09/25/2021
I have been reading some of your comments and would like to give my thoughts on a few things. The night sweats are more than likely the medications, not the PMR. It's like menopause all over again. Restless legs...stick a bar of soap under your fitted sheet down in your foot area. No need to put your feet on it. Leave it and forget about it. Let me know how it works a month or so later. Prednisone reduction...tough out the small reductions, but if the pain persists for more than three weeks, increase in small increments until it settles. We know your tough, but you need to knock down the inflammation before you can decrease again. It isn't something you can hurry. Your body needs cortisol to function. When you take prednisone for more than a few weeks, your adrenal glands make way less cortisol. If you stop prednisone or taper too quickly, your body won’t have enough of the steroid it needs. Your withdrawal symptoms are due to that sudden steroid shortage. I remember many, many ...actually hundreds of painful nights crying and seeing no end to it, but there is! The sweats, cramps, moon face, the extra 60 pounds, the pain, unable to lift my legs or arms. Unable to lay down, sleep or walk. Some people don't have this much debilitating pain, but a lot do. I remember saying.." grab your flashlight and we will find the light at the end of this tunnel....all the while not truly sure whether I could. Well my story and this page started a few weeks after turning 50. It took 5 years to get my life back...slow and steady, with a lot of hills and valleys. Decreasing slower than a snail and having a few increases again, but it worked. It triggered osteoarthritis and a few others, but I now have my life back. I am 62 now and will post pictures to give you hope. The journey is long, painful and discouraging, but it will end. My heart is sad thinking of all of you struggling as I had. Rest when you can, reduce slow, and take care.❤💕
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