this month, we walk united, we walk loud, and we shine purple for the 1 in 25 Australians diagnosed with epilepsy 💜

Walk to raise funds 👟 Talk to raise awareness 💬 Let's do this!

It's not too late to get involved. Register at bit.ly/EQ_W4E

30/09/2025

One day to go - Walk for Epilepsy 2025 kicks off tomorrow! 👟🎉

Are you ready to walk, run or ride, raise funds, and spark powerful conversations as we walk and talk for epilepsy?

Whether you're taking on the 1 in 25 Challenge or going at your own pace, travelling solo or rallying a team - this is your chance to make an impact in the lives of the 1 in 25 Australians diagnosed with epilepsy.

Let’s step into October with purpose and purple pride 💜 Together, we’re going the distance! 💪

There's still time to get involved. Visit bit.ly/EQ_W4E to register.

Note: All current website distance tracking will be reset at 11:59pm tonight.

27/09/2025

Seizures can come with many different presentations, often mistaken for tics or other strange behaviours.

Depending on where the electrical activity occurs in your brain, seizures can impact movement, vision, taste, memory and even smell.

Were there any particular behaviours or actions you exhibited that were explained once you received your epilepsy diagnosis?

Feel free to share your experience in the comments below, and spread awareness of what epilepsy can look like!

25/09/2025

AFL legend, Brett Ratten, is joining Walk for Epilepsy this October - not as a footy figure, but as a dad walking for his child with epilepsy.

Who will you walk for?

Join Brett this October and register at bit.ly/EQ_W4E