Cardiff Lupus Group

13/01/2026

✨ New year, fresh start! Join our first online support group meeting of 2026. Everyone is welcome—newly diagnosed or long-time members. Let’s catch up, share, and look ahead together 🦋

🗓 When: Wednesday, 28th January at 7pm
💻 Zoom link: dalila.volunteer@lupusuk.org.uk

See you there!

13/01/2026

We are now hosting a virtual event once every two months for Parents/Carers and Young People! 💜

You can find all our upcoming events for 2026 on our website. To find out more, head over to: https://lupusuk.org.uk/youth-events/

📅 Our next Parents / Carers meeting will take place on January 29th, 2026.

To keep updated with Young People Lupus or Parents / Carers Groups, you can sign up to our mailing lists using the same link above.

01/01/2026

The New Year can stir up all kinds of complicated feelings, especially if you’re struggling at the moment. Add in the pressure to celebrate and it can all just feel like too much.

If you find this a hard time of year, you're not on your own – we’ll be here all night long 💚

29/12/2025

If you are concerned about your we are here on 0800 132 737 and email call@helpline.wales for support and advice. AD

27/12/2025

🎄🎅🎆 If you need a pharmacist over the festive period, here are the Christmas 2025 and New Year 2026 pharmacy opening hours for Swansea & Neath Port Talbot areas: https://sbuhb.nhs.wales/urgent-care-out-of-hours/pharmacy-rotas/

24/12/2025

☃️Nadolig Llawen☃️
Our Helpline will be closed from 1:00pm on Wed 24 Dec until Fri 2 Jan, but you can get support with our other online services: https://www.arthritis-uk.org/information-and-support/support-and-resources/

23/12/2025

We have seen some posts sharing our details for over the festive period. We are very grateful for this, as this helps us to support more people in Wales with mental health worries.
Some of the organisations have included our text number which we no longer operate, we will put our email below on this post for anyone who would like to email in. 👇
This is also a 24/7/365 service as well as calling in.
☎️Call 0800 132 737
📧Email CALL@helpline.wales
💻 https://callhelpline.org.uk
-NPC😊

22/12/2025

☃️ ✨ Wishing you a beautiful festive season, filled with peace, and kindness ✨ Thank you to our lovely group members for making 2025 a year of meaningful connections in our lupus community.

💜 Let’s step into 2026 with hope! Some 2025 Lupus Highlights:

1️⃣ Lupus UK turns 35 – Launched new plans to shape the future of lupus research, care, and support.

2️⃣ New STRATIFY Lupus trial – Uses a blood marker to help find the right treatment for people whose lupus hasn’t responded to standard medicines.

3️⃣ Nobel Prize – Awarded for research on overactive immune cells, directly relevant to autoimmune diseases like lupus.

4️⃣ CAR-T therapy progress – Some patients reached deep remission and could reduce other medications.

Here’s to a 2026 of hope, progress, and better care for everyone with lupus! 💜🎉

21/12/2025

21/12/2025

The cold, harsh weathers within the UK can affect anyone, but people with long-term health conditions like are especially at risk.

For some, low temperatures, dry air, and seasonal infections can worsen symptoms.

Here are some tips for staying well during winter.

1. Dress in layers
2. Enjoy warm drinks
3. Use reusable hand warmers
4. Keep an eye on the weather
5. Protect exposed skin
6. Purchase a humidifier
7. Use extra blankets
8. Use warm inserts

18/12/2025

Don't forget to order your repeat prescription in plenty of time so you don't run out over the festive period 🎄

18/12/2025

🦋 Thank you, Chelsea, for sharing your experience of living with lupus 💜 your story is inspiring and will make a meaningful difference to others! 🎥

Chelsea, our Young People and Family Support Officer, has shared their experience on what it's like to live with as a young person. You can watch their presentation on our YouTube Channel () or by clicking the link below.

🔗https://youtu.be/StdzyINaI8M