Cardiff Lupus Group

19/11/2025

Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?

Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!

This survey should take around 10 minutes to complete. To take part, click the following link: https://app.onlinesurveys.jisc.ac.uk/s/leeds/inschool-needs-assessment-1

17/11/2025

🌟 Dr. Yuz has already completed 3 of the marathons: Cape Town 🇿🇦, Antarctica 🇦🇶, and Perth 🇦🇺👏🏻👏🏻

If you’d like to learn more about the challenge, the fundraising, or to donate, please check the link in the post below ⬇️🦋

Dr Yuzaiful Yusof, Associate Professor and Consultant Rheumatologist at Leeds is taking on the ultimate challenge of The Great World Race to raise vital funds for Lupus UK and Sjögren’s UK! 💜

Dr Yusof will be running 7 Marathons across 7 Continents in just 7 days, between 15–21 November. 🌍

We are truly grateful for Dr Yusof’s support and wish him all the best for this incredible challenge!! If you would like to support Dr Yusof, you can visit his fundraiser here: https://gvwhl.com/VZWJS

17/11/2025

17/11/2025

Word of the Week - Nephritis

Nephritis (also called glomerulonephritis) is a group of diseases that cause inflammation (swelling) of the nephrons. This can reduce your kidneys’ ability to filter waste from your blood.

Learn more online: https://www.kidney.org.uk/helpline-leaflets

Call our Freephone Helpline: 0800 169 09 36

Our Helpline is open from Monday to Thursday: 08:30 am - 5:00 pm and Friday: 08:30 am - 12:30 pm.

16/11/2025

It’s not a syndrome anymore, it’s Sjögren’s disease. Backed by scientific consensus, driven by patient voices, and acknowledging its systemic seriousness, this change matters. Retiring outdated terms like ‘secondary Sjögren’s’ unifies global terminology and ensures the condition is recognised for what it truly is: a complex autoimmune disease that deserves visibility, respect, and research. With our newly re‑established medical panel, we are starting the process of ensuring all our resources reflect this updated terminology, so our community has access to the most accurate and relevant information.

16/11/2025

Dr Nav Masani, Clinical Lead Trustee for Daring to Dream, talks to Sian Lloyd, about medical staff embracing Daring to Dream's focus on emotional support as…

09/11/2025

🆕 A new AP article shares Ruth’s lupus journey and the latest breakthroughs helping scientists better understand what drives the disease. Every step forward brings hope for improved treatments 💜

It's one of medicine's biggest mysteries — why sometimes our immune system attacks our own bodies. Autoimmune diseases affect as many as 50 million Americans and millions more worldwide.

01/11/2025

When someone coughs or sneezes the virus can get onto surfaces and objects that we may then touch.

Once on our hands the virus can get into our body through the eyes, nose and mouth. We may also pass it onto someone else.

Washing hands regularly with soap and water for 30 seconds gets rid of viruses such as colds, flu and other infections. It is a critical step in stopping yourself and others from becoming ill.

You should wash your hands:
• after using the toilet
• after blowing your nose, coughing or sneezing
• after using public transport
• after coming back home from shopping
• before and after eating or handling food
• after touching animals or pets

26/10/2025

📩 Did you know that one of the ways you can raise money for Kidney Care UK at no cost to yourself is to send us your used stamps? We have been collecting stamps since in 1978 and still accept them today! You can request your free stamp collection box from here: https://kidneycareuk.org/get-involved/fundraising-ideas-kidneycareuk/donate-stamps-and-raise-funds-for-kidney-patients/

A huge thank you to everyone who has donated their used stamps to us for over 40 years!

25/10/2025

🟢 Grow Cardiff is offering free indoor, nature-inspired craft sessions this autumn and winter for individuals living in, or registered with a GP in, Riverside, Canton, Pontcanna, Ely, or Caerau.

The weekly sessions provide an opportunity to take part in creative activities, enjoy conversation, and share freshly made hot soup.

⏰Dates: Thursdays, 23 October 2025 – 26 March 2026 Time: 1.00 – 3.00 pm
📌Venue: Wesley Methodist Church Hall, 2A Nottingham Street, Cardiff, CF5 1JP
(No sessions on 25 December 2025, 1 January, or 19 February 2026.)

Places are limited and booking is essential. To reserve a place, contact Ali on 07594 761 669 or email ali@growcardiff.org

(Info reposted from C3SC)