Cavernous Malformation Canada

11/05/2025

Today's

"Les nuages ​​flottent dans ma vie, non plus pour apporter la pluie ou annoncer l'orage, mais pour colorer mon ciel au coucher du soleil." ~Rabindranath Tagore

11/04/2025

We have partnered with milkjar.ca a Canadian company that has some amazing candle products and more! Great way to get some holiday shopping done and support Cavernous Malformation Canada too! Orders from Canada and US are eligible for the fundraiser. Add the code CMC2025 in the promo code box at check out!!

Ends on November 25!! Thank you for your support!

10/29/2025

It's World Stroke Day!
Raising awareness of stroke saves lives, and may reduce the impact of stroke effects, by helping patients access care as soon as possible.

An ICH (intracranial hemorrhage) is often the most feared outcome of having a cavernous malformation (CM). About 25% of patients with CM, experience a hemorrhagic stroke. Sometimes, it is the first time they find out they have a cavernous malformation.

Every stroke is different in how it impacts the brain. The effects and the impact to the life of a patient can only be evaluated in a medical setting with the use of imaging.

When in doubt, get checked out! Call 911 or get to an emergency department!

10/21/2025

It's Invisible Disability Week! We encourage everyone to look beyond what our eyes can see when we encounter another person.

Ask yourself "what don't I see?"

We know that around 20-50% of patients with a cavernous malformation (CM) don't experience symptoms. For those that do, symptoms can be varied and personal to their unique CM experience. At times they may be visible to others and many times, they are not.

Let's bring attention to invisible disability for our community and for all those that live with disability.

Instead of making assumptions, judging each other or inadvertently negatively impacting anyone, let's choose to listen, understand, and accept.

10/03/2025

As a registered charity, we are in our fundraising momentum time frame. The Province of Alberta has approved Cavernous Malformation Canada for match funding once we reach $2000 in donations! This is necessary to support our impact, our Mission and for a cure and treatment options for all patients. Access the link to contribute and learn more.

https://fnd.us/cavernousmalformation?ref=sh_8DgwjFJucKx8DgwjFJucKx

We need a cure and treatment options for the rare disease cavernous malformation! You can make a difference!

10/03/2025

We are pleased to share this incredible event taking place at The Hospital for Sick Children! Connect, ask questions and listen to leading cavernous malformation experts! You may attend in person or virtually.

Register at the link
https://web.cvent.com/event/0ffb9b42-cef3-4fa7-a06a-6058074fdb80/register

Thank you to the Paediatric Neurovascular Program for hosting this informative event!

10/01/2025

Je ne pense pas à toute la misère, mais à la beauté qui demeure
~Anne Frank

09/08/2025

We proudly support cavernous malformation research at The Derry Lab, led by Dr. Brent Derry The Hospital for Sick Children!

Highlighting and supporting Canadian research towards treatment and a cure for cavernous malformation is a foundational part of our vision.

The Derry Lab uses the nematode worm C. elegans as a model organism to study the biological functions of cerebral cavernous malformation genes. Read more about their work https://lab.research.sickkids.ca/derry/

Their research continues to provide deep insight into cavernous malformation. Check out some of their published studies on our website https://www.cavernousmalformation.ca/cm-research

Special thanks to the entire Derry Lab team for their dedication and perseverance!

08/29/2025

Travel tips and resources to make your trip comfortable, enjoyable along with some peace of mind. Patients with cavernous malformation that have symptoms, may be impacted by disruption to their routine, absence of items that support them and other aspects that impact the enjoyment of time away. Our Travelling with CM Guide can provide trusted tips, considerations and resources to help.

Access the guide at https://www.cavernousmalformation.ca/travelling-with-cm

08/28/2025

April bravely shares her story of waking up in the hospital one morning in her first year of university, diagnosed with cavernous malformation. Thank you April for allowing your story to provide hope and understanding to others.

The link to April's story and how she is doing today is https://www.cavernousmalformation.ca/patient-stories

April raconte avec courage son histoire : un matin, en première année d'université, elle s'est réveillée à l'hôpital avec un diagnostic de malformation caverneuse.

Le lien vers l'histoire d'April et son état de santé actuel https://www.cavernousmalformation.ca/patient-stories

08/20/2025

Notre plus grande gloire n’est pas de ne jamais tomber, mais de nous relever à chaque fois que nous tombons.

~confucious