Invisible illness/MCTD

11/27/2025

11/27/2025

Stay connected with the latest in scleroderma news, events, and research!

Sign up for Scleroderma Connections, our weekly e-newsletter, and get updates in your inbox every Friday! 📬

➡️ Sign up today at https://ow.ly/bYTy50XqwaX

11/27/2025

This year, our Stepping Out to Cure Scleroderma walks went wild - literally! 🐾

The New England and Lower Great Lakes Chapters brought their 2025 walks to local zoos, creating unforgettable days filled with community, fun, and scleroderma awareness.

https://scleroderma.org/happening-in-our-community/

Read more about these Zoo walks, and all that’s been happening in our community, in the latest issue of 'Scleroderma Voice'!

11/27/2025

is just two weeks away, and we’re already building momentum to make it our most powerful yet in the fight to end scleroderma!

This year, Amgen, Inc. is partnering with us to match every gift, dollar for dollar- up to $25,000!

This means your gift goes twice as far fueling research, education, and support for everyone affected by this disease.

Don’t wait - join us today and double your impact.

https://scleroderma.org/givingtuesday

11/27/2025

👉 Learn more: https://www.lupus.org/resources/what-causes-lupus?

11/27/2025

🚨 Open Enrollment for Medicare Prescription Drug Program (Part D) Ending Soon! 🚨 New this year: Medicare Part D prescription drug plans will have an out-of-pocket maximum of $2100 and beneficiaries can also opt in to the Medicare Prescription Payment Plan (MPPP)—a new program that lets you pay for prescriptions in monthly installments.

Read our open enrollment guides and make your selections before December 7: https://buff.ly/yMMhIna

11/27/2025

Lupus in the News: If you have lupus nephritis, you might be interested in how different physicians treat it differently around the United States. A recent study did just that by surveying the most common medications and how differently clinicians and patients are using them.

For example: LN patients began treatments an average of 11 days after diagnosis; 80% used steroids; 65% used antimalarials; 48% used immunosuppressants - most Cellcept (66%), then azathioprine 10%, and 5% used Benlysta.

Check out this article for more details and see how you compare! Remember, always talk to your healthcare providers before changing your treatments.

Link: https://ow.ly/zRv050XwyUx

11/27/2025

11/27/2025

11/27/2025

DEADLINE APPROACHING! ⏱️ Submit your ACR Convergence 2026 session suggestions by Monday, December 1, at 11:59 PM ET. Be part of building the next inspiring, high-value experience for our rheumatology community! Details → https://acr.tw/3YgStQ1

11/27/2025

Few and far between these days

11/27/2025

Giving Tuesday was created in 2012 on a simple idea: a day that encourages people to do good. At Myositis Support and Understanding, we call that 'from the heart." MSU celebrates global generosity this year on December 2, 2025. In the MSU community, there is no'right' gift amount. There is only your authentic generosity, your real commitment, and the tangible difference you choose to make. This Giving Tuesday, give from your heart, Give what you can, Give what matters to you.

Be inspired by the stories of Myositis patients who are on this journey and how your donation can make a difference.

Give at: https://bit.ly/49BjNAk