Virtual Heart Connection

Virtual Heart Connection The purpose of this physician-led group is to connect children and their familes with CHD via virtual & inperson events

- This group is organized by the Pediatric Cardiology Department at the Stollery Children's Hospital in association with the WCCHN to connect children with a Fontan circulation, and sponsored by the Stollery Children's Hospital Foundation
- With the cancellation of organized heart camps due to the pandemic, we have held successful annual virtual Fontan day camps which occur in November
- We hold annual CHD family picnics in Edmonton during the Summer
- Our first Fontan Family camp occurred in August 2023 sponsored by the WCCHN BoostUp competition and will become an annual event, stay tuned for more details
- Our first online choir celebrated the CCHA 20th anniversary and can be viewed here: https://youtu.be/puxx8ZPA7VI?si=QeGUzMh3OVp9s0pU
- Out 2nd online choir music video can be viewed here:
https://youtu.be/y9TFrJUWZk4?si=O5UUDrcQnot88Xlf

- We are a registered charity as "Virtual Heart Connection Educational Society" #774571020 RR 0001
- Donations can be made via paypal: https://www.paypal.com/donate?hosted_button_id=QVUL4XV3XVT8N
- Tax receipts will be issued for amounts >$100

04/07/2026

Last call CHD parents. πŸ’™

This Saturday is our first CCHA Connect Session, and we really don't want you to miss this.

Here's what makes it different:

πŸŽ“ Education: A focused, practical topic to help you navigate your child's CHD journey.

πŸ’¬ Connection: You'll get to connect with other parents navigating CHD and we will have adults with CHD as special guests to share their wisdom of what it's like navigating life with CHD.

This isn't just a support group. It's a learning space + a community + a rare chance to ask adults who've walked the walk.

πŸ“… Saturday April 11th, 2026
⏰ 11:30AM EST, 8:30AM PT, 9:30 GMT, 12:30 AST
πŸ’» Virtual – join from your couch

Register here: https://cchaforlife.org/news/ccha-connect/

Tag a CHD parent who needs to hear from an adult survivor this week. πŸ’™

Happy Easter! May Spring come soon and you have a tune in your heart.  Our choir is wrapping up so watch out for the vid...
04/05/2026

Happy Easter! May Spring come soon and you have a tune in your heart. Our choir is wrapping up so watch out for the video. Fontan camp is coming up and a Family picnic is in the works. Watch this site for event dates , .

03/24/2026
03/24/2026

We’re so excited to officially introduce CCHA Connect πŸ’›

A virtual space for parents of children with congenital heart disease to come together through open conversations, shared stories, and educational discussions.

πŸ—“ April 11
⏰ 11:30 AM EST
πŸ’» Online / Virtual

Together, we’ll explore:
β€’ Supporting teens as they transition to adulthood
β€’ Strategies for managing caregiver burnout
β€’ Open conversations with adults with lived CHD experience
β€’ Connecting with parents in similar situations

This is a space to feel supported, heard, and understood β€” because no one should navigate this journey alone.

Join on April 11. 2026 at 11:30 EST for a Parent Chat about Mental health for Careaivers and children with CHD organized...
03/23/2026

Join on April 11. 2026 at 11:30 EST for a Parent Chat about Mental health for Careaivers and children with CHD organized by the Canadian Congenital Heart Alliance. We aim to connect parents across the country who have children living with CHD.

Registration will be limited to 30 people so register early. The deadline to register is April 8, 2026.
https://forms.gle/uPC3erspYaoZDxUd8

03/20/2026
Thank you to our generous donors and volunteers for contributing to a successful fundraiser last night.
03/08/2026

Thank you to our generous donors and volunteers for contributing to a successful fundraiser last night.

Registration is open for our Fontan Family camp, May 29-31 at Gull Lake. All children with a Fontan operation and their ...
02/13/2026

Registration is open for our Fontan Family camp, May 29-31 at Gull Lake. All children with a Fontan operation and their family members are invited to attend a weekend of activities, education and connecting with others. Registration closes on May 15th. See link for further details. https://forms.gle/EFpEXSGJ3ncSL3y16.

Canda lit red for CHD awareness week - check out the High Level Bridge which will be lit red tonight
02/08/2026

Canda lit red for CHD awareness week - check out the High Level Bridge which will be lit red tonight

Tonight the Calgary tower will be lit red for the start of Congenital Heart Awareness week.
02/07/2026

Tonight the Calgary tower will be lit red for the start of Congenital Heart Awareness week.

Tomorrow kicks off the beginning of Congenital Heart Disease (CHD) awareness week. The Virtual Heart Connection Educatio...
02/07/2026

Tomorrow kicks off the beginning of Congenital Heart Disease (CHD) awareness week. The Virtual Heart Connection Educational Society plays an important role in raising the awareness of as declared by our mayor.

Address

Stollery Children's Hospital, 8440 112th Street
Edmonton, AB
T6G2B7

Website

https://square.link/u/NE84IuWN

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