Cardiff Lupus Group

07/03/2026

💜 Great news for the lupus community! Results published yesterday show that Obinutuzumab, a new treatment recently approved by NICE for lupus nephritis, also significantly reduces non-kidney lupus disease activity. Really promising progress in improving outcomes for people living with lupus. Stay tuned for more 🤓

Breaking lupus research news!

A Phase 3 study published in the The New England Journal of Medicine found that Gazyva® (obinutuzumab) from Genentech significantly reduced lupus disease activity and lowered glucocorticoid use in people with systemic lupus erythematosus (SLE).

Learn more about this breakthrough here: https://bit.ly/40d1DPB

03/03/2026

❤️ Lupus and heart health are closely connected 🦋. Understanding your risk and taking preventive steps can help protect your heart and reduce complications.

📖 Check out HeartLife Foundation and Lupus Canada’s Cardiovascular Health & Lupus Resource Guide (PDF) in the link below to learn more about keeping your heart healthy.

https://www.lupuscanada.org/lupus-and-heart-health/

02/03/2026

02/03/2026

Thank you!! 💜💜🏴󠁧󠁢󠁷󠁬󠁳󠁿

To mark Autoimmune Awareness Month, Cardiff Castle has been lit in purple in solidarity with the millions affected by autoimmune diseases. 💜
https://orlo.uk/o2YHH

01/03/2026

Dydd Gŵyl Dewi Hapus! 🏴󠁧󠁢󠁷󠁬󠁳󠁿

If there’s a daffodil on your jumper or a Welsh cake within reach, you’re doing it right. 🌼

Today we’re proud to be celebrating Cymru. Our language, our communities and all the little things that make Wales, Wales. ❤️

28/02/2026

💚 It’s Rare Disease Day! 💜

Lupus affects around 1 in 1,000 people in the UK, that’s approximately 50,000 people living with the condition. Around 90% of those diagnosed are women, most commonly between the ages of 15 and 55*.

❗️Raising awareness matters. Early recognition and support can make a real difference 💚

* Reference: Ellis J et al. Changes in incidence and prevalence of systemic lupus erythematosus, 1990–2020. Lupus Science & Medicine. 2024;11:e001213. Study using the Clinical Practice Research Datalink (CPRD).

🌍💜 Today we stand with the 300 million people living with a rare disease. We are united with their families, friends, caregivers, advocates, and the medical professionals, researchers and organisations that working tirelessly to build a more equitable future for our community.

Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.

Thank you to everyone who’s taken part, whether you’ve lit up your home, shared your story, joined an event, or supported someone you love. By standing together we’re proving that our community is strong, united, and truly more than anyone can imagine. ✨

👉 Learn more and discover ways you can still get involved: https://go.rarediseaseday.org/NEWS

28/02/2026

❄️🧤 Maddie, diagnosed with at 20, shares about ’s phenomenon, check it out:

28/02/2026

🌟 Swansea Bay’s pelvic health physiotherapy service is running free community-based educational sessions about pelvic floor and health.

The sessions are available to women aged 16 and over, and supporting partners are also welcome to attend too. Full information ⬇️⬇️

Swansea Bay’s pelvic health physiotherapy service is running free community-based educational sessions about pelvic floor and health.

The sessions are available to women aged 16 and over, and supporting partners are also welcome to attend too.

They will cover information on bladder symptoms, such as leaking when you're laughing, jumping or exercising, or bladder overactivity, bowel problems such as faecal incontinence, prolapse symptoms, and pain with in*******se.

The team will also talk about menstrual health and pelvic floor symptoms to look out for in menopause.

The information provided will be relevant to women at various life stages.

Upcoming sessions will be held at:
👉 Tesco Fforestfach’s community room
👉 Online session

You can find all of the dates and can book onto any of the sessions here: https://www.eventbrite.co.uk/o/pelvic-health-physiotherapy-sbuhb-119936844861

20/02/2026

📺🏴󠁧󠁢󠁷󠁬󠁳󠁿 LIVE Now: Lleswyl 2026 | Wales’ Inclusive Wellbeing Festival – Live Music & Conversation

https://www.youtube.com/live/qledVO23GGM?si=SVxS5BPeNSdK-s1f

Leigh enjoyed Lleswyl 2025 so much he wrote and article about it - please enjoy: https://bylines.cymru/arts-and-culture/lleswyl-2025-daring-to-dream/

18/02/2026

This Friday, join the charity 'Daring to Dream' and their wellbeing festival: Lleswyl 2026 🌟

Broadcast live from Penarth, it brings live music and honest conversations about emotional health to people across Wales and beyond — streamed on YouTube.

💻 Join online with the link below. See you there!

Juliette is a songwriter, living for many years with complex ill health and having accessibility to great musicians is really important to her.

18/02/2026

When should you see a GP about your skin?

Book an appointment if you notice:

• A new mole
• A mole that changes in size, shape or colour
• Irregular or uneven borders
• Multiple colours within one mole
• Bleeding, itching or crusting
• A mark that looks different from your other moles

Melanoma does not always cause pain in its early stages.

A GP can assess the area and refer you for further checks if needed.

Learn more about how to check your skin and the ABCDE signs of melanoma here:
🔗 https://melanomauk.org.uk/skin-checks-and-abcde-of-melanoma/

If in doubt, get it checked.

17/02/2026

📺 Thank you, Bonnie, for being so open about living with while sharing such a special moment: finding your wedding dress. You looked absolutely stunning, what a beautiful choice! 🌟

⚠️ This video includes an open discussion of pregnancy and miscarriage, which some may find upsetting. Please take care while watching and feel free to skip it if now isn’t the right time. If you’d like someone to talk to, please get in touch with LUPUS UK: 📧 HeadOffice@LupusUK.org.uk or ☎️ 01708 731251.