Hudson’s Journey with Spinal Muscular Atrophy- SMA Type 2

03/23/2026

Growing like a bad w**d❤️ chilling in his new stander

Tomorrow we have VIVA coming out, this will be the first time meeting Hudson’s personal worker who will be coming out twice a week. They will be extending time/days as Hudson adjusts to it, but nice to have a consistent schedule for him to get used to it. I believe we’ll be getting his AAC device back as well ready to use! They took it with them last week so they could get it all properly set up for Hudson’s use😊

Muscular Dystrophy CanadaSpinal Muscular Atrophy SupportSMA News TodayAutism Awareness PageAutism SpeaksAutism FamilyAutismCure SMA Canada

03/23/2026

Still lots of time to get donations in for the walk and roll in may! Link in post to make a donation 🥰

“Muscular Dystrophy Canada helps bring families together, young and old, who face some of the same challenges. They are always hosting and organizing various events that may seem small to some, but have a huge impact on everyone who attends. Muscular Dystrophy Canada has been there when we've needed them, as they have for millions of others.” Hudson Nason is our Walk & Roll Champion for Fredericton.

To learn more about Hudson and his family and to donate to a Walk & Roll event, visit: https://muscle.akaraisin.com/ui/WalkRollMDC26/g/48337

03/22/2026

Very excited to see Harvey High school is doing the Walk and roll day for Muscular Dystrophy Canada on April.30th!!
This is the school that Hudson’s older sister Dakota attends.

Muscular Dystrophy CanadaHarvey Rural Community Municipality

03/19/2026

What a hectic day two😂 Hudson did really good today with everything again.
The amazing folks at Stan Cassidy hooked us up with a special chair for him, as he’s out grown the high chairs. This chair is amazing and I’ll have to post a clip after of it to show how much easier it’ll make it for me and Hudson as it raises and lowers as well.
Behind the chair picture you can see his new stander has made it home as well, all fitted and ready to jump back into things.
They were also amazing and helped find a car seat for little man, not only is it more of a big kid seat for him but it spins around too! Being able to turn it to the side to put Hudson in is going to make it so much easier.

Now the downside today.. they have been keeping a close eye on Hudson’s hips for a couple years now, doing X-rays every 6 months to track changes.. Hudson’s hips have hit the point that something will need to be done for both sides (30%). Dr. Tallin being the amazing dr she is already put the information thru to the IWK, so now we wait for a phone call to meet the Dr that will be doing surgery on our little warrior as well as his game plan for what procedure he’s looking at doing. There is a new surgery that hasn’t been available/around till this past year, so we’re hopeful this is what they will be able to do as less invasive. This does involve putting screws thru some bone to help hold the ball of the thigh bone in the hip joints kinda thing, we’ll know for sure what approach and details when we meet the surgeon who will be handling hudson.

Cure SMA CanadaMuscular Dystrophy CanadaSMA News TodaySpinal Muscular Atrophy SupportSMA AwarenessSMA Awareness Ribbon

03/18/2026

Day one of intensive therapy at Stan Cassidy, they were very happy with his progress. He’s come so far this past year, so it definitely feels good knowing that they can see his progress.
We’re figuring out a game plan for little man the next 18months as he’ll be starting school sept/2027🤯
we have had some MAJOR issues with Woodbridge and Hudson has fallen thru the cracks over and over again, which means he’s going without things he needs like his PT (Hudson should be going monthly, but only went once last year and the new worker he had was useless) one of the many many issues with Woodbridge..so Stan Cassidy is helping come up with a plan to help get Hudson some private help so he’s not missing out on his needs.

Hudson’s been with Stan Cassidy since before his 1st birthday (before he started Spinraza) so they have seen first hand how far he’s come and how he keeps improving.. very happy we have the team we do at Stan Cassidy, they are all very welcoming and absolutely amazing with Hudson ❤️

Hudson’s new stander is in and fully fitted! It’ll come home tomorrow with us.. tomorrow we’re also going to be going over some car seat and “high chair” options as he’s growing like a bad w**d and will be in need of some new specialty equipment😊

Spinal Muscular Atrophy SupportMuscular Dystrophy CanadaSMA News TodayCure SMA CanadaSMA AwarenessSMA Awareness RibbonStan Cassidy FoundationAutism SpeaksAutism Awareness Page

03/17/2026

Happy saint pattys day🍀

03/15/2026

Sundays are for watching the new Dino documentary on Netflix ,with your fave Dino’s🦖🦕

03/11/2026

Around here holiday decorations also work as toys😂

Little man playing with the little Easter tree, loves the lights and putting the egg decorations on the tree🐣

03/10/2026

Our favourite little side kick turns 2 today! Happy birthday Apollo🐶🦴

03/09/2026

Now have the raffle tickets in hand!

$5 each!!

First prize is a $1000 gift certificate to your choice of the 3 locations listed (Walmart, Canadian tire, Best Buy)

Second place is a gift package valued at $200

Can pay cash or e-transfer to: allee1992@outlook.com
**please reach out so we can get your information for the ticket! And you’ll get your ticket numbers**

If you buy a ticket will need your name, address and phone number!

We have 50 tickets that must be sold. Once payment is received I’ll fill out the ballot with your information.

Any questions please reach out! ☀️

Muscular Dystrophy CanadaSpinal Muscular Atrophy SupportCure SMA CanadaStan Cassidy FoundationSMA News Today

03/07/2026

Little man has been absolutely amazing since his spinal injection on Thursday, this time around it hasn’t slowed him down at all❤️

And yes he’s spoiled and always surrounded with his fave toys😊

03/06/2026

Talk about a trooper today, Hudson did amazing!!

Its a bitter sweet feeling when Hudson holds up his arm for the bp cuffs, sticks his finger out waiting for the oxygen reader, holding his arm still when getting the Iv..ect..it’s sad that our boy has grown used to things most kids don’t even know what they are/do.
The same time he’s used to the medical practices that have become a normal part of his life sadly, but this causes him less stress and issues when having to do them.. which makes it much easier on him. Today he only let out a small whine when doing the IV, when it’s always been a freak out before and none of the other testing seemed to bother or upset him.

Today I was able to go in the OR with him till they put him under, this doesn’t happen often as it’s up to the anesthesiologist.
When he was coming out of day surgery to meet us (me, bobo and sissy) waiting at the door, he was sitting right up on the stretcher just looking around not bothered.. usually as soon as he’s coming out we can hear him cry and he needs me comfort him or hold his hand, but today he was content with Angela pushing him back up to the room while he looked around taking everything in as he always does.

Little man keeps growing and keeps showing us how much of a little warrior he is and each time he gets stronger knowing what needs to be done is to help him.

So far he’s his normal happy self, eating and drinking as usual and no issues at the injection site. Keeping a close eye on him as always to ensure no side effects or issues. So far everything has gone smoothly.

So proud of you Hudson❤️

Spinal Muscular Atrophy SupportCure SMA CanadaMuscular Dystrophy CanadaSMA News TodaySMA AwarenessSMA Awareness Ribbon