11/27/2025
I had a tough day this week,
Wondering about the future
Worrying about the future
Thinking about Liam
My different child
His path
With us
Without us...
Wondering if I expect too much of him or too little?
Wondering if I do too little,
wondering if I do too much?
Tossing and turning throughout the night, turmoil and unrest keeping my body and soul alert, awake. Trying to find peace, trying to figure things out, trying to make sense of this complicated thing called Life...
I had one day of Respite this week. After I dropped Liam off at his Angels from the Respite Home, I had an overwhelming feeling and longing:
To be on my own.
In Silence.
On my piano bench.
I had an urge to sit in front of the black and not-so-white-full-of-crumbs keys of my piano. I had an urge to let my fingers explore and trail up and down the keys I haven't touched for so long.
I didn't plan on what I was going to play. It just flowed out of me. The more I played the lighter I felt. (I wish the scale said the same ππ€ͺ) I had indescribable emotions and feelings. I felt like I was floating. Free. Weightless...
For the first time I played a piano lullaby from the Apple Music Album which I usually play to Liam when it is Bedtime. It got stuck in my chest and found its way through my fingers (and through the silent, broken B key hammer which I discovered, loose, in the piano's rib cage.) HOW did you manage to do THAT Liam?! ππ€¦ββοΈπΉ
The next day we were on the trails again. I walked passed the three-in-one-tree I see every day. I envisioned myself, my husband and Liam as that tree. Three branches, three lives entwined and braided, connected,
but still individuals.
In their own right
As they should be
I smiled. I felt proud of myself.
We ARE allowed to have those days. Those days when we need an extra spoon of sugar in our tea, when we need an extra two b**b hug for just a little bit longer, when we feel sorry for ourselves and where we find ourselves in a deep, dark pit of despair...
The challenge is not to linger and stay there. The challenge is to dig deep and to unearth the joy again. To crawl out of it. Mud in between the toes and grit underneath our nails and sticks stuck in our hair and tears AND light in our eyes rising from the ashes...like WARRIORS!
Not WORRIERS!!!
Whether we find it in a piano or in Nature or in the smile of the loved one beside us...
The challenge is to see that there is so much more to Life,
so much more to Live for,
and so much more To Love ππ»
Vivaaaa Life!!!
I smiled even more as I was thinking: It's not so complicated after all π€πππ»ππ»β€οΈ