CLDF Families Team

CLDF Families Team Supporting families with children who have liver disease

When five year old Jasmine became unwell before Christmas, her parents initially put it down to winter bugs. They had no...
22/12/2025

When five year old Jasmine became unwell before Christmas, her parents initially put it down to winter bugs. They had no idea her liver was failing... https://ow.ly/9Em050XKsEK

Join us in congratulating Faye who has just celebrated the 32nd anniversary of her liver transplant! Here is her story h...
18/12/2025

Join us in congratulating Faye who has just celebrated the 32nd anniversary of her liver transplant! Here is her story https://ow.ly/ItKK50XJKjm 👏👏

A huge thank you to Lara who braved the cold Edinburgh weather to take on fundraising runs in November and December, rai...
17/12/2025

A huge thank you to Lara who braved the cold Edinburgh weather to take on fundraising runs in November and December, raising a fantastic £582! 👏👏https://ow.ly/NJXi50XKfP6

Our recent survey of families affected by childhood liver disease revealed that 67% of respondents believed it had a neg...
15/12/2025

Our recent survey of families affected by childhood liver disease revealed that 67% of respondents believed it had a negative impact on mental health. Here https://ow.ly/GzCx50XJCQk Sam shares why it's important for parents to consider their own mental health.

We’re delighted to hear that a drug which alleviates one of the most distressing symptoms of Alagille syndrome is to be ...
08/12/2025

We’re delighted to hear that a drug which alleviates one of the most distressing symptoms of Alagille syndrome is to be made available in Scotland but disappointed that children in other parts of the UK will not benefit. More here https://ow.ly/NXl350XFCuG

A huge thank you to everyone who took part in our survey about living with childhood liver disease. The results, now ava...
01/12/2025

A huge thank you to everyone who took part in our survey about living with childhood liver disease. The results, now available here https://ow.ly/NppX50XA5uR reveal that despite high levels of satisfaction with medical care, many young people and their families are facing real challenges in terms of education and mental health. Has this been your experience and would you like to share your story? Please comment below or email press@childliverdisease.org

Are you planning to bag a Black Friday bargain? Make sure you're signed up to support us at Give as you Live and you co...
28/11/2025

Are you planning to bag a Black Friday bargain? Make sure you're signed up to support us at Give as you Live and you could generate FREE donations on your online purchases! https://ow.ly/sSZw50XxwoM

When Emma started fundraising soon after her daughter was diagnosed with liver disease, she couldn't have envisaged wher...
27/11/2025

When Emma started fundraising soon after her daughter was diagnosed with liver disease, she couldn't have envisaged where it would lead......https://ow.ly/2Ka050XxyW7

A huge thank you to the members of St Chads Bowling Club who have raised a fantastic £2221 to support young people with ...
26/11/2025

A huge thank you to the members of St Chads Bowling Club who have raised a fantastic £2221 to support young people with liver disease, and here's why https://ow.ly/n1Af50Xxq6M

We're delighted to announce that our podcasts which cover everything from managing medication, moving into adult liver s...
24/11/2025

We're delighted to announce that our podcasts which cover everything from managing medication, moving into adult liver services and navigating university with a liver condition are now available on Spotify. Check them out here https://ow.ly/gRLM50XwU9M

Diagnosis of a chronic condition in a child is a tough one for any parent to take. Gina hopes her daughter Alice's story...
23/11/2025

Diagnosis of a chronic condition in a child is a tough one for any parent to take. Gina hopes her daughter Alice's story will give hope to others https://ow.ly/k2S650XugnM

Well done to David, whose colleagues at Aviva helped him raise over £2K by joining in an 874-mile virtual challenge htt...
22/11/2025

Well done to David, whose colleagues at Aviva helped him raise over £2K by joining in an 874-mile virtual challenge https://ow.ly/HIZ250XsMAB

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