Cardiomyopathy UK

Cardiomyopathy UK Cardiomyopathy UK is the specialist national charity for people affected by cardiomyopathy.
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We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

Upcoming Webinar ❤2026 Changes to the Work Capability Assessment for Universal Credit⏰ Thursday 27th November at 7pm❤ Ho...
22/11/2025

Upcoming Webinar ❤

2026 Changes to the Work Capability Assessment for Universal Credit

⏰ Thursday 27th November at 7pm
❤ Hosted by Robert Mandelstam - a Welfare & Benefits Advisor with 15 years of experience in the industry.

To find out more, and to secure your place, head to:
📲 https://www.eventbrite.co.uk/e/1760413396859?aff=oddtdtcreator

Our Cardiomyopathy UK Specialist Nurses are at The British Society for Heart Failure's Annual Meeting in London ❤The str...
21/11/2025

Our Cardiomyopathy UK Specialist Nurses are at The British Society for Heart Failure's Annual Meeting in London ❤

The strapline of this year's event is 'Prevent Today, Thrive Tomorrow' - with a focus on early detection, improving quality of care, and timely access to treatment, all of which aim to ultimately improve the lives of those with and at risk of heart failure 👏

Financial support for carers of people with cardiomyopathy ❤We know that caring for someone with cardiomyopathy can some...
20/11/2025

Financial support for carers of people with cardiomyopathy ❤

We know that caring for someone with cardiomyopathy can sometimes affect your finances. You might have had to reduce your hours, stop working, or cover unexpected costs like travel to appointments.

At Cardiomyopathy UK, we want to make sure carers aren’t missing out on the support they deserve.

Our free Welfare and Benefits Advice Service is here to help you:
✔ Check which benefits you may be entitled to
✔ Get support with filling in forms and applying
✔ Challenge decisions or appeal outcomes
✔ Understand your rights as a carer

This service is available to anyone affected by cardiomyopathy, including carers, partners, parents and family members.

📩 To be referred, email: services@cardiomyopathy.org
📞 Or call: 01494 791224

You can also visit our Help for Carers website page to learn more about your rights and the support available to you.
📲 https://www.cardiomyopathy.org/living-cardiomyopathy/families-and-young-people/caring-someone-cardiomyopathy

Today is Carers Rights Day ❤Know your rights, use your rights. Carers Rights Day is a powerful reminder that knowing you...
20/11/2025

Today is Carers Rights Day ❤
Know your rights, use your rights.

Carers Rights Day is a powerful reminder that knowing your rights can make a real difference, whether you're speaking to your employer, your GP, or navigating health and care services.

We believe every carer deserves recognition, support, and access to the help they need.

At Cardiomyopathy UK, we’re not just here for the person diagnosed, but also for the partners, parents, friends, and family members who walk alongside them.

☀ Join any of our local or online peer support groups. We also have an online group specifically for those supporting someone with cardiomyopathy.
📲 https://www.cardiomyopathy.org/loved-ones-online

❤ Talk one-to-one with someone who understands through our Heart to Heart telephone support
❤ Take part in Thriving with Your Child’s Cardiomyopathy — our 4-week course for parents and carers
❤ Connect with others in our private Facebook group for carers
❤ Speak to our Cardiomyopathy Nurse Specialists via phone, webchat or email

✨ "It’s okay to need support, too. Carers matter."

11/11/2025

❤ Are all cardiomyopathies genetic?
❤ Can someone carry a gene and never show symptoms?
❤ Do lifestyle choices play a role?

In Episode 8 of Cardiomyopathy Conversations, Professors Perry Elliott and Ruth Newbury-Ecob unpack the genetics of cardiomyopathy — what we know, what we don’t, and what genetic testing really means for families.

Watch episode 8 here:
📲 https://www.youtube.com/watch?v=YRP2EnEFY-g

📲📲📲📲📲📲📲

Celebrating our Trustees 🎉At Cardiomyopathy UK, we’re lucky to have the support of an incredible Board of Trustees who g...
03/11/2025

Celebrating our Trustees 🎉

At Cardiomyopathy UK, we’re lucky to have the support of an incredible Board of Trustees who give their time, skills and experience to help drive our mission forward.

Their insight, commitment and leadership make a real difference for people living with cardiomyopathy and their families. We’re proud to work alongside such a passionate and dedicated group who guide and strengthen everything we do as a charity ❤

A huge thank you to our Trustees for the impact you make to our community 👏

Trustee Week:
📲 https://trusteesweek.org/supporter-resources/

Yesterday was the 5th World Amyloidosis Day ❤This year’s focus: Reducing diagnostic delay – which currently averages 4 y...
27/10/2025

Yesterday was the 5th World Amyloidosis Day ❤

This year’s focus: Reducing diagnostic delay – which currently averages 4 years.

Be the link – early recognition and access to regional specialist services can make all the difference.

Regional Centres will have a positive impact on 'diagnostic delays' and make access to dedicated specialists easier, while the link to the National Amyloidosis Centre (NAC) for complex cases is preserved.

Find out more here:
📲 https://www.worldamyloidosisday.org

Our incredible fundraisers have been lacing up their trainers and taking on half marathons across the UK this October al...
25/10/2025

Our incredible fundraisers have been lacing up their trainers and taking on half marathons across the UK this October all to support Cardiomyopathy UK 👏

This week, we’re celebrating Dominque, who completed the Royal Parks Half Marathon and raised over £1,000 🎉

"I had an amazing time running for Cardiomyopathy UK in the Royal parks half marathon. My brother was diagnosed with HCOM in 2024 and myself and my sister have recently found out we also carry the gene for HCM. It was an honour to run for the charity, following my brother's diagnosis we were sign posted to Cardiomyopathy UK and the information we were able to get was amazing. The work and research the charity does is inspiring and I wanted to find a way to give back to them."

A huge thank you to Dominique and every one of our Team Cardio runners who went the distance this month ❤

Bake a Difference in 3 Easy Steps! 🍰☕Raising funds for Cardiomyopathy UK has never been sweeter! Whether you’re a star b...
23/10/2025

Bake a Difference in 3 Easy Steps! 🍰☕
Raising funds for Cardiomyopathy UK has never been sweeter! Whether you’re a star baker or just love a good brew, you can help make a real difference for people living with cardiomyopathy.
❤️Choose your venue - school, work or home - wherever you can gather friends, family or colleagues.
❤️ Pick your date and send out your Cardiomyopathy UK branded invites – the more, the merrier!
❤️ Have fun - brew the coffee, slice the cake, and enjoy knowing every penny raised helps support those affected by cardiomyopathy.

Ready to get started? Find all the info and resources you need at https://www.cardiomyopathy.org/bake-a-difference

World Menopause Day is held every year on the 18th of October, the theme this year is lifestyle medicine ❤We have asked ...
18/10/2025

World Menopause Day is held every year on the 18th of October, the theme this year is lifestyle medicine ❤

We have asked consultant cardiologist, Dr Paz Tayal, some questions about menopause and cardiomyopathy

You can find out more here:
📲 https://www.cardiomyopathy.org/news-blogs/latest-news/menopause

A huge thank you to Julie for bravely taking to the skies and completing a skydive in support of Cardiomyopathy UK and r...
16/10/2025

A huge thank you to Julie for bravely taking to the skies and completing a skydive in support of Cardiomyopathy UK and raising over £1,000 🎉

Julie shared:
“My jump was a small thank you for the great work and research Cardiomyopathy UK do to help others with this heart condition. My daughter was diagnosed with it at 5 months old and is currently thriving at secondary school now, thanks to all the knowledge there is about the condition. We are so grateful as a family.”

We are so inspired by Julie’s courage and commitment and so grateful for her support in helping us continue our vital work ❤

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75A Woodside Road
Amersham
HP66AA

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

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