Dystonia Medical Research Foundation Canada

12/16/2025

We will remain closed from December 24, 2025, to January 1, 2026. During this time, we will respond to urgent matters only. Please email info@dystoniacanada.org or leave us a voicemail at 1-800-361-8061.

We wish you a safe and happy holiday season! 💙

12/02/2025

🌟 Today is , a day to make a meaningful difference for people living with dystonia.

Your generosity fuels research breakthroughs and helps train specialists who will shape the future of dystonia care in Canada.

Meet Dr. Talyta Grippe, our 2023-2025 Fellow. Supported by DMRF Canada, she is expanding expertise in dystonia and improving access to care for individuals and families across the country. This year, she also served as a key presenter and organizer at the 2025 Pan American Movement Disorders Clinical Neurophysiology Course. This program reached full capacity thanks in part to DMRF Canada’s support. It means that more medical specialists are trained in gold-standard treatment techniques for dystonia.

When you give to DMRF Canada, you directly support the research and training of emerging experts like Dr. Grippe. As the only national organization in Canada dedicated exclusively to dystonia, the impact of your gift cannot be replicated elsewhere. Your support helps bring the much-needed specialists into the field, strengthens care, and moves us closer to a future with a cure.

🎁 Give the gift of research today: www.dystoniacanada.org/donateonline
💙 Thank you for making a lasting impact.

12/01/2025

🌟 Demain, le 2 décembre, c'est , une journée pour faire une réelle différence pour les personnes vivant avec la dystonie.

Votre générosité permet de réaliser des recherches essentielles, de faire de la sensibilisation et de soutenir des gens et des familles partout au Canada. 💙 Notre objectif est de recueillir 5 000 dollars en l'honneur des 50 000 Canadiens touchés par la dystonie.

Les familles comme celle de Julie savent à quel point ce soutien peut changer leur vie. Julie a lutté contre des symptômes douloureux pendant son enfance, sans jamais imaginer que son jeune fils serait un jour confronté à une forme de dystonie encore plus agressive. Grâce à la stimulation cérébrale profonde, tous deux sont aujourd'hui libres de se déplacer facilement.

Leur histoire montre ce qu'il est possible de faire, mais elle nous rappelle aussi qu'il est urgent d'accroître la sensibilisation, le soutien et le progrès. Trop de familles sont encore confrontées à de longues attentes pour obtenir des réponses et à des options de traitement limitées, et c'est exactement ce que nous nous efforçons de changer.

Votre don au « Mardi je donne » peut nous aider. Chaque dollar nous rapproche d'un avenir où plus personne ne sera confronté seul à la dystonie.

🎁 Offrez la recherche en cadeau.

Faites un don à l'adresse : https://dystoniacanada.org/fr/faitesundon
💪💙 Merci d’avoir un impact durable.

Dystonie-Partage

12/01/2025

🌟 Tomorrow is , a day to make a real difference for people living with dystonia.

Your generosity fuels vital research, raises awareness, and supports individuals and families across Canada. 💙 Our goal is to raise $5,000 in honor of the 50,000 Canadians affected by dystonia.

Families like Julie’s know how life changing this support can be. Julie struggled with painful symptoms as a child, never imagining her young son would one day face an even more aggressive form of dystonia. Thanks to Deep Brain Stimulation, both now enjoy the freedom to move with ease.

Their story shows what is possible, but it also reminds us how much more awareness, support, and progress are urgently needed. Too many families still face long waits for answers and limited treatment options, and that is exactly what we are working to change.

Your Giving Tuesday gift can help. Every dollar moves us closer to a future where no one faces dystonia alone.

🎁 Give the gift of research.
Donate at: www.dystoniacanada.org/donateonline

💪 💙 Thank you for making a lasting impact.

10/18/2025

Team Dystonia / Greater Toronto Area Dystonia Support Group at the 2025 Toronto Waterfront Marathon. A big thanks to the participants for coming out in support of dystonia.

10/17/2025

This Saturday, the Toronto Dystonia Support Group will be lacing up for those living with dystonia and their loved ones — raising awareness at the largest run in Toronto! 🏃♂️💙

There’s still time to show your support!

Your donations help improve quality of life for affected individuals and families through dystonia research and patient support programs.

Donate or share this message to spread the word. 👉 To donate, visit - https://raceroster.com/events/2025/95235/2025-tcs-toronto-waterfront-marathon/fundraising-organization/79431?aff=6ZUCT

10/15/2025

✨ Six years ago, this first-of-its-kind video was released on YouTube. Since then, tens of thousands have watched it and found comfort in knowing they’re not alone.

We’re excited to share it across more platforms to help spread the word even further.

💛 A heartfelt thank you to the incredible dystonia patients who bravely shared their stories and to Ipsen Biopharmaceuticals for their support in making this possible.

What is Dystonia? Dystonia is a neurological movement disorder that causes involuntary muscle contractions and abnormal postures, which can be painful. It affects people of all ages and backgrounds. While there is no cure yet, increasing awareness helps bring better treatments, research, and support for those living with this challenging condition.

09/23/2025

The Fall/Winter 2025 Newsletter is now available!
(Aussi maintenant disponible en français !)

IN THIS ISSUE:
- Updated Definition and Classification of Dystonia
- A Focus on Childhood Dystonia and Pain Management Options
- Dystonia Awareness Month – Campaign and Assessment Tool Launching this September
- Training Tomorrow’s Experts: 2025 PanAm Neurophysiology Course
- Dystonia Education Sessions and Symposium this September

📬 Check your mailbox or read it online now!
🔗 Subscribe or view past editions here: https://dystoniacanada.org/newsletters

Please click the link in bio to read the latest edition or subscribe!

09/16/2025

Dystonie-Partage - C’est le 💙 Saviez-vous que la dystonie touche deux fois plus de femmes que d’hommes? La dystonie cervicale, qui est la plus courante, est souvent mal diagnostiquée ou négligée pendant des années.
La Fondation de recherche médicale sur la dystonie Canada a fait équipe avec Patient Voice et la Dre Anne-Louise Lafontaine, spécialiste des troubles moteurs, pour créer une ressource utile qui permet aux Canadiens et Canadiennes d’en savoir plus sur la dystonie cervicale et de discuter des symptômes de la dystonie avec leur médecin.
À consulter ici : www.patientvoice.io/dystonie

Avec nos remerciements à AbbVie Canada pour leur soutien.

Dystonia is characterized by muscle contractions you can’t control. Sound familiar? Download the guide to support the next conversation with your doctor.

09/15/2025

A big thank you to Dr. Anne-Louise Lafontaine, Patient Voice, and AbbVie Canada for developing and providing important tools to support greater awareness and earlier diagnosis of dystonia.

Dystonia is characterized by muscle contractions you can’t control. Sound familiar? Download the guide to support the next conversation with your doctor.

09/12/2025

A heartfelt thank you to the legendary Bluenose II and to Jason Young (Dystonia Cape Breton), our dedicated Cape Breton Island Dystonia Support Group Leader, for their continued support this 💙⛵️

Your commitment to raising awareness helps shine a much-needed light on dystonia and the 300,000+ people it affects across Canada and the U.S. We’re so grateful for your advocacy and partnership.

09/09/2025

A huge thank you to Dystonia Cape Breton for coordinating the blue lights at several iconic buildings across Cape Breton in honor of ! If you're in the area, snap a photo of these buildings lit up in blue and tag us — we'd love to see it!

CBRM Fire Station #1

CBRM Police Station

CBRM City Hall

Check out the post below for more details!