06/08/2025
Today is a day that ME/CFS sufferers have dreamt of!
A large study has announced confirmation that ME/CFS is indeed largely caused by genes which affect both the immune system AND the nervous system opening the door for further research and potential treatment.
For many, including myself, this is a moment of validation. It is a tragic injustice that ME/CFS hasn't been taken more seriously. The legacy of 'yuppie flu' means that sufferers are still often medically gaslit or largely ignored and left to get on with life the best they can. From today, that has to change and how welcome that change is!
My prediction is that, in time, scientists will also link ME/CFS with a grouping of comorbidities which include hyper mobility, EDS, ADHD, ASD, MCAS, POTS, PCOS, FND, Fibromyalgia and IBS to name a few...
In the 20 years that I've been privileged to work with clients who have chronic illness, and being all too familiar with the above list myself, this cluster of diagnosis' always seems to travel in the company of others on the list. The connection, I believe, will be genetic and also have a relationship to mitochondria (the 'rechargeable' part of our cells).
I can't wait to find out where all this leads!
https://www.decodeme.org.uk/initial-dna-results/?utm_source=brevo&utm_campaign=Aug%202023%20newsletter&utm_medium=email
