01/03/2026
1 March is Awareness Day.
Glanzmann Thrombasthenia — or Glanzmann's — is one of the rarest of the rare , affecting around 2 in a million people. Timely diagnosis is essential to ensure the right treatment and management. But even then, bleeding symptoms remain problematic and can impact all areas of life.
Our Glanzmann's 360 (GT360) study explored the lived experience of Glanzmann Thrombasthenia with almost 120 participants. Most had experienced at least one bleed in the previous week. Most women experienced heavy and/or prolonged periods. Anaemia and fatigue were common.
There is still more to do to ensure that everyone impacted by Glanzmann's can live well.
If you live with Glanzmann Thrombasthenia or care for someone with Glanzmann's, what are the most important things you want other people to understand?
