30/03/2026
As PANDA states, a 'must read' from Cerebra and a statement that rings very true for us.
When the system meant to help becomes the source of harm - a must read from the excellent Cerebra.
A new report has a name for something too many of us have lived through - “Systems Generated Trauma.”
It describes how disabled children and their families are being deeply harmed by the very systems - health, education, social care - that are supposed to support them.
Instead of help, many parents face suspicion, blame, and constant battles just to get their child’s needs met.
The research, based on over 1,200 parent carers, found that most families experienced more distress from dealing with services than from major life traumas like bereavement, illness, or domestic violence.
The result? Exhaustion, financial strain, lost trust, and in some cases, utter despair.
Even “trauma-informed” policies rarely mention the trauma caused by these systems.
The report calls this institutional moral indifference - a deep unwillingness to fix the harm that’s already been shown to exist.
Parents are calling for real change:
- Public bodies must acknowledge system caused trauma.
- Work with families to redesign harmful policies.
- Build empathy, trust, and accountability into every part of the process.
It’s time to move beyond words and make support systems truly supportive!
https://cerebra.org.uk/systems-generated-trauma/