Novo Nordisk Haemophilia Foundation

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Novo Nordisk Haemophilia Foundation

Together with local partners, the NNHF is dedicated to define and fund sustainable programmes that improve access to care; read more at: www.nnhf.org
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10/10/2025

Angola, Mozambique and Cape Verde have formed a coalition supported by the Novo Nordisk Haemophilia Foundation.

Through this collaboration, healthcare professionals from Mozambique and Cape Verde joined a training in Angola, organised as part of the World Federation of Hemophilia twinning programme between Angola and Brazil’s Universidade Estadual de Campinas (UNICAMP).
The initiative is driving change through shared expertise, capacity building and advocacy.

🗣“With this approach, we can unify our efforts across borders while still ensuring the different needs of each country are met.” - Amos Gitonga Mbaabu, NNHF Associate Programme Manager

🎥 Watch the full video to hear more from the healthcare professionals joining this pioneering partnership!

07/10/2025

Fondation Pierre Fabre and Novo Nordisk Haemophilia Foundation are strengthening their partnership to transform care for people living with sickle cell disease and haemophilia in Kenya and Tanzania.📝

Together, we’re working towards:

✅ Expanded screening & integrated care
✅ Training hundreds of healthcare professionals
✅ Empowering patient organisations
✅ Establishing a Regional Training Centre
This collaboration is paving the way for lasting progress in building self-sufficient healthcare systems in East Africa.

👉 Discover further insights behind this partnership directly from the programme managers: https://nnhf.org/fondation-pierre-fabre-and-nnhf-strengthen-partnership-for-better-care-in-east-africa/

22/09/2025

Expertise in Action: A Leap Forward for Haemophilia Care in Jamaica 🏥

The expert volunteer He Wen Xiong from St. Michael's S. Hospital, Toronto, has facilitated a training for lab technicians at the University Hospital of the West Indies (UHWI) in Kingston. This marks a major step toward improving the quality of diagnosis of bleeding disorders nationwide.

The impact? Doctors at UHWI - Jamaica’s largest hospital - are aiming to increase diagnosis rates by more than 40%.

The is on track to become Jamaica’s national referral center for haemophilia diagnosis, and with that, to advocate for Ministry of Health support in treatment and reagent procurement. 🧪

👏 A huge thank you to Wen and the UHWI team for making this training a turning point for healthcare.

19/09/2025

✅ NNHF Partners Highlight Meeting

We had an incredible session with strong engagement from 75 participants, featuring three powerful keynotes and fantastic engagement from our global partners. Your contributions made this virtual meeting truly impactful!

🌍 Key notes from our partners:

1️⃣ South Africa – Dr Yasmin Goga and Molly Ndebele spoke about advocating for low-dose prophylaxis (vs. on-demand treatment) in low-resource settings, and highlighted the critical role of nurses in making this approach possible.
2️⃣ Latin America - Yuri Arango highlighted important work with Carrier Women with Bleeding Disorders, driving awareness and better care pathways. La Vida No Vista

These discussions show what’s possible when we learn from each other and work together.

👉 Are you a partner and want to join our next session? Stay tuned for the next invitation coming in February 2026!

08/09/2025

👋 Our team had the great pleasure of visiting the Democratic Republic of Congo!

We connected with passionate healthcare professionals and partners who are making a real difference for people living with haemophilia and sickle cell disease.

The NNHF has been a long-standing partner in the DRC, supporting the establishment of haemophilia care, strengthening diagnostic capacities, and fostering patient community engagement. 🤝

We visited four key hospitals in Kinshasa- C**S Kinshasa, PNLCD, IRB-Health 1 CEFA/Monkole, CMMASS, and Cliniques Universitaires de Kinshasa and witnessed both the dedication and the challenges faced on the ground. 🏥

➡️ This visit was a powerful opportunity to deepen our understanding of needs, explore further ways to strengthen care, and move conversations and actions forward.
➡️ Thanks to ongoing efforts and support, partners have established haemophilia care in three centres across different regions (Kisangani, Lubumbashi and Mbuji-Mayi).

Thank you to everyone who welcomed us and contributed to this important dialogue.
Together, we are building stronger foundations for care and advocacy.

05/09/2025

At this year’s Symposium, NNHF joined under the energising motto to reflect on what makes a foundation’s mission future-proof.

For us at the Novo Nordisk Haemophilia Foundation, the answer is clear:
✔️ Local ownership and capacity that embeds self‑sufficient care pathways within health care.
✔️ Strategic partnerships and learning networks that amplify partners’ know‑how and expand integrated care across local and global levels.
✔️ Values at the core of everything we do: integrity, transparency, and co‑creation.

💡 Key insight from the day: Global collaboration is not optional – it’s the engine of scale. By connecting across borders we can accelerate access to care for people living with haemophilia.
As our NNHF General Manager, Denise Braendgaard, put it: “Our partners are the driving force behind the impact within healthcare. By scaling their know‑how and strengths, the collective impact accelerates.”

🤝We left the symposium inspired by the power of collective action.

📨If you share our vision for sustainable healthcare, let’s connect info@nnhf.org

02/09/2025

✨ Welcome to the NNHF family!✨

We are thrilled to introduce Célia Rohrer, our new Communications Manager. 📣

Célia will strengthen the Foundation’s communications and support our partners in the French, Spanish, and Portuguese-speaking countries in their important advocacy work.
Her first mission already brought her to Luanda, Angola, where she joined the African Portuguese-speaking countries (PALOP) kick-off meeting, supporting in advocacy and training sessions. 🌍

We look forward to the impact of Célia’s expertise and commitment as we continue Impacting care. Together

22/08/2025

🎉🎈 Join us in celebrating the remarkable achievements of our partners in the first half of 2025! 🌍✨

Cambodia 🇰🇭: A haematologist and a nurse from Calmette Hospital attended a one-month specialised training in London to advance haemophilia care for adults. Special thanks to Dr Thynn Thynn Yee and her team from the Royal Free Hospital for hosting the training.

Paraguay 🇵🇾: Four days of coagulation training empowered 16 laboratory technicians from multiple hospitals in the region. Led by Dr Maria Sol from Salta, Argentina, this initiative sets the stage for a follow-up training in September 2025, along with diagnosis days aimed at increasing the national diagnosis rate!

Zambia 🇿🇲: Focused education sessions are helping people with haemophilia gain independence through self-infusion of clotting factors, alongside vital care for muscles and joints.

Together, we're building a future with better long-term outcomes! ❤️

🌟 Ready for more inspiring stories? Dive deeper into these incredible achievements and many more in our half-yearly update! 📄 Read it here:https://nnhf.org/wp-content/uploads/2025/08/250822_NNHF-half-yearly-update_H1-2025.pdf

29/07/2025

🤝 𝗦𝘁𝗿𝗲𝗻𝗴𝘁𝗵𝗲𝗻𝗶𝗻𝗴 𝗠𝘂𝗹𝘁𝗶𝗱𝗶𝘀𝗰𝗶𝗽𝗹𝗶𝗻𝗮𝗿𝘆 𝗖𝗮𝗿𝗲 𝗧𝗲𝗮𝗺𝘀 𝗶𝗻 𝗖𝗲𝗻𝘁𝗿𝗮𝗹 𝗔𝗺𝗲𝗿𝗶𝗰𝗮 🩺
We are excited to share a new video showcasing the incredible journey of three orthopaedic surgeons from Guatemala and Panama who attended a 5-day training in Milan, Italy. This training, led by Dr Luigi Solimeno at the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, was in the framework of two ongoing projects to enhance haemophilia care.

🌍 Cross-country collaboration
Our NNHF project partners are co-building multidisciplinary teams to improve diagnosis and make care accessible for people with haemophilia. The training provided valuable insights and practical knowledge, empowering these surgeons to better serve their communities.

👥 Expected outcomes and common goals of the projects
• Improved access to specialised care for people with haemophilia
• Enhanced transitions from paediatric to adult services
• Strengthened multidisciplinary care teams in Guatemala and Panama
• Unleashing the potential of collaboration between countries.

We extend our immense gratitude to the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico in Milan and Dr Luigi Solimeno for their invaluable support and expertise.

🎥 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝘃𝗶𝗱𝗲𝗼 𝘁𝗼 𝗵𝗲𝗮𝗿 𝘁𝗵𝗲𝗶𝗿 𝘀𝘁𝗼𝗿𝗶𝗲𝘀 𝗮𝗻𝗱 𝗹𝗲𝗮𝗿𝗻 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗶𝗺𝗽𝗮𝗰𝘁 𝗼𝗳 𝘁𝗵𝗶𝘀 𝘁𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝘃𝗲 𝘁𝗿𝗮𝗶𝗻𝗶𝗻𝗴. 🎥

18/07/2025

🌍 𝗘𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗔𝗰𝗰𝗲𝘀𝘀 𝘁𝗼 𝗕𝗹𝗼𝗼𝗱 𝗗𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀 𝗖𝗮𝗿𝗲 𝗶𝗻 𝗘𝗮𝘀𝘁 𝗔𝗳𝗿𝗶𝗰𝗮! 🌍

We are honoured to share our project impact report, showcasing the incredible results achieved through our collaboration with partners in Rwanda, Uganda, Tanzania, and Kenya. With the support of the Novo Nordisk Foundation and the Novo Nordisk Haemophilia Foundation, we have made significant strides in strengthening haemophilia and sickle cell disease care across the region.

🩸 2,246 individuals with haemophilia and 2,227 with sickle cell disease benefited from our initiatives
🔬 538 people retested or newly diagnosed
📍 28 centres established/strengthened
🩺 667 healthcare professionals trained
👥 600 youth empowered

The work that started in 2023 has led to a 28% increase in diagnosis rates and up to a 10-hour reduction in travel time for care. National treatment guidelines have been endorsed in Rwanda and Tanzania, and a Centre of Excellence has been established in Kenya.

And the work continues… This past Wednesday, representatives from partner countries, along with a special guest from India showcasing success stories, gathered to launch a new phase of cross-country collaboration. This initiative focuses on enhancing integrated care for haemophilia and sickle cell disease through care strengthening, awareness, and data-driven advocacy. Stay tuned for more updates. Exciting times ahead!

Our heartfelt thank you 🙏 to our partners, volunteers and funders who have helped achieve this!

We invite you to dive into our project report and discover more of the remarkable work of our partners to improve access to care:https://nnhf.org/wp-content/uploads/2025/07/NNHF_Report-East-Africa_v4.pdf

Together, we are building a brighter future for those affected by blood disorders in East Africa. 🤝🌟

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Webseite

http://www.nnhf.org/

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