My MBC Journey

My MBC Journey Metastatic Breast Cancer Education

04/02/2026

Nobody really talks about how cancer changes the way you move through the world… not just your body.

People expect the obvious changes.

The appointments.
The treatments.
The exhaustion.
The way your body looks and feels.

That part, people can wrap their heads around.

What they don’t really see… is everything else.

It’s the way you pause before making plans now.
The way “yes” isn’t automatic anymore.
The way you scan your body without even thinking about it, noticing every little thing.

It’s the mental math you do all day long.
Do I have the energy for this?
What will this cost me later?
Is it worth it today?

It’s how normal things don’t always feel normal anymore.
Even the good moments can have a layer to them that’s hard to explain unless you’ve lived it.

And from the outside, it can look like you’re just going about your life.
Showing up. Smiling. Doing the things.

But inside… everything moves a little different.

Your thoughts are different.
Your priorities are different.
The way you experience time, your body, your relationships… all of it shifts.

It’s not always loud.
A lot of it is quiet.
Subtle.
Constant.

And that’s the part that’s hardest to explain.

Because how do you put into words something that changed everything… without looking like anything changed at all?

If you’ve lived this… what’s something that changed for you that people don’t really see?

03/26/2026

Meant to share this here…not my personal page! Had my 3 month check in today. Scans were showing no progression so yay!!
White blood count was down. Again. So because it’s been consistent at 1.98 where it should be over 2 she asked if I’d be willing to try 2 weeks on chemo pill, 2 weeks off vs 3 weeks on, 1 week off. Hoping it will bring my blood counts up and in turn more energy. It’s not the “standard of care” they follow but we’re taking the chance since I’ve been stable for so long.
She’s said this to me multiple times but her job is to keep me comfortable as long as possible and alive as long as possible. In that order. I’m A ok with that!!

This is huge for our area!!  I’ve had to go to Mississauga twice as the wait time was way quicker than Ottawa so will be...
03/19/2026

This is huge for our area!! I’ve had to go to Mississauga twice as the wait time was way quicker than Ottawa so will be nice to stay closer to home.

03/13/2026

3 month CT scan complete….now 2 weeks until my oncologist appointment 😞

02/28/2026
Had my infusion today as a reminder….like I need one lol!
02/05/2026

Had my infusion today as a reminder….like I need one lol!

Today is World Cancer Day and METAvivor is fighting to change!
Though effective breast cancer treatments exist, if the cancer metastasizes, there is no cure. Yet most breast cancer fundraising movements focus on prevention and early detection, which does not help those already diagnosed with MBC. For people with metastatic breast cancer, every day is World Cancer Day. Every contribution goes to help fund .

Learn more at: metavivor.org/about-us/the-need/ -impact

This pic sums up the perfection of our first time to Costa Rica with family and my best “Budz”It was nice to have a week...
02/03/2026

This pic sums up the perfection of our first time to Costa Rica with family and my best “Budz”

It was nice to have a week of nothing but getting catered to and feeling less pain!! I think I need to move to the tropics as we were barely home and the bone pain was back with the cold. I was poofy but just normal people pain for a week in paradise!! 1st world problems in the cancer world I suppose as many don’t get to do what I have!

✅ Costa Rica- monkeys, lizzards, sloths, riding, humpback whales, and too many sea turtles to count=perfection

Back to reality now (and scoping out the next trip!), just had bloodwork to make sure my neutrophils are good enough for my infusion tomorrow.

01/22/2026

I’m very excited that I’ve officially started my 2 week break from my poison pills!!(chemo pills)and just have to take the one during our trip. I still feel the effects of the Exemastane but not nearly like taking both!! Mostly on the energy/fatigue front.

So looking forward to a week of heat, swimming, walking…all the things I feel I can do!! ❤️❤️

Happy New Year!!!  I had my final appointment with my oncologist yesterday to end out 2025.  It went well as far as my s...
01/01/2026

Happy New Year!!!
I had my final appointment with my oncologist yesterday to end out 2025. It went well as far as my scans were good with no progression as I knew- but always nice to get confirmation from the expert!

The only surprise was my white blood cell count. She’s hoping it was the cold I had last week that caused it and not the other way around! Not a huge deal other than I have to take another week off my Kisqali (chemo pills) instead of just 1 week. When I get bloodwork in Feb if they are still low she will consider it an issue as I may have to change meds if that’s the case. She really doesn’t want to because the cancer has been so stable on this combo.

The upside is I was going to ask her if I could pause these pills for my trip so I’d have more energy which she was totally ok with. The week I get back will be bloodwork and my 3 month infusion of bone strengthener. So instead of 3 weeks on, 1 week off if will be 2 weeks on, 2 weeks off for two rounds

It’s really 1st world problems in the cancer world so again this is all for education of my world 😊

So kicking off 2026 with researching everything about Costa Rica and joining the gym to hit the treadmill and try to increase my fitness level for the trip.
To say I’m excited for this bucket list trip is an understatement lol!!

12/25/2025

Merry Christmas to all my supporters!!! Scans came back with no progression but lots of new bone deterioration. But it’s NOT more cancer so we’ll be booking our trip to Costa Rica this week!!!
The only question I’ll ask my oncologist on the 31st is if I can pause my chemo pills for 2 weeks rather than 1 as that week off falls where I’d have to start back halfway through the trip. 1st world problems in the cancer world 🩷

Just realized I have a winter scan outfit lol.  Wore it every time last year so I stay warm but most importantly there’s...
12/07/2025

Just realized I have a winter scan outfit lol. Wore it every time last year so I stay warm but most importantly there’s no metal so I don’t have to put on the awkward hospital gown! CT scans aren’t so bad as they are only 15 minutes, but bone scans can be over an hour so great to be comfortable!!

I’ve been extremely fatigued in the mornings so getting prepped tonight for my 7:30am ct scan 😊

Feels like I was here yesterday!  Oh wait, I was lol!   Quarterly infusion on the go then not back until December (I hop...
11/05/2025

Feels like I was here yesterday! Oh wait, I was lol! Quarterly infusion on the go then not back until December (I hope!) for scans.

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