CLDF Families Team

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CLDF Families Team

Supporting families with children who have liver disease

21/01/2026

Could you use your experience as a parent or carer of a child with liver disease to help shape our services? Find out more here https://ow.ly/lZk550Y02eX

20/01/2026

Otis received a liver transplant just before his first birthday. Now he's eight years old and whether it's swimming or street dancing, there's no stopping him! https://ow.ly/t5qC50XZZqb

19/01/2026

As Health Information Week begins, remember that we can provide you with clear and trusted information on the rare and complex liver diseases affecting children. From explanations of
medical terminology to tips on maximising clinic appointments you'll find it all here https://ow.ly/nb5h50XZG8Z

17/01/2026

It's always humbling to hear how many of our young people pursue careers in medicine. We're delighted to hear from Zoe about her son Jordan's progress and to hear of the unique bond she shares with the mother of the boy who saved his life https://ow.ly/1qaa50XWLEn

16/01/2026

Being diagnosed with a liver disease as a teenager is a huge shock. Here Bethan has some advice for anyone who finds themselves in that situation https://ow.ly/nqEY50XWKee

14/01/2026

Big thank you to Oliver .taylor.26 who found our Children and Families Services so helpful after his son Oscar was diagnosed with alpha-1 antitrypsin deficiency that, together with Oscar's godfather Josh, he raised a fantastic £520 to support us. Great work both and go Oscar!👏👏

13/01/2026

A big thank you to Louise for updating us on her family's journey with alpha-1 antitrypsin deficiency, and why awareness of liver disease in babies is so important to her https://ow.ly/qjMf50XW0cS

11/01/2026

Big thank you to Jacqueline and her son, Aarron, for speaking to the Mail on Sunday about why the approval of a new drug in Scotland is so significant https://ow.ly/vP0j50XStjN

10/01/2026

Penny and John were given the devastating news that their baby son was unlikely to survive beyond 8 months. Forty seven years on, they are sharing their story to bring hope to other families https://ow.ly/sITH50XRX4L

07/01/2026

What better way to shake of the 'back to school' blues than planning your Big Yellow Friday fundraising for March 13th! Simply register here https://ow.ly/o6Ki50XKPja and we're here to help you all the way😄

03/01/2026

Do you believe your child's liver condition affects their ability to sleep? Maybe it was an issue when they were younger and you've got through it? How did this impact on you? We want your sleep (or lack of sleep) stories! Comment below if you're happy to share or email mairead.ritchie@childliverdisease.org.

30/12/2025

Whether you've contacted us by phone, text, Whatsapp or Teams, we are privileged to be here for our young people and their families. We're proud to say that this year we've had over 1,000 interactions with our amazing young people and almost 2300 with their parents. We'll be back with you next Monday and look forward to doing it all again! Email us at families@childliverdisease.org

Address

Birmingham
B33JY

Website

https://www.childliverdisease.org/form.aspx?ID=235

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