The Brainwell Institute

The Brainwell Institute Dementia-focused Think-tank, dedicated to igniting change through research & action.

04/23/2026

Not all caregiver burnout looks like exhaustion.

Sometimes it looks like guilt, anger, and silence no one talks about.

5 overlooked (and often stigmatized) signs in dementia care:

• Quiet resentment you feel guilty for noticing:

You still love them—but part of you feels resentment toward how the relationship has changed. Dementia can turn roles upside down, and over time that emotional strain builds. When it has nowhere to go, it can lead to withdrawal, distance, and even more guilt.

• Emotional numbness or “autopilot” caregiving:

You’re getting everything done—but inside, you feel flat or disconnected. This is often a nervous system response to chronic stress. In dementia care, that shutdown can slowly reduce emotional connection, even when you’re physically present every day.

• Irritability that feels bigger than the moment:

A repeated question or small disruption triggers a reaction that feels out of proportion. Then comes the guilt. This isn’t a lack of patience—it’s cognitive and emotional overload. Constant repetition and vigilance wear down your capacity to regulate.

• Fantasies of escape followed by shame:

Thoughts like “I just want a break from all of this” or “What if I didn’t have to do this tomorrow?” These aren’t about abandoning your loved one—they’re signals that your system is overwhelmed and craving rest, space, and relief.

• Hiding how hard it really is:

Avoiding the full truth with family or friends. Minimizing your stress or their symptoms. This kind of masking often feels easier in the moment—but it leads to deeper isolation and less support over time.

Burnout in dementia care isn’t always visible.
Sometimes it’s quiet, internal, and carried alone.

And just because it’s not obvious—doesn’t mean it’s not serious.
It deserves support before it becomes something heavier.

04/15/2026

almost slipped off the federal agenda this year.

Decades of advocating, all the momentum from 5 years of funding for the National Dementia Strategy could have been lost, engulfed in the 40% federal budget cuts.

It still can, there's no guarantee, but for this year, the PHAC departmental plan has made it clear the $3.4M in annual dementia funding has been protected.

The Brainwell Institute is grateful for all the partners and advocates who helped create the movement to
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The first step was keeping it on the agenda, the next is to create a care system that works, and we're here for it.

03/17/2026

Women of colour are much more impacted by dementia.

In more ways than we think.

Dementia can feel isolating, but you are not alone in this story. 💛Across film and television, we’re starting to see mor...
03/09/2026

Dementia can feel isolating, but you are not alone in this story. 💛

Across film and television, we’re starting to see more portrayals of memory loss, caregiving, and the complicated love that surrounds it. These stories remind us that dementia is never just one person’s journey. It’s shared in quiet car rides, difficult conversations, moments of laughter, and the everyday acts of care that hold families together.

If you’re supporting someone living with dementia, you may recognize pieces of your own life in these characters. The worry, the tenderness, the grief, and the resilience that often exist side by side. Of course, the nuanced realities of dementia are difficult to capture in mainstream media, but we are always glad to see more of these stories being told.

Sometimes seeing pieces our experiences reflected on screen can be comforting. It reminds us that these moments, both heavy and beautiful, are part of a deeply human story many people are walking through together.

Which film or show helped you feel seen as a caregiver? 🎬

03/06/2026

Understanding risk reduction is one of the most important factors in preventing and/or delaying the onset of dementia.

How do we do it? 👉

02/24/2026

The way we think about dementia doesn't always capture the full potential of treatment.

The last 2 decades have seen a lot of progress and innovation for dementia treatments, and we can only go up from this point.

treatment

02/12/2026

We all know caregivers need more support through every stage of the journey.

Thanks for giving us the chance to discuss how to help caregivers, and ultimately, people living with dementia.

01/30/2026

Alzheimer’s is the most common forms of Dementia, and understanding the brain changes that occur for those impacted, can help collectively reduce stigma..

Save or share this with someone who needs to know about the signs and progression of Alzheimer’s disease.

Thank you

Dementia doesn’t just affect one person — it affects families, caregivers, and communities.Because there’s no clear, coo...
01/26/2026

Dementia doesn’t just affect one person — it affects families, caregivers, and communities.

Because there’s no clear, coordinated path to care, families are often left to manage on their own. That isolation builds shame and makes it harder to ask for help — and harder to build better systems.

This is why dementia deserves collective care and collective action.

“Most of my adult life.”Caregiving doesn’t happen in moments — it happens in years. In identities reshaped. In lives qui...
01/21/2026

“Most of my adult life.”

Caregiving doesn’t happen in moments — it happens in years. In identities reshaped. In lives quietly rearranged. 💔

This powerful op-ed speaks to that reality and calls for change.
👉 Read it via the link in our story today.

Caregiving for dementia is full of labour no one else sees: the way you absorb fear so your loved one doesn’t have to, t...
01/15/2026

Caregiving for dementia is full of labour no one else sees: the way you absorb fear so your loved one doesn’t have to, the choices you make with a lump in your throat, the way you hold love and grief in the same breath 💔

You navigate fragmented services, re‑tell your story to yet another provider, and somehow still show up with tenderness✨️

And the quiet 11th thing, the one that rarely gets named: you do it all again tomorrow.

No caregiver should have to shoulder this alone or stitch together care in a system that doesn’t talk to itself. Dementia care coordination isn’t a luxury — it’s how we close the gaps our Mind the Gap report is calling out.

💜 If these words reflect someone you love, please save this post as a reminder that their labour matters, and share it to keep the need for coordinated dementia care front and centre.

12/19/2025

✨️ Just how much care do caregivers provide? What does it mean for the economy?

We often don't think about the economic impact that caregivers who leave the workforce to tend to loved ones with dementia, but it's time we do!



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