Cardiff Lupus Group

05/04/2026

🐣 Happy Easter weekend to everyone celebrating.

We know that bank holidays can be tough if you're experiencing problems with your mental health.

However you're feeling this weekend, support is available if you need it. 💙

Find support 👉 https://bit.ly/2LLhXUF

01/04/2026

From today, NHS Wales introduces Listening to People – a stronger, clearer and more compassionate way of handling concerns.

As Sue Tranka, Chief Nursing Officer for Wales, explains: “Raising a concern is not only your right – it is essential to improving care. You will not be treated differently for speaking up. Every voice matters.”

Find out what’s changing and how to raise a concern 🔗 ⬇️

01/04/2026

30/03/2026

💊 Have you collected your prescription yet? The Easter bank holidays are coming up and most local pharmacies will be closed on Good Friday (3 April) and Easter Monday (6 April). Make sure you get your prescription in time 😊

The Easter bank holidays are coming up and most local pharmacies will be closed on Good Friday (3 April) and Easter Monday (6 April).

Remember to check and order your repeat prescription 7 days before you need your medication to:

✅ Save you stress
✅ Make sure your medication is ready on time
✅ Help the NHS reduce waste
✅ Support pharmacy teams under pressure

30/03/2026

27/03/2026

27/03/2026

🗣️ Join the CARE Lived Experience Collective

⭐️ Invitation from the Centre for Adult Social Care Research (CARE): Are you passionate about improving adult social care in Wales? We’d love to hear from you!

Who are we looking for?

-People who use or have used adult social care
-Unpaid carers who support someone who uses social care

As a member, you will:
💷 Be paid £27.50 per hour for your time
📅 Attend 3–4 meetings per year
🤝 Be part of a supportive group influencing social care research in Wales

Interested?
📧 Contact us to apply: CARE@cardiff.ac.uk

🔗 Find out more: https://careresearchwales.org/care-lived-experience-collective-2/

22/03/2026

The Menopause Café in East Cardiff Cluster offers a warm, welcoming space where open and honest conversations about menopause are encouraged.

This isn’t a medical session - just a relaxed, informal gathering where people living in East Cardiff can share experiences, ask questions, and connect with others who truly understand. Whether you’re going through menopause yourself or supporting someone who is, you’re welcome here.

- Help break the stigma
- Build confidence through conversation
- Feel supported and less alone

🗓 Last Tuesday of every month (launch event Tuesday, March 24 at 10am)
📍 Maelfa Hub, Llanedeyrn
☕ Drop in anytime - no booking needed

Come along for a chat, a cuppa, and a sense of community.

22/03/2026

💜 Congratulations to actress Jess Impiazzi on her pregnancy 🎉

Very sorry to hear about her difficult journey to a lupus diagnosis. Research shows it can take around six years or more, often involving multiple specialists, before people receive answers — which is simply too long.

🦋 It’s so important we all keep raising awareness of lupus and ensure people are listened to and diagnosed sooner.

# Actress Calls for NHS Reform After Personal Health Struggles. # # Jess Impiazzi shares her experience battling lupus and urges change.

22/03/2026

💻Online pilot course: Living Well with Osteoporosis

📅 Starts Tuesday 5 May |⏰ 13:00 – 15:30 (6 weekly sessions)

Friendly online sessions designed to help you:
✔️ Manage symptoms
✔️ Build confidence
✔️ Support your wellbeing

Developed in collaboration with Dr I. Singh, National Clinical Lead for
Bone Health in Wales.

As a pilot programme, your experiences will help shape future osteoporosis support in Wales.

📲 Book your free place: Living Well with Osteoporosis

📧 Got a query? Email: eppcymru@wales.nhs.uk

22/03/2026

Are you a parent or carer of a young person with who would like to meet others going through a similar experience?

Come along to our next Virtual Parents and Carers Group!

📅: Thursday, 26th March
🕕: 7:00pm - 8:00pm
📍: Zoom

You will have the opportunity to chat, ask questions, get support, and find out more about lupus in children and young people.

If you are interested in joining, please register by visiting https://lupusuk.org.uk/youth-events/

For more information, please contact support@lupusuk.org.uk

21/03/2026

Have you ever been affected by cross-border arrangements between England and Wales in relation to healthcare?  The Welsh Affairs Committee is conducting an inquiry into cross-border healthcare. We would like to hear from people who have had to travel across the England-Wales border to acce...