Karters Cancer Crusade

Karters Cancer Crusade it is important to me that the battles fought by brave kids fighting DIPG/Childhood are acknowledged Welcome to Karter's Cancer Crusade. He is our hero! Why not?

We would like to introduce the world to our kind, loving, happy, sassy 5 year old only child, Karter. He is braver and stronger than most adults. Unfortunately he is also fighting for his life. On July 26/22 he was diagnosed with a terminal DIPG tumor. This is the day that our world was turned upside down and absolutely destroyed. DIPG is an inoperable and untreatable tumor on the PONS in the BRAINSTEM. We were not even aware that there was such a thing prior to diagnosis and have since been forced to realize that most have not heard of this terrible, destructive, fast moving, aggressive and deadly cancer. We want to change this. We want to change the stigma and taboo associated with discussing these very difficult subjects. We have discovered that DIPG and other childhood cancers receive single digits of all funding compared to adult cancers and DIPG receives even less. We understand how difficult, uncomfortable and disheartening talking about DIPG and Childhood Cancers can be. We understand how sad, heartbreaking and incomprehensible this subject can be however we need to change this. Hundreds of thousands of children and their families, and more, face DIPG annually and more cases are being diagnosed every day. Even more face other Childhood Cancers every year. We do not hear about DIPG or Childhood Cancers in the media, on social media and often not even in medical journals. We do not see a sea of Gold and Grey in every store, office, corporation, bank, government establishment or on every billboard, not even in September which is designated as Childhood Cancer month or on May 17, DIPG day. What can be more important than saving our children? Childhood cancer is a very sad and difficult topic to discuss. It is uncomfortable and incomprehensible because of the circumstances and reality involved. We really do get it! However we also understand that we must change the stigma and taboo surrounding this topic. We need to create the conversation. We need to change the conversation. We need to do better for the children facing this monster. We need to find treatments and cures! We are usually private people however we have been forced to re-evaluate and adjust our lives in ways we never thought we would. It is dumbfounding that in 2022 we are unable to talk about childhood cancers and even more mindboggling to learn that funding for childhood cancers and advancements have pretty much stagnated for decades. We want to make the public aware that Childhood Cancer and DIPG are very real and grossly underfunded and underrecognized. We want to change the conversation and promote funding and advancements in DIPG and all other Childhood Cancers. We invite you to join us on this life changing journey.

11/13/2025

🎂💖 Happy Sweet 16, Sophia! 💖🎂

Today we celebrate you, sweet girl. Sixteen years ago, you blessed this world with your light, your laughter, and your beautiful spirit. Even though you’re not here to blow out your candles, your love continues to shine through everyone who was lucky enough to know you.

We miss you more than words can ever say, but your memory reminds us daily to live with kindness, joy, and strength—just like you did. 💕

Forever sixteen in our hearts.

11/13/2025

Graham had the best dance moves. He’d giggle and groove to his favorite songs, entertaining himself as much as everyone lucky enough to watch. Forever 4, our DIPG angel turns 5 in heaven today, his first heavenly birthday after battling this aggressive brain cancer for 17 months. For every treatment, every scan, Graham remained his happy and loving self, powering through it all like the warrior he was. He was sweet, and oh-so strong.

Graham was a Packers fan (like his dad and baby bro, of course). He adored Super Simple Songs (explains the dance moves). But his true favorite? All things Mickey Mouse. From Mickey swag and snacks (’nacks, in Graham-speak) to a trip to the Magic Kingdom to meet the Mouse himself, anything with those signature round ears was just his jam.

Last weekend, his entire family gathered to celebrate their beloved Grammy, complete with cake and birthday songs. We’re thinking of all who adored this amazing little man today, sending them love and light, knowing they’re sharing the best memories of his laughter and smile. Happy Heavenly 5th Birthday, Graham! You are loved and missed today, always.

11/13/2025

Today, Aaliyah would be 9. True to form, her name means “rising up to the heavens.” We’re imagining our sweet, sassy DIPG angel on her heavenly birthday today, giving everyone above a run for their money and painting rainbows across the skies.🌈

Forever 5, Aaliyah loved cowboy boots and unicorns. Butterflies and princess-pretty dresses. She was bubbly and bright, a hilarious joker with the very best giggle. Aaliyah also had a spunky streak. She wasn’t afraid to tell it like it is, never letting her diagnosis define her. Because this girl was a fighter, with strength, courage, and tenacity far beyond her young years. Aaliyah battled this aggressive brain cancer for 13 months with a hero’s heart and a warrior’s resolve.🦄

Aaliyah’s legacy of love and light continues to inspire not only others in the same fight, but her entire community. We’re proud to have Aaliyah’s family among our TCSN Ambassadors, tirelessly working to fulfill their promise to her that they’d fight for a cure for this devastating cancer. We know all who loved this amazing girl are looking for her rainbow “winks” today, remembering her amazing laugh, thinking of next summer’s forget-me-nots. Happy Heavenly 9th Birthday, Aaliyah!🦋

11/13/2025

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Edmonton, AB

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