19/06/2025
💬 5 things we (often) don’t know about Myasthenia Gravis 👀
This rare neuromuscular disease is still poorly understood…
Here are 5 surprising facts worth rediscovering 👇
1️⃣ The disease can progress through unpredictable flare-ups.
MG is a fluctuating disease by its nature, symptoms are not constant and hardly predictable. Some periods are rather calm, others marked by severe fatigue or increased weakness. These fluctuations make daily life hard to anticipate.
2️⃣ It can be associated with other autoimmune diseases.
Myasthenia can coexist with other autoimmune conditions, sometimes making diagnosis and management more complex.
3️⃣ Some treatments may lose effectiveness over time.
Available treatments help improve quality of life, but their effectiveness can decrease. This often requires therapeutic adjustments.
4️⃣ Early signs often go unnoticed.
A drooping eyelid, unusual fatigue, difficulty speaking or swallowing... These subtle signs can delay diagnosis, especially since they vary throughout the day.
5️⃣ Gentle physical activity can be beneficial.
When physical activity is adapted, supervised, and regular, it can help keep muscles active, improve breathing, and support morale. A real plus in managing the disease 💚
📌 June is Myasthenia Awareness Month: the perfect time to talk about it, share, and support research 🧠✨
📚 Sources:
AFM-Téléthon – Autoimmune Myasthenia
MSD Manuals – Myasthenia Gravis
