East of England SDE

12/11/2025

At the East of England SDE, listening to our diverse community is at the heart of what we do. From a recent survey, we gathered key views on using NHS data for research, take a look at the insights.

Have thoughts on NHS data access and research?
Tell us by completing this quick and anonymous survey-
https://shorturl.at/NzdL8

11/11/2025

Your NHS data is shaping the future of healthcare!

Discover how anonymised health data drives life-changing research and what it means for your care, privacy, and choices.

Join our free East of England webinar:

Using NHS Patient Data for Research- What It Means for Patients

Date : 26 Nov

Learn how data improves care, who can access it, and get your questions answered in a live Q&A.

Register now : tinyurl.com/mry5ec3h

10/11/2025

Are you an NHS staff member in the East of England?

We, at the East of England SDE, would love to hear your views on how patient data is used for research. Your feedback will help us create better tools and resources to support staff and patients.

💬 Take our short survey: https://shorturl.at/5KI4u

07/11/2025

In the , we are committed to engaging with diverse communities to ensure every voice is heard. We welcome NHS England's Ethnicity Recording Improvement Plan, a significant step forward in tackling health inequalities and building trust between patients and the healthcare system.

The plan rightly recognises that staff training alone is not enough. Improving the quality of ethnicity data also requires stronger systems and inclusive approaches that enable patients to share their information confidently.

NHS England » Ethnicity Recording Improvement Plan

07/11/2025

It’s Diabetes Awareness Month!

Patient data plays a vital role in improving care for everyone. By accessing data safely through controlled environments like the , the NHS can develop solutions and innovations that enhance care and outcomes for the public.

If you’d like to learn more about how NHS data supports people living with diabetes, check out this short video from : https://youtu.be/vYCUSSperMo?si=ntpi8T9TO2E0hHqJ

You can also watch or listen to the video in Welsh, Punjabi, Urdu, Polish, and Romanian.

Mandeep is looking forward to her first baby, but she’s been struggling to keep on top of her diabetes, and finds the constant testing stressful. Data from o...

06/11/2025

Be the public voice in NHS data decisions!

The East of England Secure Data Environment (SDE) is looking for members of the Data Access Committee (DAC) to help shape how NHS patient data is used for research.

Why it matters:

* 50% of DAC members are from the public, ensuring that community perspectives guide decisions.
* Members review and discuss project applications, helping to decide whether access to NHS data is secure, ethical, and in the public interest.
* This is a unique opportunity to contribute to the responsible use of health data and have a real impact on research benefiting patients and communities.

Get in touch or find out more shorturl.at/UmmlF

06/11/2025

Understanding Patient Data recently commissioned research exploring how Integrated Care Systems (ICSs) across England are currently using and sharing patient data and how this data could be better harnessed to improve health services for local communities. Learn more- https://understandingpatientdata.org.uk/ics-data-research

Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.

05/11/2025

Featured among 's 50 Most Influential Black, Asian and Minority Ethnic People in Health: Rising Stars, Asma Nafees shares her perspective on how safe access to through SDE's can help reduce health inequalities and improve outcomes for patients.
Congratultaions, Asma, a truly well-deserved recognition 💐

31/10/2025

A huge thanks to all the amazing people who attended our October , Using NHS Patient Data for Research – What It Means for Patients. 🙏

We have another webinar in November, and anyone aged 16 or over living in the East of England is welcome to sign up!

31/10/2025

We’re pleased to share that Mark Avery, Director of Health Informatics at Cambridge University Health Partners and Health Innovation East and the Programme Director for the East of England SDE will be presenting on the platform at .

The East of England SDE brings together depersonalised NHS data from organisations across the region to enable secure, scalable, and ethical use of health data for research and innovation, within an ISO27001-accredited platform built on AWS and aligned to the SATRE reference architecture for TREs.

I’m delighted to announce that Mark Avery, Director of Health Informatics at both Cambridge University Health Partners and Health Innovation East, will be presenting on “The East of England SDE” at . 🌟 Register here (limited capacity): https://lnkd.in/ezVpN5a7 📅 Date: Wednesd...

30/10/2025

Dr Venkat Reddy, Consultant Neurodevelopmental Paediatrician and Officer for Digital Health and Technology at the Royal College of Paediatrics and Child Health, explains why accessing health data in secure environments is vital for health research,especially when it can help shape a healthier future for our young generation. See his thoughts here.

30/10/2025

Community matters!
We asked Alex April Fianza why involving people in NHS data projects like the East of England SDE is so important. Her take? Transparency, diverse voices, and are key to better health outcomes. Check out the poster to see more!