This is what EDS looks like

11/05/2025

The Glitch

The Glitch is inspired by my individual personal story of dealing with chronic illnesses, specifically "Pots" or Postural Orthostatic Tachycardia Syndrome. a...

10/28/2025

10/22/2025

Kids with complex, invisible illness and their families face unimaginable hurdles as they confront failing medical and child protective systems.

10/22/2025

The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health, a virtual event held on November 1, 2025. This event is suitable for community members, their friends, families, and caregivers, as well as healthcare professionals.

10/21/2025

Emerging research shows that Ehlers-Danlos Syndromes (EDS) involve more than collagen defects. Dysregulation of the immune system—especially mast cells and complement—may increase tissue injury and affect healing in pEDS and hEDS/HSD.

➡ Understanding these connections is key to developing personalized treatments for neurological and spinal symptoms in EDS.

🔗Learn more about the connection between EDS & Chiari: https://youtu.be/QEmNDyzJa-g

Dr. Anne Maitland is an Associate Professor in the Department of Medicine, Division of Rheumatology and Director of the Ehlers Danlos Syndrome Institute at the Medical University of South Carolina (MUSC).

10/09/2025