Hudson’s Journey with Spinal Muscular Atrophy- SMA Type 2

Hudson’s Journey with Spinal Muscular Atrophy- SMA Type 2 Hudson was born on April.19/2022, In April/2023 he was diagnosed with Spinal Muscular Atrophy SMA.
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Hudson’s big sissy Dakota did a new painting for the living room, the colourful background stands for his autism❤️SMA Aw...
11/07/2025

Hudson’s big sissy Dakota did a new painting for the living room, the colourful background stands for his autism❤️

SMA Awareness RibbonSMA AwarenessCure SMA CanadaMuscular Dystrophy CanadaSMA News TodaySpinal Muscular Atrophy SupportAutism SpeaksAutism Awareness PageAutismAutism Family

Another spinal injection done.Hudson did amazing at getting his pre op stuff done including the iv, normally the bp cuff...
11/06/2025

Another spinal injection done.
Hudson did amazing at getting his pre op stuff done including the iv, normally the bp cuff and putting the IV in is a huge meltdown but he handled it like a champ this time. They were even able to get the bloodwork from the iv port this time, which made it easier on little man.
We just got home and little man wanted to lay down for a nap, it always takes a lot out of him and usually throws him off for a couple days after the procedure.
So far everything is going well injection site is looking good and no issues❤️

SMA Awareness RibbonStan Cassidy FoundationSMA News TodaySpinrazaMuscular Dystrophy CanadaCure SMA CanadaSMA AwarenessSpinal Muscular Atrophy Support

Crazy to think tomorrow is injection time already. Tomorrow they are also going to be doing bloodwork to check all his l...
11/05/2025

Crazy to think tomorrow is injection time already.
Tomorrow they are also going to be doing bloodwork to check all his levels, as they haven’t done bloodwork in awhile. It’ll also be the first bloodwork since he’s started taking the Ella ola vitamins.
Here’s hoping everything goes smoothly as it usually does❤️

Despite taking a little break from the page (which Is why there haven’t been posts) Hudson has been doing really good an...
10/30/2025

Despite taking a little break from the page (which Is why there haven’t been posts) Hudson has been doing really good and working hard.

We’re now in with viva they are coming every couple weeks, the intake is just finishing and they will be looking at coming out 3 times a week working on goals that we’re setting for Hudson.

Stan Cassidy finally got everything situated and his new stander has been ordered! Hopefully we’ll have it in the next couple months.

We had many issues with Woodbridge, they have really gone down hill this year and Hudson constantly seems to slip thru the cracks there. However after constant issues we have a supervisor who has stepped in to help get things that need done done, no more pushing Hudson off. With that being said Hudson’s new bed was tossed on the back burner, left sitting for months not getting ordered. Well they FINALLY got all the paper work into blue cross, so keeping all our fingers crossed we can get this ordered in the next month or so..as it’ll take awhile to come where it’s custom for his needs/disabilities.

Hudson is still taking the Ella Ola vitamins daily, with no issue. I think this has really helped a lot of things with Hudson including his mood,sleep, bowel issues..etc.. he gets his first blood work since hes started this next week, so we’ll be able to make sure everything with his levels Is where they should be.

We have Hudson on a good schedule and working every day on improving and staying healthy❤️

Next week is his next spinal injection, this always seems to creep up so fast!

Its been a long week but little man is finally coming around, which means apts can be rebooked and back to usual this we...
09/21/2025

Its been a long week but little man is finally coming around, which means apts can be rebooked and back to usual this week❤️

We unfortunately had to cancel the Viva appointment today, which will be rescheduled. The joys of kids being back to sch...
09/15/2025

We unfortunately had to cancel the Viva appointment today, which will be rescheduled.
The joys of kids being back to school, Hudson and his sissy have both caught one of the bugs going around.
Fingers crossed he gets over this like he has everything else so far, in the meantime extra cuddles and lots of disinfecting 😷

Hudson always finds multi uses for his equipment, the orange plastic wedge is used for some of the exercises.. but today...
09/14/2025

Hudson always finds multi uses for his equipment, the orange plastic wedge is used for some of the exercises.. but today he also wanted to use it for his cars and Dino’s❤️

Tomorrow we have VIVA coming out for the very first time to meet Hudson and we can work together to evaluate a plan for his needs that they can help with.. so thankful we are finally in with them, hopefully this will be a huge step in little man’s progress🙂

SMA AwarenessCure SMA CanadaAutism SpeaksSpinal Muscular Atrophy SupportMuscular Dystrophy CanadaAutism FamilyAutism Awareness PageAutismStan Cassidy FoundationSMA News TodaySpinrazaSMA Awareness Ribbon

09/05/2025

We have our very last apt with DR Wendy Stewart at the end of the month. She is retiring, which is very well deserved as sad as it’ll be for us to lose her.
This is the very first person who took one look at Hudson and knew he had SMA, after a year of fighting knowing something was wrong. She is absolutely amazing and the reason we have new born screening in nb now. Her patients have always come first and it shows, she’s worked hard in neurology for kids like Hudson making a HUGE difference.
Hudson will be transferred to another paediatric neurologist once her retirement sets in.

We have many struggles with Hudson’s autism, He doesn’t like a lot of different textures (which is part of his VERY sele...
09/02/2025

We have many struggles with Hudson’s autism, He doesn’t like a lot of different textures (which is part of his VERY selective eating).
However it’s been one thing we’ve been working on for over a year now the different feel and texture of things. Due to the texture Hudson absolutely hated play dough, he didn’t even want to see the containers for it because he didnt like how it felt at all.
So to see him playing with his play dough (which he’s been doing for a little while now) shows another step Hudson has improved 🥰

Everything may be a struggle due to ether the autism or his mobility issues due to his sma, but seeing him slowly improving on little things even just playing with play dough is a big step for us, our little fighter❤️
SMA AwarenessCure SMA CanadaAutism SpeaksSpinal Muscular Atrophy SupportMuscular Dystrophy CanadaAutism FamilyAutism Awareness PageAutismStan Cassidy FoundationSMA News TodaySpinrazaSMA Awareness Ribbon

We hope everyone has a good long weekend🥰
08/30/2025

We hope everyone has a good long weekend🥰

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Harvey Station, NB

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