https://kidneysupportgroup.co.uk/, http://chat.kidneysupportgroup.co.uk/

KSGSupportGroup, Blyth (2025)

13/11/2025

🌟 Share Your Story — Inspire Others! 🌟

Every kidney journey is unique — and your experience could help someone feel less alone. 💚

We’re inviting CKD patients to share their personal stories through our Kidney Support Group blog. Whether you’ve just been diagnosed or you’ve been living with kidney disease for years, your voice matters.

🖋️ Complete our quick form and we’ll help turn your story into a blog post to share with the community.

👉 Visit: shareyourstory.kidneysupportgroup.co.uk

💬 Join our friendly chat on Discord too — a space by kidney patients, for kidney patients.

29/04/2025

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪

This is a support group for anyone who would like to have any form of support or even get to know people who are in similar situations, because together we’re better.

Whether you are a long time sufferer, recently diagnosed, waiting for transplant, received a transplant, are a donor, are a recipient, on dialysis, not on dialysis or even if you just know someone going through any of the above… then this is the group for you.

We have some great members within our Discord who have already been offering great stories and advice so please come and join us and don’t let get the better of you!

Let’s do this!

You can join my discord using the following link 👇.

https://discord.com/invite/ZcUMwExnJK

08/04/2025

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪

This is a support group for anyone who would like to have any form of support or even get to know people who are in similar situations, because together we’re better.

Whether you are a long time sufferer, recently diagnosed, waiting for transplant, received a transplant, are a donor, are a recipient, on dialysis, not on dialysis or even if you just know someone going through any of the above… then this is the group for you.

We have some great members within our Discord who have already been offering great stories and advice so please come and join us and don’t let get the better of you!

Let’s do this!

You can join my discord using the following link 👇

https://discord.com/invite/ZcUMwExnJK

08/04/2025

Who’s your support network? Do you feel alone?

Living with kidney failure can be overwhelming — and some days, it can feel like you’re carrying it all by yourself.

There’s the physical side of things, of course… but it’s the emotional weight that can really catch up with you. The quiet moments after a long dialysis session. The cancelled plans. The feeling that others don’t quite understand what you’re going through.

Support can make all the difference — whether it’s family, a partner, a good friend, or even someone you’ve met through this journey. And if you don’t have that right now, please know… you’re not alone. There’s a whole community out here that understands more than you might think.

So we’re asking gently — who’s been there for you? Or maybe you’ve had to be your own support?

Share your thoughts below, and let’s lift each other up. Sometimes just knowing someone else gets it is enough to make the day feel a bit lighter.

20/01/2025

Cici, aged just three, taken too soon
06.11.21 - 12.01.25 💔👼

No parent should ever have to endure this pain. Ciara, just 3 years old, was a bright, brave little girl who fought so hard against unimaginable challenges. Despite everything, she filled the lives of those around her with love and light.

Cici battled tirelessly, enduring multiple hospital stays, infections, and setbacks, all while waiting for the kidney transplant that was meant to give her a brighter future. Through it all, her mum and dad were by her side every step of the way, never giving up hope.

On January 12th, 2025, Ciara’s little heart took its last fight. Though her journey was far too short, she leaves behind a legacy of strength, courage, and the love she inspired in everyone who knew her story.

Cici, you have touched the hearts of more people than you will ever know. You will be forever in all of our hearts.

If you’d like to support Ciara’s family during this difficult time, please visit their GoFundMe: https://gofund.me/5ef761bb 🙏

Thank you. x

04/01/2025

🌟 Understanding CKD Stages 🌟

💡 CKD progresses in 5 stages, measured by GFR:
1️⃣ Stage 1: Normal function (GFR ≥ 90) but with kidney damage.
2️⃣ Stage 2: Mild reduction (GFR 60-89), often no symptoms.
3️⃣ Stage 3: Moderate reduction (GFR 30-59), with fatigue & fluid retention.
4️⃣ Stage 4: Severe reduction (GFR 15-29), noticeable symptoms & prep for dialysis/transplant.
5️⃣ Stage 5: Kidney failure (GFR < 15), requiring dialysis or transplant.

👉 Early detection & lifestyle changes can slow progression. Stay informed, stay strong! 💪💙

03/01/2025

🌟 Understanding Chronic Kidney Disease (CKD) 🌟

CKD is a long-term condition where the kidneys lose their ability to filter blood effectively. It progresses in 5 stages, measured by eGFR:

1️⃣ Stage 1: ≥90 (Normal with damage)
2️⃣ Stage 2: 60-89 (Mild)
3️⃣ Stage 3a: 45-59 (Mild-Moderate)
4️⃣ Stage 3b: 30-44 (Moderate-Severe)
5️⃣ Stage 4: 15-29 (Severe)
6️⃣ Stage 5:

02/01/2025

A Second Chance at Life Without Dialysis ✨

Did you know that a preemptive kidney transplant can save someone from the struggles of dialysis altogether? 💔 It’s a lifeline for those with severe kidney failure—giving them hope, better health, and more time to live fully. 💪💙

With the option of a living donor, this life-changing surgery can happen before dialysis is ever needed. It’s about timing, courage, and compassion. 🫶 Let’s spread awareness about this life-saving option and support those fighting kidney disease.

👉 Learn more and help make a difference.

31/12/2024

HNY. 🍾🎉

Looking back over this year, the biggest milestone for me has to be hosting the very first KSG Support Group meet-up in Nottingham this December. I started this group to support renal patients like myself—those facing the challenges of kidney disease, renal failure, dialysis, and transplants—and seeing it come to life this year has been nothing short of incredible.

Meeting everyone in person for the first time was such a powerful moment. Hearing your stories, sharing experiences, and creating a space where no one feels alone has reminded me exactly why I set this up. I’m so proud of what we’ve built together—a true community of strength, resilience, and hope.

As we step into 2025, I’m excited to announce there will be another meet-up, and I can’t wait to connect with even more of you. If you or someone you know is living with renal failure, please reach out—I’d love to welcome you into this amazing group.

Wishing everyone a Happy New Year and all the best for 2025. May it be a year of hope, healing, and brighter days ahead. Together, we are stronger. 🌟

KSGSupportGroup

13/11/2025

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