13/11/2025
⛑️ I have definitely gone to many GP / hospital appointments expecting them to tell me what was going wrong with my body and hand me the answer on a silver platter. And quickly!! I did that at the start of my journey. Begging them to tell me what was wrong and how long it was going to go on for.
I did get my diagnosis of M.E and POTS. And then MCAS. But no treatment plans or how to heal.
This lead me to feel drained, frustrated, and going round in circles.
Here’s the truth:
The modern medical system is what it is.
It has its strengths, but it’s not designed for complex, multisystem dysfunction. Medical science simply hasn’t caught up yet. And expecting a GP to solve something the textbooks don’t yet fully understand? That’s a fast track to disappointment.The NHS essentially offers three routes: meds, surgery, therapy. That’s the model. Anything outside of that — nutrition, root-cause work, functional approaches, quantum health, lifestyle — lives beyond the standard pathway.
And that’s where your power comes in. ⚡️
The day I stopped bouncing around the system waiting for someone to “fix me,” my trajectory changed. I realised I had to become my own medical detective — grounded, informed, and in the driver’s seat.
✨ Do your research. Go to BMJ, The Lancet, PubMed. Understand the basics of what you’re asking for.
✨ Go into appointments with intention.
“What’s the one thing I want from this today?”
✨ If you want to try a medication, arrive prepared.
Know the dose range, the evidence, the rationale. Your GP can only prescribe within what’s evidence-based — help them help you.
✨ Collaborate, don’t hand your power over.
Work with your GP. Partnership beats passivity every time.
✨ Accept the system for what it is.
When you stop expecting it to be something it isn’t, the frustration melts away, and you actually start getting more out of it.
💚 All said with love — and hard-won experience from someone who spent years bouncing through the system. I know how hard and challenging it is. But you’ve got this. FAW&NGU*
*Find a way and Never Give Up
Big love
Jo
💚💫💚