Soft Bones Canada - Hypophosphatasia 'HPP' Community

Soft Bones Canada - Hypophosphatasia 'HPP' Community SBC: source of education, info, encouragement, and support those affected by Hypophosphatasia.

The countdown is on! Rare Disease Day is February 28, 2026. Join us is recognizing and celebrating Rare Disease Day and ...
02/04/2026

The countdown is on! Rare Disease Day is February 28, 2026. Join us is recognizing and celebrating Rare Disease Day and spreading awareness of rare diseases.

Head over to rarediseaseday.org to download your own shareable infographics.

Happy 2026 from your Soft Bones team! Wishing you all a happy New Year!
01/01/2026

Happy 2026 from your Soft Bones team!

Wishing you all a happy New Year!

Happy Holidays from all of us at Soft Bones Canada!
12/25/2025

Happy Holidays from all of us at Soft Bones Canada!

Reminder! IQIVA is conducting a survey on HPP patients and caregivers and they need YOU! Please contact the project mana...
11/20/2025

Reminder!

IQIVA is conducting a survey on HPP patients and caregivers and they need YOU!

Please contact the project manager on the flyer for more information or to participate.

Thank you to all the veterans who gave their lives so we can enjoy freedom today. We will remember them!
11/11/2025

Thank you to all the veterans who gave their lives so we can enjoy freedom today. We will remember them!

Happy HPP Day!!!!
10/30/2025

Happy HPP Day!!!!

IQIVA is conducting a survey on HPP patients and caregivers and they need YOU! Please contact the project manager on the...
10/30/2025

IQIVA is conducting a survey on HPP patients and caregivers and they need YOU!

Please contact the project manager on the flyer for more information or to participate.

Soft Bones US has just released another fantastic resource: “Guide to Understanding HPP Genetic Variations.” Check out t...
08/12/2025

Soft Bones US has just released another fantastic resource: “Guide to Understanding HPP Genetic Variations.”

Check out their website for this, and many other incredible resources for HPP patients and caregivers. We are so grateful for all the work they do!

Link in bio!

Happy Canada Day from all of us at Soft Bones Canada! 🇨🇦
07/01/2025

Happy Canada Day from all of us at Soft Bones Canada! 🇨🇦

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R6W4A9

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+12042023211

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