Kidney Support Group

Kidney Support Group A relaxed social chat group for all CKD patients and caregivers. Real people, real stories. 💪

Welcome to Kidney Support Group (KSG Support Group), also on Facebook & X (Formally Twitter) . 💪 This is a support group...
24/04/2026

Welcome to Kidney Support Group (KSG Support Group), also on Facebook & X (Formally Twitter) . 💪

This is a support group for anyone who would like to have any form of support or even get to know people who are in similar situations, because together we’re better.

Whether you are a long time sufferer, recently diagnosed, waiting for transplant, received a transplant, are a donor, are a recipient, on dialysis, not on dialysis or even if you just know someone going through any of the above… then this is the group for you.

We have some great members within our Discord who have already been offering great stories and advice so please come and join us and don’t let get the better of you!

Let’s do this!

You can join my discord using the following link 👇.

🔗 chat.kidneysupportgroup.co.uk

dialysis PKD Donor recipient kidneyhealth nkf PKDCharity

Sarah’s Story: Diagnosed with failing kidneys at just 2 years old — but this isn’t the end. 🌟💬From the age of two, Sarah...
24/04/2026

Sarah’s Story: Diagnosed with failing kidneys at just 2 years old — but this isn’t the end. 🌟💬

From the age of two, Sarah Eke’s life has been shaped by hospital visits, treatments, and the daily realities of living with chronic kidney disease (CKD). What could have been a limiting diagnosis became the start of a powerful journey of resilience, adaptation, and quiet strength. She learned to embrace a “new normal,” find victories in everyday moments, and prove that kidney failure doesn’t define your entire story. 

Her honest and inspiring account is a must-read for anyone living with kidney disease, supporting a loved one, or seeking real hope in challenging times.

👉 Read Sarah’s full story here:
https://www.kidneysupportgroup.co.uk/blog/sarah-s-story-i-was-told-my-kidneys-were-failing-at-2-but-this-isn-t-the-end-of-my-story

You are not alone. Drop a ❤️ if this resonates, share in the comments, or tag someone who needs this today.

🟣 Open Letter from Kidney Support GroupToday, we’re sharing something deeply personal from our founder.Kidney disease do...
18/04/2026

🟣 Open Letter from Kidney Support Group

Today, we’re sharing something deeply personal from our founder.

Kidney disease doesn’t just affect the body — it affects families, futures, and everyday life in ways many people never see.

This letter is for everyone living with kidney disease, caring for someone who is, or trying to understand what this journey really looks like. It speaks to the challenges, the resilience, and the need for better awareness and support.

We are building Kidney Support Group to make sure no one feels alone in this journey.

💜 Read the full open letter on our website
💜 Share it to help raise awareness
💜 Stand with our community

Together, we can make kidney health visible.

HealthSupport PatientVoices OpenLetter

🌟 Share Your Story — Inspire Others! 🌟Every kidney journey is unique — and your experience could help someone feel less ...
13/11/2025

🌟 Share Your Story — Inspire Others! 🌟

Every kidney journey is unique — and your experience could help someone feel less alone. 💚

We’re inviting CKD patients to share their personal stories through our Kidney Support Group blog. Whether you’ve just been diagnosed or you’ve been living with kidney disease for years, your voice matters.

🖋️ Complete our quick form and we’ll help turn your story into a blog post to share with the community.

👉 Visit: shareyourstory.kidneysupportgroup.co.uk

💬 Join our friendly chat on Discord too — a space by kidney patients, for kidney patients.

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪 This is a support group for anyone who would l...
29/04/2025

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪

This is a support group for anyone who would like to have any form of support or even get to know people who are in similar situations, because together we’re better.

Whether you are a long time sufferer, recently diagnosed, waiting for transplant, received a transplant, are a donor, are a recipient, on dialysis, not on dialysis or even if you just know someone going through any of the above… then this is the group for you.

We have some great members within our Discord who have already been offering great stories and advice so please come and join us and don’t let get the better of you!

Let’s do this!

You can join my discord using the following link 👇.

https://discord.com/invite/ZcUMwExnJK

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪 This is a support group for anyone who would l...
08/04/2025

Welcome to KSG Support Group, also on Facebook & X (Formally Twitter) . 💪

This is a support group for anyone who would like to have any form of support or even get to know people who are in similar situations, because together we’re better.

Whether you are a long time sufferer, recently diagnosed, waiting for transplant, received a transplant, are a donor, are a recipient, on dialysis, not on dialysis or even if you just know someone going through any of the above… then this is the group for you.

We have some great members within our Discord who have already been offering great stories and advice so please come and join us and don’t let get the better of you!

Let’s do this!

You can join my discord using the following link 👇

https://discord.com/invite/ZcUMwExnJK

Who’s your support network? Do you feel alone?Living with kidney failure can be overwhelming — and some days, it can fee...
08/04/2025

Who’s your support network? Do you feel alone?

Living with kidney failure can be overwhelming — and some days, it can feel like you’re carrying it all by yourself.

There’s the physical side of things, of course… but it’s the emotional weight that can really catch up with you. The quiet moments after a long dialysis session. The cancelled plans. The feeling that others don’t quite understand what you’re going through.

Support can make all the difference — whether it’s family, a partner, a good friend, or even someone you’ve met through this journey. And if you don’t have that right now, please know… you’re not alone. There’s a whole community out here that understands more than you might think.

So we’re asking gently — who’s been there for you? Or maybe you’ve had to be your own support?

Share your thoughts below, and let’s lift each other up. Sometimes just knowing someone else gets it is enough to make the day feel a bit lighter.

Cici, aged just three, taken too soon06.11.21 - 12.01.25 💔👼No parent should ever have to endure this pain. Ciara, just 3...
20/01/2025

Cici, aged just three, taken too soon
06.11.21 - 12.01.25 💔👼

No parent should ever have to endure this pain. Ciara, just 3 years old, was a bright, brave little girl who fought so hard against unimaginable challenges. Despite everything, she filled the lives of those around her with love and light.

Cici battled tirelessly, enduring multiple hospital stays, infections, and setbacks, all while waiting for the kidney transplant that was meant to give her a brighter future. Through it all, her mum and dad were by her side every step of the way, never giving up hope.

On January 12th, 2025, Ciara’s little heart took its last fight. Though her journey was far too short, she leaves behind a legacy of strength, courage, and the love she inspired in everyone who knew her story.

Cici, you have touched the hearts of more people than you will ever know. You will be forever in all of our hearts.

If you’d like to support Ciara’s family during this difficult time, please visit their GoFundMe: https://gofund.me/5ef761bb 🙏

Thank you. x

🌟 Understanding CKD Stages 🌟💡 CKD progresses in 5 stages, measured by GFR:1️⃣ Stage 1: Normal function (GFR ≥ 90) but wi...
04/01/2025

🌟 Understanding CKD Stages 🌟

💡 CKD progresses in 5 stages, measured by GFR:
1️⃣ Stage 1: Normal function (GFR ≥ 90) but with kidney damage.
2️⃣ Stage 2: Mild reduction (GFR 60-89), often no symptoms.
3️⃣ Stage 3: Moderate reduction (GFR 30-59), with fatigue & fluid retention.
4️⃣ Stage 4: Severe reduction (GFR 15-29), noticeable symptoms & prep for dialysis/transplant.
5️⃣ Stage 5: Kidney failure (GFR < 15), requiring dialysis or transplant.

👉 Early detection & lifestyle changes can slow progression. Stay informed, stay strong! 💪💙

🌟 Understanding Chronic Kidney Disease (CKD) 🌟CKD is a long-term condition where the kidneys lose their ability to filte...
03/01/2025

🌟 Understanding Chronic Kidney Disease (CKD) 🌟

CKD is a long-term condition where the kidneys lose their ability to filter blood effectively. It progresses in 5 stages, measured by eGFR:

1️⃣ Stage 1: ≥90 (Normal with damage)
2️⃣ Stage 2: 60-89 (Mild)
3️⃣ Stage 3a: 45-59 (Mild-Moderate)
4️⃣ Stage 3b: 30-44 (Moderate-Severe)
5️⃣ Stage 4: 15-29 (Severe)
6️⃣ Stage 5:

A Second Chance at Life Without Dialysis ✨Did you know that a preemptive kidney transplant can save someone from the str...
02/01/2025

A Second Chance at Life Without Dialysis ✨

Did you know that a preemptive kidney transplant can save someone from the struggles of dialysis altogether? 💔 It’s a lifeline for those with severe kidney failure—giving them hope, better health, and more time to live fully. 💪💙

With the option of a living donor, this life-changing surgery can happen before dialysis is ever needed. It’s about timing, courage, and compassion. 🫶 Let’s spread awareness about this life-saving option and support those fighting kidney disease.

👉 Learn more and help make a difference.

Address

Blyth

Website

http://chat.kidneysupportgroup.co.uk/

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