18/11/2025
Untangling research for you š
I posted this in stories the other day and my DMs blew up with a "Whaaaa...?!?"
And a "How were these results possible?!"
So I'm going to break it down for you.
Because sometimes, reading research, using the very same results I'd arrive at a different conclusion.
A really simple conclusion of the above named study could have been relating to how the visibility of autistic traits fluctuate.
Or for researchers to question the limitations of the ADOS-2 across modules part of the discussion.
Instead? They concluded you could lose a diagnosis.
(A fair aside is unpacking the difference between an Autism diagnosis as per DSM-5 and the Autism neurotype, but I'll go so far as to make a leap and say it's unlikely the researchers here have engaged in that gentle teasing apart).
Inherent in that conclusion is cure narratives as a singular goal. It disregards Autistic advocacy in looking into the benefits of identity and knowing your needs.
What I am longing to see more of in research?
Research that looks as to what the factors are in creating thriving Autistic kids.
(We've got some fantastic ones, but just.... more and louder, because coming from APAC, I didn't hear enough of that)
I'll note that I have no personal relationship to the authors. Just a psychologist, wanting practical research for best outcomes for a marginalised community.
The best way forward from my time in clinic and research?
Identity-driven, strengths-focused, needs-based, person-centred supports.
Hope this helps tease it apart a little.
You can't cure away Autism and history says we've tried (!!) but you can lean into it and make a better life with Autistic-informed care.