Dystonia Medical Research Foundation Canada

10/18/2025

Team Dystonia / Greater Toronto Area Dystonia Support Group at the 2025 Toronto Waterfront Marathon. A big thanks to the participants for coming out in support of dystonia.

10/17/2025

This Saturday, the Toronto Dystonia Support Group will be lacing up for those living with dystonia and their loved ones — raising awareness at the largest run in Toronto! 🏃♂️💙

There’s still time to show your support!

Your donations help improve quality of life for affected individuals and families through dystonia research and patient support programs.

Donate or share this message to spread the word. 👉 To donate, visit - https://raceroster.com/events/2025/95235/2025-tcs-toronto-waterfront-marathon/fundraising-organization/79431?aff=6ZUCT

10/15/2025

✨ Six years ago, this first-of-its-kind video was released on YouTube. Since then, tens of thousands have watched it and found comfort in knowing they’re not alone.

We’re excited to share it across more platforms to help spread the word even further.

💛 A heartfelt thank you to the incredible dystonia patients who bravely shared their stories and to Ipsen Biopharmaceuticals for their support in making this possible.

What is Dystonia? Dystonia is a neurological movement disorder that causes involuntary muscle contractions and abnormal postures, which can be painful. It affects people of all ages and backgrounds. While there is no cure yet, increasing awareness helps bring better treatments, research, and support for those living with this challenging condition.

09/23/2025

The Fall/Winter 2025 Newsletter is now available!
(Aussi maintenant disponible en français !)

IN THIS ISSUE:
- Updated Definition and Classification of Dystonia
- A Focus on Childhood Dystonia and Pain Management Options
- Dystonia Awareness Month – Campaign and Assessment Tool Launching this September
- Training Tomorrow’s Experts: 2025 PanAm Neurophysiology Course
- Dystonia Education Sessions and Symposium this September

📬 Check your mailbox or read it online now!
🔗 Subscribe or view past editions here: https://dystoniacanada.org/newsletters

Please click the link in bio to read the latest edition or subscribe!

09/16/2025

Dystonie-Partage - C’est le 💙 Saviez-vous que la dystonie touche deux fois plus de femmes que d’hommes? La dystonie cervicale, qui est la plus courante, est souvent mal diagnostiquée ou négligée pendant des années.
La Fondation de recherche médicale sur la dystonie Canada a fait équipe avec Patient Voice et la Dre Anne-Louise Lafontaine, spécialiste des troubles moteurs, pour créer une ressource utile qui permet aux Canadiens et Canadiennes d’en savoir plus sur la dystonie cervicale et de discuter des symptômes de la dystonie avec leur médecin.
À consulter ici : www.patientvoice.io/dystonie

Avec nos remerciements à AbbVie Canada pour leur soutien.

Dystonia is characterized by muscle contractions you can’t control. Sound familiar? Download the guide to support the next conversation with your doctor.

09/15/2025

A big thank you to Dr. Anne-Louise Lafontaine, Patient Voice, and AbbVie Canada for developing and providing important tools to support greater awareness and earlier diagnosis of dystonia.

Dystonia is characterized by muscle contractions you can’t control. Sound familiar? Download the guide to support the next conversation with your doctor.

09/12/2025

A heartfelt thank you to the legendary Bluenose II and to Jason Young (Dystonia Cape Breton), our dedicated Cape Breton Island Dystonia Support Group Leader, for their continued support this 💙⛵️

Your commitment to raising awareness helps shine a much-needed light on dystonia and the 300,000+ people it affects across Canada and the U.S. We’re so grateful for your advocacy and partnership.

09/09/2025

A huge thank you to Dystonia Cape Breton for coordinating the blue lights at several iconic buildings across Cape Breton in honor of ! If you're in the area, snap a photo of these buildings lit up in blue and tag us — we'd love to see it!

CBRM Fire Station #1

CBRM Police Station

CBRM City Hall

Check out the post below for more details!

09/09/2025

A big thank you to our incredible Cape Breton Support Group Leader, Jason Dystonia Cape Breton, for organizing the flag raising at City Hall on September 16th in honor of ! Check out his post below for more details.

We are excited to announce that the Cape Breton Regional Municipality will once again be proclaiming September as Dystonia Awareness Month with a Flag Raising Ceremony.

The event will take place on Tuesday, September 16th at 1:30pm at the City Hall.

Our sincerest gratitude and appreciation for all involved in this event as they took it upon themselves to support us while I have been in Halifax undergoing surgery and now am in recovery mode for spine surgery.

On behalf of patients everywhere, I thank you.

Please stop by and show your support or just say hello.

Dystonia Medical Research Foundation Canada
Dystonia Association, Support, & Information - Alberta , CA
Dystonia Europe
Dystonia Ireland
Dystonia Medical Research Foundation
Australian Dystonia Support Group
Dystonia UK

09/02/2025

✨ Big thank you to our Cape Breton Island Support Group Leader, Jason Dystonia Cape Breton, for helping light up the Big Fiddle at the Port of Sydney in blue for ! 💙 From September 14–16, the landmark will shine in support of the dystonia community.

📸 If you’re in the area, snap a photo and don’t forget to tag us — we’d love to see it!

Would like to send a huge shoutout to the amazing Sam Marie of Port of Sydney for the amazing support and kindness for reaching out today with some dates.

We are so happy to announce that the World's Biggest Fiddle will be donning blue in support of Dystonia Awareness on September 14th, 15th, and 16th.

Thank you Samantha and your team at Port of Sydney, we are so very grateful for the continued support.

Dystonia Medical Research Foundation Canada
Dystonia Association, Support, & Information - Alberta , CA
Dystonia Medical Research Foundation
Dystonia Ireland
Dystonia Europe
Port of Sydney

08/31/2025

💙 September is ! 💙

All month long, we’re coming together to shine a spotlight on dystonia — raising awareness, sharing stories, and uniting the community.

From coast to coast, you’ll also see landmarks glowing in blue and white in support of this important cause — just one of the many ways we’re making dystonia visible.

📅 Discover how you can get involved and see what’s happening this month:
🔗 dystoniacanada.org/dystoniaawarenessmonth