Cardiff Lupus Group

Cardiff Lupus Group If you have lupus, or care for someone who does, please join us!

Welcome to our lupus community, bringing together members from Cardiff, Bridgend, Port Talbot, Neath, Swansea, Barry, Newport, Pontypridd, Pontypool, Bristol, and surrounding areas.

This Friday, join the charity 'Daring to Dream' and their wellbeing festival: Lleswyl 2026 🌟Broadcast live from Penarth,...
18/02/2026

This Friday, join the charity 'Daring to Dream' and their wellbeing festival: Lleswyl 2026 🌟

Broadcast live from Penarth, it brings live music and honest conversations about emotional health to people across Wales and beyond — streamed on YouTube.

💻 Join online with the link below. See you there!

Juliette is a songwriter, living for many years with complex ill health and having accessibility to great musicians is really important to her.

18/02/2026

When should you see a GP about your skin?

Book an appointment if you notice:

• A new mole
• A mole that changes in size, shape or colour
• Irregular or uneven borders
• Multiple colours within one mole
• Bleeding, itching or crusting
• A mark that looks different from your other moles

Melanoma does not always cause pain in its early stages.

A GP can assess the area and refer you for further checks if needed.

Learn more about how to check your skin and the ABCDE signs of melanoma here:
🔗 https://melanomauk.org.uk/skin-checks-and-abcde-of-melanoma/

If in doubt, get it checked.

17/02/2026

📺 Thank you, Bonnie, for being so open about living with while sharing such a special moment: finding your wedding dress. You looked absolutely stunning, what a beautiful choice! 🌟

⚠️ This video includes an open discussion of pregnancy and miscarriage, which some may find upsetting. Please take care while watching and feel free to skip it if now isn’t the right time. If you’d like someone to talk to, please get in touch with LUPUS UK: 📧 HeadOffice@LupusUK.org.uk or ☎️ 01708 731251.

💛🧡 The UK Sepsis Trust's 'Support & Connect sessions' for this month:
17/02/2026

💛🧡 The UK Sepsis Trust's 'Support & Connect sessions' for this month:

17/02/2026

Did you know that 1 in 3 people with experience Raynaud's?

Here are some symptoms to look out for in your fingers and/or toes:
- Colour change when cold, anxious or stressed
- pain
- numbness
- pins and needles

If you experience any of these symptoms, we recommend booking an appointment with your GP.

For more information, visit https://www.nhs.uk/conditions/raynauds/

11/02/2026

✈️ Thinking of a sunshine getaway or organising your next trip for work? A little extra planning can help you stay safe while you’re away. Before you go, check that your travel medicines and vaccinations are right for you. If you’re taking immunosuppressants (for example after a kidney transplant or for an autoimmune condition), some live vaccines may not be suitable.

Up-to-date information on which vaccines are needed to travel to different areas is available from your GP practice or local pharmacy travel clinic. Remember to make an appointment well in advance as it can take a few weeks to arrange.

You can also check the list below to see if the vaccinations you have been advised to receive before your holiday are safe for you.

Find out more about travel medicines here 👉 https://kidneycareuk.org/kidney-disease-information/treatments/medicines-for-chronic-kidney-disease-ckd/patient-info-travel-medicines/

11/02/2026

Sunbeds are often framed as a personal choice. But the impact goes far beyond the individual.

Sunbeds expose skin to very high levels of UV radiation. That exposure damages DNA and increases the risk of melanoma and other skin cancers. Evidence shows the risk is significantly higher when sunbed use starts at a young age.

That’s why sunbeds are increasingly part of public health discussions about prevention and protection.

A tan isn’t a sign of wellbeing. It’s a visible response to skin damage, and repeated damage increases long-term risk.

As conversations continue about how we better protect people from avoidable harm, one thing is clear: no tan is worth the risk.

What do you think should change when it comes to sunbed use?

💡From the latest MSK Network newsletter: A new multidisciplinary team (MDT) meeting focused on lupus has been set up. Th...
09/02/2026

💡From the latest MSK Network newsletter: A new multidisciplinary team (MDT) meeting focused on lupus has been set up. These meetings bring together nephrology and rheumatology teams and are available across all health boards. They allow discussion of more complex lupus cases and provide input from other specialists involved in lupus care.

➡️ If you’d like to keep up with updates like this, you can subscribe to the National Strategic Clinical Network for MSK Conditions newsletter here: https://performanceandimprovement.nhs.wales/functions/networks-and-planning/musculoskeletal-conditions/

09/02/2026

Sometimes, all it takes is one conversation to brighten your day. 📞✨

At Swansea Mind, our Befriending Calls service is here to remind you that you’re never alone. Whether you want to share a story, talk about your day, or just hear a friendly voice, our trained volunteers are ready to listen.
Remember:
• ✅ You don’t need to be in a crisis to call.
• ✅ It’s a safe, supportive space for everyone.
• ✅ Regular calls help build lasting connections.
Small talk can lead to big changes. Reach out today!
📍 How to get involved:
📞 Call us at: 01792 64299
📧 Email us at: admin@swanseamind.org.uk

04/02/2026
🩸 People living in the Vale of Glamorgan can now borrow blood pressure monitors from their local library. The scheme is ...
02/02/2026

🩸 People living in the Vale of Glamorgan can now borrow blood pressure monitors from their local library. The scheme is similar to the one already available in Cardiff Hubs and Libraries, helping more people across Cardiff and Vale to monitor their blood pressure at home. Learn more about it ⬇️

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https://www.dewis.wales/ResourceDirectory/ViewResource.aspx?id=24498

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