IFCCA – International Federation of Crohn’s and Ulcerative Colitis Associations

07/12/2025

Research suggests mitochondrial defects disrupt gut microbiome to fuel 's disease.

A new study explores the role of dysfunctioning mitochondria and a disrupted gut microbiome as a possible trigger of Crohn's disease.

06/12/2025

Pure inspiration: Pro athletes proving doesn't stop greatness

Worried your UC or Crohn’s will hold you back from exercise? Take a page from the playbooks of these sports stars.

05/12/2025

✨ 𝗡𝗲𝘄 𝗜𝗙𝗖𝗖𝗔 𝗣𝗿𝗼𝗷𝗲𝗰𝘁𝘀 𝗗𝗶𝗴𝗲𝘀𝘁 – 𝗜𝘀𝘀𝘂𝗲 #𝟴 ✨

Discover the latest updates from IFCCA’s 𝗘𝗨-𝗳𝘂𝗻𝗱𝗲𝗱 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗽𝗿𝗼𝗷𝗲𝗰𝘁𝘀, featuring patient-centred initiatives, scientific milestones, member contributions, interviews, events, and new resources co-created with the IBD community.

Stay informed and see how our ongoing work is shaping the future of IBD research and care.

👉 Read the full issue here: https://buff.ly/jSY0HRG

05/12/2025

During the 𝟮𝗻𝗱 𝗔𝗻𝗻𝘂𝗮𝗹 𝗢𝗻𝗹𝗶𝗻𝗲 𝗦𝘁𝗮𝗸𝗲𝗵𝗼𝗹𝗱𝗲𝗿 𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽, Roberto Saldaña (IFCCA) will present real patient insights on:

✨ 𝗕𝗲𝗻𝗲𝗳𝗶𝘁𝘀 people expect from personalised IBD care
⚠️ 𝗖𝗼𝗻𝗰𝗲𝗿𝗻𝘀 𝗮𝗻𝗱 𝗳𝗲𝗮𝗿𝘀, from unequal access to unclear decision-making
🗣️ 𝗘𝘅𝗽𝗲𝗰𝘁𝗮𝘁𝗶𝗼𝗻𝘀 𝗼𝗻 𝗶𝗺𝗽𝗿𝗼𝘃𝗲𝗱 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗶𝘀, treatment choices and quality of life
💬 𝗟𝗶𝘃𝗲𝗱 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲𝘀 𝗮𝗻𝗮𝗹𝘆𝘀𝗲𝗱 𝘁𝗵𝗿𝗼𝘂𝗴𝗵 𝗜𝗙𝗖𝗖𝗔’𝘀 𝗗𝗜𝗩𝗔 𝗺𝗲𝘁𝗵𝗼𝗱𝗼𝗹𝗼𝗴𝘆, capturing what matters most to patients

Because understanding the 𝗵𝘂𝗺𝗮𝗻 𝘀𝗶𝗱𝗲 of precision medicine is as important as understanding the science.

📌 Workshop: “𝗪𝗵𝗮𝘁’𝘀 𝗥𝗶𝗴𝗵𝘁 𝗳𝗼𝗿 𝗠𝗲? 𝗣𝗿𝗲𝗰𝗶𝘀𝗶𝗼𝗻 𝗠𝗲𝗱𝗶𝗰𝗶𝗻𝗲 𝗶𝗻 𝗜𝗕𝗗”
📅 𝟭𝟬 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟱
🕔 𝟭𝟳:𝟬𝟬–𝟭𝟴:𝟯𝟬 𝗖𝗘𝗧
📍 𝗢𝗻𝗹𝗶𝗻𝗲
👥 𝗢𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗯𝘆 𝗜𝗙𝗖𝗖𝗔 + 𝗠𝗘𝗧𝗛𝗬𝗟𝗢𝗠𝗜𝗖
📝 𝗥𝗲𝗴𝗶𝘀𝘁𝗿𝗮𝘁𝗶𝗼𝗻 𝗼𝗽𝗲𝗻 𝘂𝗻𝘁𝗶𝗹 𝟴 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿: https://buff.ly/s0I1jBo

👉 For more information visit our web page: https://buff.ly/HJim3iK

04/12/2025

🎤 𝗜𝗙𝗖𝗖𝗔 𝗮𝘁 𝘁𝗵𝗲 𝗜𝗕𝗗 𝗧𝗼𝗱𝗮𝘆 & 𝗧𝗼𝗺𝗼𝗿𝗿𝗼𝘄 𝟮𝟬𝟮𝟱 𝗖𝗼𝗻𝗴𝗿𝗲𝘀𝘀 𝗶𝗻 𝗔𝗺𝘀𝘁𝗲𝗿𝗱𝗮𝗺

We are proud to announce that our Chairperson, Salvo Leone, will represent IFCCA at the upcoming 𝗜𝗕𝗗 𝗧𝗼𝗱𝗮𝘆 & 𝗧𝗼𝗺𝗼𝗿𝗿𝗼𝘄 𝟮𝟬𝟮𝟱 𝗰𝗼𝗻𝗴𝗿𝗲𝘀𝘀, organised by the IBD team at 𝗔𝗺𝘀𝘁𝗲𝗿𝗱𝗮𝗺 𝗨𝗻𝗶𝘃𝗲𝗿𝘀𝗶𝘁𝘆 𝗠𝗲𝗱𝗶𝗰𝗮𝗹 𝗖𝗲𝗻𝘁𝗲𝗿𝘀 (Amsterdam UMC) under the leadership of Professor Geert D’Haens.

Taking place in Amsterdam on 𝟭𝟬–𝟭𝟭 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟱, the congress will gather leading experts from around the world to discuss the latest advances in understanding and managing Inflammatory Bowel Disease.

Salvo will contribute by sharing the 𝗽𝗮𝘁𝗶𝗲𝗻𝘁’𝘀 𝘃𝗶𝗲𝘄 𝗼𝗻 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗼𝗳 𝗖𝗿𝗼𝗵𝗻’𝘀 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 and discussing 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀’ 𝗽𝗲𝗿𝗰𝗲𝗽𝘁𝗶𝗼𝗻𝘀 𝗼𝗳 𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝗳𝗼𝗿 𝗜𝗻𝗳𝗹𝗮𝗺𝗺𝗮𝘁𝗼𝗿𝘆 𝗕𝗼𝘄𝗲𝗹 𝗗𝗶𝘀𝗲𝗮𝘀𝗲. His participation brings the patient perspective to the centre of these discussions, reinforcing IFCCA’s mission to ensure that people living with IBD are active partners in research and care.

👉 For more information visit: https://buff.ly/cCjVk1k

03/12/2025

✨ 𝗡𝗲𝘄 𝗥𝗲𝘀𝗼𝘂𝗿𝗰𝗲 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗜𝗕𝗗 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆! ✨

We are excited to announce the 𝗘𝗡𝗚𝗔𝗚𝗘-𝗜𝗕𝗗 𝗣𝗲𝗿𝘀𝗼𝗻𝗮𝗹𝗶𝘀𝗲𝗱 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗚𝘂𝗶𝗱𝗲, developed within the 𝗘𝗨-𝗳𝘂𝗻𝗱𝗲𝗱 𝗺𝗶𝗚𝘂𝘁-𝗛𝗲𝗮𝗹𝘁𝗵 𝗽𝗿𝗼𝗷𝗲𝗰𝘁 and co-created with Università Cattolica del Sacro Cuore (UNICATT) and EngageMinds HUB, in close collaboration with patients, clinicians, and engagement experts.

The guide provides practical, patient-centred tools to:
✅ Understand Crohn’s disease and Ulcerative Colitis
✅ Track symptoms and disease patterns
✅ Navigate healthcare systems
✅ Support emotional well-being and daily disease management

Grounded in real experiences, this guide empowers people living with IBD to take an active role in their health.

📥 Visit our website and download the full guide: https://buff.ly/WsLqBCv

02/12/2025

🌟 𝗟𝗶𝘃𝗲 𝗳𝗿𝗼𝗺 𝗕𝗲𝗿𝗹𝗶𝗻 — 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗢𝗽𝗲𝗻 𝗟𝗮𝗯!

The first 𝗜𝗙𝗖𝗖𝗔 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗢𝗽𝗲𝗻 𝗟𝗮𝗯 is happening right now as part of 𝘁𝗵𝗲 𝗦𝘁𝗮𝘆 𝗛𝗲𝗮𝗹𝘁𝗵𝘆 𝗖𝗹𝘂𝘀𝘁𝗲𝗿 𝗦𝘆𝗺𝗽𝗼𝘀𝗶𝘂𝗺 in Berlin!

Featuring inspiring speakers: Prof. Guendalina Graffigna & Dilara Usta (Università Cattolica del Sacro Cuore & EngageMinds HUB), Prof. Konstantinos Gerasimidis (University of Glasgow), and Salvo Leone (IFCCA Chairperson).

Patients, families, and experts are coming together to:
💡 Explore living well with Crohn’s disease and Ulcerative Colitis
🛠️ Share experiences and co-create practical solutions
🍏 Discuss diet, stress, lifestyle, and insights from the miGut-Health EU Project
🔧 Learn about the 𝗘𝗡𝗚𝗔𝗚𝗘-𝗜𝗕𝗗 𝗣𝗲𝗿𝘀𝗼𝗻𝗮𝗹𝗶𝘀𝗲𝗱 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗧𝗼𝗼𝗹, co-created with Università Cattolica del Sacro Cuore (UNICATT) and EngageMinds HUB.

Exciting discussions, interactive workshops, and inspiring patient voices — stay tuned for highlights!

01/12/2025

⏰ 𝗩𝗲𝗿𝘆 𝗟𝗮𝘀𝘁 𝗖𝗮𝗹𝗹 — 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗡𝗼𝘄!

The 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗢𝗽𝗲𝗻 𝗟𝗮𝗯 is taking place tomorrow, 2 December 2025 in Berlin, but you can join 𝗼𝗻𝗹𝗶𝗻𝗲 from anywhere!

Don’t miss your chance to:
• Share your experiences living with IBD
• Participate in interactive workshops
• Connect with experts and fellow patients

📅 𝗧𝗼𝗺𝗼𝗿𝗿𝗼𝘄, 𝟮 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟱 | 𝟭𝟯:𝟬𝟬–𝟭𝟱:𝟬𝟬 𝗖𝗘𝗧
💻 𝗝𝗼𝗶𝗻 𝗼𝗻𝗹𝗶𝗻𝗲
👥 Open to patients and families
📩 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗻𝗼𝘄: https://buff.ly/DV8kVuP

This is your very last chance — don’t miss out!

01/12/2025

🧬 𝗪𝗵𝗲𝗿𝗲 𝘁𝗼 𝗙𝗶𝗻𝗱 𝗕𝗶𝗼𝗺𝗮𝗿𝗸𝗲𝗿𝘀 𝗳𝗼𝗿 𝗣𝗿𝗲𝗰𝗶𝘀𝗶𝗼𝗻 𝗠𝗲𝗱𝗶𝗰𝗶𝗻𝗲

Dr. Andrew Li Yim (𝗔𝗺𝘀𝘁𝗲𝗿𝗱𝗮𝗺 𝗨𝗠𝗖) will explore the latest developments, myths, and realities in biomarker identification that can guide precision medicine in IBD.

From “promising” signals to real clinical relevance, this session will clarify what’s progress… and what’s just hype.

📌 Workshop: “𝗪𝗵𝗮𝘁’𝘀 𝗥𝗶𝗴𝗵𝘁 𝗳𝗼𝗿 𝗠𝗲? 𝗣𝗿𝗲𝗰𝗶𝘀𝗶𝗼𝗻 𝗠𝗲𝗱𝗶𝗰𝗶𝗻𝗲 𝗶𝗻 𝗜𝗕𝗗”
📅 𝟭𝟬 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟬𝟮𝟱
🕔 𝟭𝟳:𝟬𝟬–𝟭𝟴:𝟯𝟬 𝗖𝗘𝗧
📍 𝗢𝗻𝗹𝗶𝗻𝗲
👥 𝗢𝗿𝗴𝗮𝗻𝗶𝘀𝗲𝗱 𝗯𝘆 𝗜𝗙𝗖𝗖𝗔 + 𝗠𝗘𝗧𝗛𝗬𝗟𝗢𝗠𝗜𝗖
📝 𝗥𝗲𝗴𝗶𝘀𝘁𝗿𝗮𝘁𝗶𝗼𝗻 𝗼𝗽𝗲𝗻 𝘂𝗻𝘁𝗶𝗹 𝟴 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿: https://buff.ly/s0I1jBo

👉 For more information visit our web page: https://buff.ly/HJim3iK

30/11/2025

The paradox: discovering why smoking paradoxically offers a 'protective' effect.

New research has uncovered specific changes ci******es make to the microbiome, paving the way for designer probiotics for ulcerative colitis.

29/11/2025

One drug, double impact: treatment shows promise for 's patients.

Mirikizumab, a drug currently approved by the Food and Drug Administration (FDA) for the treatment of ulcerative colitis, also sends Crohn's disease into clinical remission, new findings suggest.

28/11/2025

The Oral Warning: What your mouth ulcers are telling you about your 's disease.

Mouth ulcers — also known as canker sores, mouth sores, and aphthous ulcers — occur in 8 percent to 10 percent of people diagnosed with inflammatory bowel