Canadian NeuroEndocrine Tumour Society

12/17/2025

Calling the PPGL Community in Canada 🇨🇦

CNETS is inviting Canadians living with pheochromocytoma or paraganglioma (PPGL)—and caregivers—to share their real-world experiences through a confidential, voluntary survey.

🕒 Takes ~15 minutes
📝 Up to 32 questions
🌐 Available in English & French
🔒 Anonymous & confidential

Your voice can help shape future treatment reviews, advocacy efforts, research, and support resources for the PPGL community across Canada.

👉 Whether you’re a patient or a caregiver, your experience matters.

Together, we can strengthen PPGL care in Canada. 💙

Email from CNETS CNETS CANADA WIDE PPGL PATIENT EXPERIENCE SURVEY     Good day, we hope you are well! You are receiving this voluntary survey because you are registered with the Canadian Neuroendocri

12/03/2025

Webinaire sur les tumeurs neuroendocriniennes (TNE)
📅 11 décembre 2025 | ⏰ 12 h à 13 h 20 | 💻 En ligne via une plateforme de visioconférence

Les tumeurs neuroendocrines (TNE) sont des cancers rares et complexes, encore peu connus, ce qui entraîne souvent des retards de diagnostic et de prise en charge. Dans le cadre d’un projet financé par le Marathon de l’espoir, une équipe du CHUM et ses partenaires développent un Parcours d’Apprentissage Patient Personnalisé (PAPP-TNE) pour aider les patients à mieux comprendre leur maladie et naviguer dans le système de santé.

👉 Au programme : témoignages de patients et médecins, présentation du parcours d’apprentissage, démonstration de la plateforme numérique, et période de questions.
📌 Le webinaire aura lieu en ligne avec traduction simultanée en anglais.

Neuroendocrine tumours (NETs) are rare, complex cancers that remain poorly understood, often leading to delayed diagnosis and referral to specialized centres. As part of a research project funded by the Marathon of Hope, a team at CHUM and partners are developing a Personalized Patient Learning Pathway (PAPP-NET) to help patients better understand their condition and navigate the healthcare system.

👉 The event will include patient–physician testimonials, an overview of the learning pathway, a live demo of the digital platform, and a Q&A session.
📌 The webinar will be held online with simultaneous English translation.

Inscrivez-vous maintenant au lien ci-dessus
Click the link below to register.





évaluation



de l’espoir
Petitclerc David Balounaik-Arrowas -
DanielleGrenier

https://conta.cc/3Yb1A5v

Email from CNETS JEUDI, 11 DECEMBRE 2025, de 12 h à 13 h 20 (EST) - THURSDAY, DECEMBER 11, 2025 @ NOON-1:20 pm EST WEBINAR VIRTUELLE SUR LES TUMEURS NEUROENDOCRINIENNES (TNE) VIRTUAL NET WEBINAR Webi

11/18/2025

💻✨ Join us for our next CNETS Virtual Education Webinar!
On Wednesday, November 19, 2025 (6–7 pm EST), NET patient, advocate and support group leader Angela Griffin will share her journey and insights on living with Lung NETs.
This free session is open to NET patients, families, and caregivers. Don’t miss the chance to learn and take part in an interactive Q&A.
👉 Register now at https://register.gotowebinar.com/regi.../5762334183243789658


https://conta.cc/4pj5vsO

Email from CNETS WEDNESDAY, NOVEMBER 19, 2025 @ 6:00 pm EST NET EDUCATION WEBINAR CNETS Virtual NET Education Webinar Wednesday, November 19, 2025 6:00 pm - 7:00 pm EST BREATHING THROUGH IT MY JOURN

11/10/2025

🩵 NET Cancer Day Spotlight: Pheo/Para Tumours 🩵

Pheochromocytomas and Paragangliomas (Pheo/Para) are rare neuroendocrine tumours that can release high levels of stress hormones like adrenaline—causing symptoms such as headaches, racing heartbeat, and sweating.

Often called “the great masqueraders,” these tumours are frequently misdiagnosed because their symptoms mimic other conditions.
👉 Average time to diagnosis: about 3 years
👉 Up to 40% of cases are linked to inherited genetic mutations

Early detection can save lives.
Learn more about Pheo/Para tumours, how they’re diagnosed, and why awareness matters this NET Cancer Day.

11/10/2025

HOOFING IT 2025 RAISES $40,662 FOR NET CANCER RESEARCH
Between June 1 and October 31, 2025, we asked the Canadian NET cancer community to come together and join or donate to CNETS' summer-long virtual fundraising campaign, HOOFING IT 2025, for Neuroendocrine Cancer Research.

The continued engagement, commitment and dedication of the NET cancer community from coast to coast was outstanding. With 11 teams, 23 registered participants (plus their extended family, friends, and supporters), and over 150 donors, HOOFING IT raised $40,662 for Neuroendocrine Cancer Research in Canada.

Huge thanks to our participants/fundraisers and teams and everyone who participated, supported, and donated to HOOFING IT 2025! We couldn't have done it without you!
Check out all our awesome participants: https://www.canadahelps.org/en/charities/cnets-canada/p2p/HOOFINGIT2025/ #

11/10/2025

CANADA LIGHTS UP BLACK & WHITE (ZEBRA STRIPES) ON NET CANCER

Get ready to stripe up the night on November 10th because, for the fifth year running, Canada is turning its iconic landmarks into a dazzling display of black and white zebra stripes!

This unique initiative not only lights up the skyline but also shines a spotlight on raising awareness of NET Cancer Day. By participating in this visual display, we collectively affirm our commitment to supporting research, education, improved diagnostics and treatments and advocacy efforts aimed at making a positive impact on the lives of individuals diagnosed with NET cancer.

HUGE THANKS TO THE 2025 PARTICIPATING LANDMARKS

For the list of participating landmarks: https://cnets.ca/.../landmarks-across-canada-light-up.../

11/10/2025

CNETS 2025 NET RESEARCH GRANT COMPETITION

CNETS is committed to improving the quality of life and survival of NET patients across Canada. We have supported NET cancer research since 2011, with independent competition management commencing in 2016.

2025 marks CNETS' tenth (10) year of significantly contributing to NET cancer research, awarding over thirty (30) NET Cancer Research Grants, through our national grant program.
The NET patient community has continuously demonstrated a solid commitment to supporting CNETS fundraising efforts for NET cancer research.

A huge thanks to our Canadian donors, fundraisers, and named funders who make it possible!

CNETS is pleased to announce the 2025 NET Research Grant Competition, which will provide grants for NET cancer research projects up to a maximum of $40,000 per project.

IMPORTANT DATES
Call for Applications: October 22, 2025
Application Submission Deadline: December 15, 2025
Anticipated Notification of Decisions: January 15, 2026
Funding Availability / Start Date: 2 years starting March 1, 2026
For more information and the 2025 NET Research Grant Application: https://cnets.ca/.../cnets-canada-2020-net-research.../

11/10/2025

2025 INCA- NET CANCER DAY

November 10, 2025 -The incidence of neuroendocrine tumours (NETs) is rising, and symptom awareness is key to earlier diagnosis and, ultimately, better outcomes.

FACTSHEETS - 26 NETInfo factsheets on various types of NETs and related syndromes in 12 languages: English, Arabic, Chinese, French, German, Greek, Hindi, Italian, Japanese, Portuguese, Russian and Spanish; – these factsheets share comprehensive information on NETs in lay language and were developed in collaboration with expert patients and physicians in 2020-2025.

They are aimed at patients, health professionals and anyone wanting to get a better understanding of NETs.

Download and share: https://incalliance.org/net-info-packs/

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11/10/2025

CANADIAN NET PATIENT STORIES

Inspirational Canadian patients share details of their long journey with Neuroendocrine cancer. From initial symptoms to the time it took to receive a proper NET cancer diagnosis, and the different treatment options to improve their quality of life.

They share their stories in hopes of raising AWARENESS of the signs and symptoms to push for earlier diagnosis. Early detection is key!

NETs are easily missed. Take a closer look at Neuroendocrine cancer.

https://cnets.ca/support/net-patient-stories/

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11/10/2025