Hirschsprung's Community

06/28/2024

Reach is looking for HD Ambassadors to help raise awareness, fundraise and support families in need. Reach provides funding for HD research, fellowship programs to develop more knowledgeable physicians and care givers as well offers a great deal of family and patient support. Please help if you can.

Join our team! 🤍
We are looking for passionate Hirschsprung Disease advocates to join our ambassador program

🤝🏻 build relationships
💙 support HD patients and families
✨ gain valuable volunteer experience
📚 learn more about Hirschsprung Disease

Email @gmail.com to get started!

06/24/2024

Do any of our HD families live in Regina? A HD family is moving and looking for recommendations for a HD doctor.

05/22/2024

TOMORROW! Join us live to discuss Problems After Pull Through Surgery with Dr. Langer from Toronto Sick Kids. Click the link below to register for FREE and tune in at 12pm EST.

You asked, we listened!

Join us on May 23rd at 12pm EST, as we delve into the topic of "Problems After Pull Through Surgery" for those living with HD with Dr. Langer from Toronto Sick Kids Hospital.

This webinar promises invaluable insights and guidance to help parents understand and address potential issues following pull-through surgery, empowering them with knowledge and support.

Don't miss this opportunity to gain valuable information and have your questions ready!

Register now for FREE to secure your spot!

https://www.eventbrite.ca/e/coffee-conversations-problems-after-pull-through-surgery-with-dr-langer-tickets-902449870857?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl

05/10/2024

A great opportunity to ask questions regarding Problems After Pull Through Surgery! Register for free below and join us live on May 23!

You asked, we listened!

Join us on May 23rd at 12pm EST, as we delve into the topic of "Problems After Pull Through Surgery" for those living with HD with Dr. Langer from Toronto Sick Kids Hospital.

This webinar promises invaluable insights and guidance to help parents understand and address potential issues following pull-through surgery, empowering them with knowledge and support.

Don't miss this opportunity to gain valuable information and have your questions ready!

Register now for FREE to secure your spot!

https://www.eventbrite.ca/e/coffee-conversations-problems-after-pull-through-surgery-with-dr-langer-tickets-902449870857?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl

11/16/2023

Attn HD parents! Amazing opportunity to tune in and ask questions on growing up and living with HD! Register for free below!

Live webinar with special guest and HD Warrior, Justin Tso. Join us as he shares his experience growing up with HD.

06/14/2023

A great way to support research for HD! How are you spending Father’s Day? Let’s get out and walk together!

This Father’s Day, celebrate by getting a head start and walking in support of HD research!👟✨

Register and form your own team to come together to walk in honor of the HD warrior in your life and donate the amount of your choice to participate!

Together, let's reach for the stars and walk for a brighter future in support of those affected by Hirschsprung Disease.

STEP 1:

https://www.eventbrite.ca/e/reach-for-the-stars-walkathon-tickets-642386765107

STEP 2 DONATE:

USA: https://www.paypal.com/donate/?hosted_button_id=JJUVVV4JE4YFA

CANADA: https://www.paypal.com/donate/?hosted_button_id=2MDRTV7YRENRY

STEP 3:
Get out and WALK! Don’t forget to rally for donations! ✨👏

04/05/2023

Great opportunity for HD families with questions regarding Diet and Nutrition and HD! Register for free and have your questions ready!!

Join us April 27 at 12pm EST with Dietician Beth Haliburton from Toronto Sick Kids as we discuss Diet and Nutrition for children with HD

02/27/2023

Reach Is taking a poll on what topic parents would like to have discussed on their next Coffee & Conversation Webinar series and they want to hear from YOU!

What HD topic would you like to be discussed/participate in?

Take their poll by clicking the link below:
https://www.surveymonkey.com/r/ZHLFSDL

02/21/2023

ATTN: HD PARENTS!

Are you interested in participating in an interview study with healthtalk.org?

With your help we can continue our group effort to offer more resources to all of our HD families.

Tap the link below for more info and to sign up to participate today!
https://www.npeu.ox.ac.uk/csor/workstreams/healthtalk

02/06/2023

Great opportunity for all HD parents!!

Reach Presents: Coffee & Conversations with Dr. Allan Goldstein and special guest, Monica Erazo as they discuss the science of HD as well as Genetic Counselling & Hirschsprung Disease.
Register for free by clicking the link below to tune in virtually and to be reminded!

https://www.eventbrite.ca/e/coffee-conversation-with-dr-allan-goldstein-and-guest-monica-erazo-tickets-528599955697?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=escb

Dr. Allan Goldstein & guest, Monica Erazo as we discuss The Science of HD as well as Genetic Counselling & Hirschsprung Disease