Cardiff Lupus Group

19/04/2026

💡'New research from Swansea University has identified significant delays and diagnostic barriers affecting rheumatology patients in Wales'

Link:

New research from Swansea University has identified significant delays and diagnostic barriers affecting rheumatology patients in Wales.

19/04/2026

𝗢𝗻𝗲 𝘀𝗼𝗻𝗴. 𝗦𝗲𝘃𝗲𝗻 𝘄𝗲𝗲𝗸𝘀. 𝗔 𝘄𝗵𝗼𝗹𝗲 𝗻𝗮𝘁𝗶𝗼𝗻 𝗹𝗶𝘀𝘁𝗲𝗻𝗶𝗻𝗴. 🎶🏴󠁧󠁢󠁷󠁬󠁳󠁿

We are so excited to announce the launch of ‘𝗛𝗲𝗿𝗲 𝗧𝗼𝗴𝗲𝘁𝗵𝗲r’, a charity single by the incredible 𝗟𝘆𝗹𝗶𝗮 𝗬𝗼𝘂𝗻𝗴 for Daring to Dream.

This song is more than music—it’s a bridge to understanding the emotional health of those living with illness. We want you to help us launch it!

📍 𝗪𝗵𝗲𝗿𝗲: Norwegian Church Arts Centre, Cardiff Bay
📅 𝗪𝗵𝗲𝗻: Thursday 23rd April, 4:30 pm - 6:30 pm
🍹 𝗘𝘅𝗽𝗲𝗰𝘁: Mocktails, wonderful support from Tenovus Cancer

Supported by 𝗖𝗮𝗿𝗱𝗶𝗳𝗳 ‘𝗦𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗨𝘀’ choristers, and a chance to feature in our community recording along with Lylia herself!

Help us kick off the #𝗛𝗲𝗮𝗿𝗨𝘀𝗦𝗶𝗻𝗴𝗪𝗶𝘁𝗵𝗨𝘀 campaign as we head toward our annual Ball on June 12th.

Let’s make sure no one has to face the emotional impact of illness alone.
✨ Limited spaces available! Book now: https://heretogether.eventbrite.co.uk



Kidney Wales TikTok Kidney Warrior Libby Humphris Leigh Manley Tenovus Cancer Care / Gofal Canser Tenovus Sing with Us Ray of Light Wales Cancer Support Leigh Manley Lupus UK Cardiff Lupus Group Cardiff Quaynotes Choir Rhianon Passmore MS Friends of the Elderly Naomi Sian Music Weddings and Events Musician Action Deafness Cymru | Community Group Cwm Taf Morgannwg University Health Board Princess of Wales Hospital -includes Maesteg Hospital and Glanrhyd Hospital Cllr. Heidi Bennett, Pen-y-fai and Court Colman Coleg Penybont - Bridgend College Hayley Penn Josie Ash Hamed Amiri Latch Welsh Children's Cancer Charity Hapus - For our mental wellbeing With Music In Mind Mind Cymru

19/04/2026

New Survey! Your voice matters, make it count. Please check the post below for the link:

18/04/2026

⏰ We’re less than a month away from World Lupus Day! 🦋

Join us in raising lupus awareness in your community, city, or online. Every voice counts! For some ideas visit https://lupusuk.org.uk/world-lupus-day-may-10th/ but any creative way to show support is welcome 🤩

🟣 Share and help make lupus visible 🟣

14/04/2026

💻Online pilot course: Living Well with Osteoporosis

📅 Starts Tuesday 5 May |⏰ 13:00 – 15:30 (6 weekly sessions)

Friendly online sessions designed to help you:
✔️ Manage symptoms
✔️ Build confidence
✔️ Support your wellbeing

Developed in collaboration with Dr I. Singh, National Clinical Lead for
Bone Health in Wales.

As a pilot programme, your experiences will help shape future osteoporosis support in Wales.

📲 Book your free place: Living Well with Osteoporosis

📧 Got a query? Email: eppcymru@wales.nhs.uk

13/04/2026

Are you aged 18-69 with a diagnosis of Post-Thrombotic Syndrome? We are looking for volunteers to take part in an anonymous survey about your experience of exercise. Click here to find out more and to take part https://bit.ly/477RSpr

13/04/2026

🌸 💉 This Spring/Summer, an extra booster dose of the Covid-19 vaccine will be offered to the most vulnerable people across our communities.

The extra booster has been recommended by the independent Joint Committee on Vaccination and Immunisation (JCVI), which advises UK governments, and accepted by Welsh Government.

The booster is offered as a precaution so that those who are most at-risk of becoming seriously ill if they catch Coronavirus can keep a high level of immunity. Protection from previous vaccination can reduce over time, and
the spring booster is recommended to strengthen your protection and help keep you well.

❓ Who gets it?
• Adults aged 75 years and over
• Residents in a care home for older adults
• Individuals aged 6 months and over who are immunosuppressed

📅 When will I receive a vaccine?
The COVID-19 Spring/Summer programme will run between April and June 2026. There will be some limited flexibility into July, for those who are unable to receive a vaccination within the main programme window, due to illness.

📨 How and when will I hear?
You will be sent a letter from the Swansea Bay UHB Immunisation Team with an appointment at a GP surgery, a local community pharmacy, a vaccination centre or on board our Immbulance.

The appointment being offered is for the Covid-19 spring/summer 2026 booster.

You may have already heard from us, appointments will begin from early April 2026.

But don’t worry if you don’t hear from us straight away, appointments will be given as we work through the eligibility groups.

There is no need to contact your GP surgery or the health board. If you are eligible, you will be sent an appointment.

❌ How can I cancel or change my appointment?
If you are unable to make your appointment, please refer to your invitation letter and contact the Immunisation Booking Team on 01639 862323.

Further information about the spring/summer 2026 Covid-19 booster programme will be added to this page as and when it becomes available - https://sbuhb.nhs.wales/vaccinations-in-swansea-and-neath-port-talbot1/vaccine-information/covid-19-booster-spring-summer-2026/

09/04/2026

💙 Looking forward to this new webinar on Lupus Nephritis 💙

📣 SpR Webinar – Lupus nephritis: Management beyond the guidelines

Join us on Tuesday 5 May (19:00–20:00) for an interactive webinar designed for renal trainees.

Prof Siân Griffin (Consultant Nephrologist, University Hospital of Wales) will present four real-world lupus nephritis cases, exploring decision-making and management approaches beyond standard guidelines.

A great opportunity to:
✔ Learn from complex cases
✔ Explore practical clinical decision-making
✔ Engage in interactive discussion with peers

🔗 Register now: https://us06web.zoom.us/webinar/register/WN_pZ7vrZmcQLOriwNq-PUYNg #/registration

09/04/2026

Thrombosis UK is conducting a strategic review in 2026 to better serve those affected by venous thromboembolism (VTE). Please complete this survey by 10th April 2026. It takes under 5 minutes and will help shape our future!

👉 https://www.surveymonkey.com/r/SHDXHQF

Thank you for your support! 💙

05/04/2026

🐣 Happy Easter weekend to everyone celebrating.

We know that bank holidays can be tough if you're experiencing problems with your mental health.

However you're feeling this weekend, support is available if you need it. 💙

Find support 👉 https://bit.ly/2LLhXUF

01/04/2026

From today, NHS Wales introduces Listening to People – a stronger, clearer and more compassionate way of handling concerns.

As Sue Tranka, Chief Nursing Officer for Wales, explains: “Raising a concern is not only your right – it is essential to improving care. You will not be treated differently for speaking up. Every voice matters.”

Find out what’s changing and how to raise a concern 🔗 ⬇️