Neurfibromotosis

Neurfibromotosis everyone is welcomed The disorder affects all neural crest cells (Schwann cells, melanocytes and endoneurial fibroblasts).

Neurofibromatosis (commonly abbreviated NF; neurofibromatosis type 1 is also known as von Recklinghausen disease) is a genetically-inherited disorder in which the nerve tissue grows tumors (neurofibromas) that may be benign or may cause serious damage by compressing nerves and other tissues. Cellular elements from these cell types proliferate excessively throughout the body, forming tumors; melanocytes also function abnormally in this disease, resulting in disordered skin pigmentation and café au lait spots. The tumors may cause bumps under the skin, colored spots, skeletal problems, pressure on spinal nerve roots, and other neurological problems

08/25/2025

ill be more active on here soon ! 🙂

06/10/2023
so I got this lump removed in the beginning of June and it came back not as big but still came back I go to my doctors o...
11/06/2017

so I got this lump removed in the beginning of June and it came back not as big but still came back I go to my doctors on Wednesday so I am gonna ask my doctor about maybe getting it removed again because when I got the lump removed off my back of my leg the second time it was gone I am gonna keep you all updated I have these lumps everywhere and surgery is not always the best bet because they 90% grow back some days I am in pain and some days I am not

Haven't done a update for a while I had the Surgery June 2nd and it's September 1st I don't think he took the whole lump...
09/01/2017

Haven't done a update for a while I had the Surgery June 2nd and it's September 1st I don't think he took the whole lump out and I can't seem to stretch my hand much or I am in pain 😞

07/26/2017

Haven't updated much my hand is still slowly healing but my other one on my left breast has been healed for a couple weeks

Hand is feeeling a lot better
06/15/2017

Hand is feeeling a lot better

Update : need to have this bandage on til tomorrow then I can take it off and put a normal bandage on still need to stay...
06/05/2017

Update : need to have this bandage on til tomorrow then I can take it off and put a normal bandage on still need to stay off my hand for the next few days been resting most of the time but used my hands a few times finally was able to wash my hair my sister helped me with that , jake has been a wonderful help making me dinner and making sure I am okay and bringing me off dinner from work ♥️ updates in a few days !

The after math ! Update everyone later this week
06/02/2017

The after math ! Update everyone later this week

Hospital pictures
06/02/2017

Hospital pictures

Surgery is tomrrow on my hand and my left breast I am exited but nervous at the same time I know I can do this because I...
06/01/2017

Surgery is tomrrow on my hand and my left breast I am exited but nervous at the same time I know I can do this because I've done it tons of times before recovery is pretty short so I'll be good as normal in a couple days I'll be updating everyone how I am feeling since I am off this weekend free feel to msg me so we can chat , but I'll be binge watching friends all weekend whoa!

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98 Condrington
Barrie, ON

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