Myeloma Patients Europe

Myeloma Patients Europe Myeloma Patients Europe is an umbrella organisation of myeloma and AL amyloidosis patient groups

Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma patient groups and associations from across Europe. MPE was formed following the merger in 2011 of the European Myeloma Platform and Myeloma Euronet. MPE is registered as a non-profit organisation (AISBL) under Belgian law and its headquarter is located in Brussels. MPE has a number of broad aims including:
• Collaborating on projects to the benefit of the myeloma community
• Exchanging information and best practice
• Developing existing patient groups and encouraging and facilitating the setting up of new groups
• Helping to shape appropriate health- related policies and initiatives on a European and national level
• Ensuring patients across Europe receive timely access to new treatment
• Stimulating and promoting patient- centred research and clinical trials
• Developing a strong evidence base for the needs and wants of patients and their role in research
• Providing information, educational and outreach programmes to member groups

To meet its aims and in addition to its membership, MPE works directly with healthcare professionals, reimbursement authorities, regulators, politicians, pharmaceutical companies, the media and anyone involved in the ‘myeloma community’.

  and here's a reminder that we're hosting a webinar on generic medicines in Europe - this evening! 🕔 17:00 CETGenerics ...
30/03/2026

and here's a reminder that we're hosting a webinar on generic medicines in Europe - this evening! 🕔 17:00 CET

Generics can open the door to wider access to treatments, but the market is complex — supply pressures, pricing competitio,n, local health systems and policy challenges all affect what patients can actually access.

Tonight's webinar looks at how the generics market works across Europe and what that means in practice for cancer patients, with real examples from Central and Eastern Europe.

Join us this evening — all are welcome

🔗 Register here for the meeting link https://www.mpeurope.org/join-our-webinar-the-generics-market-in-europe-and-implications-for-cancer-treatment-and-care/

In case you missed our European Young Myeloma Patients Group (EYMPG) webinar on mental health and emotional well-being, ...
27/03/2026

In case you missed our European Young Myeloma Patients Group (EYMPG) webinar on mental health and emotional well-being, you can catch the recording now.

In case you missed our European Young Myeloma Patients Group (EYMPG) webinar on mental health and emotional well-being, you can catch the recording now.

The European Young Myeloma Patients Group (EYMPG) on behalf of Myeloma Patients Europe hosted a webinar on mental health and emotional wellbeing. This lectur...

27/03/2026

Kayleigh, from the UK shares her experience of the sudden reality of caring for her husband as he was diagnosed with myeloma.

"If I'm not in a good place, I'm no good to Mart. You have to take time out for yourself."Kayleigh, Myeloma patient care...
27/03/2026

"If I'm not in a good place, I'm no good to Mart. You have to take time out for yourself."

Kayleigh, Myeloma patient carer, UK

Hear more from Kayleigh as part of our campaign. Kayleigh shares stories and insights as a carer of someone who is living well with myeloma.
https://f.mtr.cool/teucsszahj

A reminder that this meeting takes place tonight and we would love to see you there.
26/03/2026

A reminder that this meeting takes place tonight and we would love to see you there.

Join us for the first European Young Myeloma Patients' Group meeting of 2026! 💙
On 26 March at 19:00 CET, we're hosting an interactive session on mental health and emotional well-being — a topic we know matters deeply to so many in our community.

The session will feature a 30-minute presentation from expert psychologist Mitch Golant, Ph.D., followed by a live Q&A. Mitch is a Senior Consultant at the Cancer Support Community and a pioneer in psychosocial support for people living with cancer, with over 100 published research studies to his name.

This session is open to all myeloma patients but is aimed at those aged under 65, and those who support or care for someone with myeloma under 65.

Join us one week today using the link below 👇

https://mpeurope-org.zoom.us/j/81765036787?pwd=bij4Dwi6j0vbB5K7BqPbtfrkjxgJ6k.1&from=addon

25/03/2026

Keeping connected can be important for emotional wellbeing and this is just as important as your physical health. Try to stay connected with family, friends and support groups even if it feels hard.

What wellness practices help you? Share your tips in the comments.

 Treatment for elderly patients: The IFM2021-01 trial demonstrates that an ""all-antibody-based"" doublet regimen of tec...
24/03/2026



Treatment for elderly patients: The IFM2021-01 trial demonstrates that an ""all-antibody-based"" doublet regimen of teclistamab and daratumumab is highly effective and well-tolerated in elderly newly diagnosed myeloma patients.

Dr. Salomon Manier explains this treatment option for older patients. Watch now

Dr.Salomon Manier, University of Lille, France, talks through this teclestameb trial. This study shows that an “all-antibody–based” doublet regimen of teclis...

Every approved myeloma treatment started as a clinical trial.From new drug combinations to innovative therapies, clinica...
23/03/2026

Every approved myeloma treatment started as a clinical trial.

From new drug combinations to innovative therapies, clinical trials are essential for advancing care and improving outcomes for patients.

By participating in clinical trials, patients gain access to potentially promising new treatments, receive close monitoring from specialist teams and contribute to research that may help future patients.

Clinical trials need diverse participants from across Europe to ensure treatments work for everyone. You can find information about the clinical trials taking place all over Europe via our dedicated website.

Discover our clinical trial navigator https://f.mtr.cool/emiikfogvw

"I wish I’d known about the incredible myeloma community sooner. I discovered this warm, loving community of patients wh...
20/03/2026

"I wish I’d known about the incredible myeloma community sooner.
I discovered this warm, loving community of patients who have become true partners in this journey."

Hear more from Zvika as part of our campaign, which shares stories and insights from myeloma patients across Europe who are living well with myeloma.

https://f.mtr.cool/iapbqvmuvs

Join us for the first European Young Myeloma Patients' Group meeting of 2026! 💙On 26 March at 19:00 CET, we're hosting a...
19/03/2026

Join us for the first European Young Myeloma Patients' Group meeting of 2026! 💙
On 26 March at 19:00 CET, we're hosting an interactive session on mental health and emotional well-being — a topic we know matters deeply to so many in our community.

The session will feature a 30-minute presentation from expert psychologist Mitch Golant, Ph.D., followed by a live Q&A. Mitch is a Senior Consultant at the Cancer Support Community and a pioneer in psychosocial support for people living with cancer, with over 100 published research studies to his name.

This session is open to all myeloma patients but is aimed at those aged under 65, and those who support or care for someone with myeloma under 65.

Join us one week today using the link below 👇

https://mpeurope-org.zoom.us/j/81765036787?pwd=bij4Dwi6j0vbB5K7BqPbtfrkjxgJ6k.1&from=addon

 You don't have to face myeloma or AL amyloidosis alone. Myeloma Patients Europe (MPE) works with 52 member organisation...
18/03/2026



You don't have to face myeloma or AL amyloidosis alone. Myeloma Patients Europe (MPE) works with 52 member organisations across 33 countries to ensure patients and carers have access to support, information and a community.

Whether you need information about myeloma, emotional support from others who understand your experience, or help navigating your healthcare system, our member organisations are here for you.

Connect with support in your country and find the resources you need. Our member organisations offer local expertise, language-specific information, and peer support networks, all while advocating for better care.

Find your local organisation https://f.mtr.cool/gufsevkhkb

Adres

Avenue Louise 143/4
Brussels
1050

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Wees de eerste die het weet en laat ons u een e-mail sturen wanneer Myeloma Patients Europe nieuws en promoties plaatst. Uw e-mailadres wordt niet voor andere doeleinden gebruikt en u kunt zich op elk gewenst moment afmelden.

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