Mackenzie’s story

09/24/2025

Look who is finally awake!! We have heard from infectious disease and they have prescribed 2 oral medications which we can donate home and we come back on Friday to follow up

09/24/2025

The Doctor was in and we are still waiting for the blood culture, infectious disease has sent a few different antibiotic choices however they are having a hard time finding one that will treat both the pneumonia and urine bacteria. The Dr. Said once they get the labs back they will communicate to the infectious disease team and see what their thought are. It will be up to them if we can try 2 seperate oral antibiotics and go home or if IV is what they are still wanting.

09/24/2025

IV blew and she is swollen on the IV sight so now we wait to have another put in. My poor girl is having a ruff go!!

09/24/2025

Even with everything happening she sleeps so peacefully... We are waiting for a bed to become available so we can get out of this ER.

09/24/2025

Well that didnt take long, I got home shortly after 4 and received a call from the ER doc that we saw yesterday after getting the urine sample back it tested positive for a rare bacteria that apparently hard to treat. The Doc told us we need to come back to the ER for an IV antibiotic and hopefully it will fight the rare bacteria. We will also be getting blood work done to make sure nothing else is happening that we are missing, not sure how long we will be here but if the bacteria is not showing improvement after a couple days then we can be sent home and have nursing available in the home. Needing prayers for my sweet baby!!

09/22/2025

Mack isn't feeling well again. After a visit in the ER with her they have done x-ray and see something so are suspecting that she has aspirated again. Starting antibiotics and if not better by Thursday I have to take her back in.. The Doctor also wanted a urine sample and I'm glad he did because I guess it came back positive for bacteria, poor girl is also battling a possible UTI.

09/08/2025

07/22/2025

Update: The GJ has been in since Monday of last week and the transition has been tricky, we have had a couple hiccups but I guess that's how we learn. Since getting the GJ she has only vomited twice and pratten weighed her today and she has gained weight, she has went from 16.2 kg to 16.6 kg. THIS IS AMAZING!! I know it is only .4 but I was so happy when I saw it!! Tomorrow we are off to London to the Ivey eye for an appointment.