Myles' Journey, Carlisle (2025)

10/11/2025

💛🎗 MYLES UPDATE 🎗💛

It’s been a rough week for us 😔

Last Thursday, Myles fell poorly again with another ear infection, this time in his left ear. I’ve honestly lost count of how many he’s had over the past few months 💔 Each one seems worse than the last.

Thankfully, the doctor we saw this time was amazing 🙏 He prescribed antibiotics and ear drops, took swabs, and referred Myles to ENT for further checks.

Because ear infections are a known side effect of the maintenance drug Myles takes for his cancer, they had a look, and it seems the grommet in his left ear can’t be found, though the one in his right ear is still in place. So it definitely needs checking out 👂💊

To make things worse, once we got home from the hospital, Myles started vomiting and spiking a high temperature 🤒 Shortly after, both me and Jon started feeling really unwell too! I can’t remember the last time we’ve felt this sick. Now the whole house has come down with it. We’ve spent every day since Friday just sleeping and vomiting, it really feels like the flu 😷

And as if that wasn’t enough, Danielle's Dad is currently in hospital with fluid around his heart and a severe chest infection 💔 We can’t even visit him right now, which makes it even harder.

Please, if you can, keep us all in your thoughts and prayers as we fight through this rough patch 🙏💛

With love,

The Loves ❤️

08/11/2025

💛 A huge thank you to Alan Carr from the bottom of our hearts! 💛

Before Myles was diagnosed with neuroblastoma, we had never even heard of this terrible cancer. Since then, we’ve met so many brave little warriors also fighting this disease, some who, heartbreakingly, have lost their battle. 💔

We pray that the generous donation you’ve given to the Neuroblastoma charity will help bring us closer to a cure, so that no more families have to watch their babies suffer. 🙏

To all the children still fighting 🦸‍♀️🦸‍♂️

To all the children who have gained their wings 👼

And to all the incredible warriors living with the scars of their battles 💪

May this bring us all a little hope. 💫

With love,

The Loves ❤️

05/11/2025

💛🎗 MYLES UPDATE 🎗💛

Myles is doing really well! 🥰 Although he still gets a bit upset at the thought of nursery, once he’s there he settles in beautifully. 🌟

His speech is coming along AMAZINGLY, we’re so proud of how far he’s come! 🗣️👏

This month, Myles has some very important clinics coming up, Cardiology and Oncology. We’ll share updates once he’s seen the specialists. 💪💛

Today, Myles had a visit to our local hospice. Everyone there was so friendly and welcoming. 🏡💞 Myles will be spending some time there for respite care, and we’re hopeful it will help with his separation anxiety in a safe and supportive space. 🤗

We want to thank everyone for your continued love and support, it truly means the world to us. 🙏💛

With love,
The Loves ❤️

15/10/2025

🎉💙 Happy 4th Birthday to my little hero! 💙🎉

This time last year, we could only wish to have you home for your birthday and that wish came true. Not only do we get to celebrate another year of your life, but we also get to celebrate you still being cancer free! 🎗️✨

Words could never describe how much you mean to us. You are a true fighter, stronger than anyone I’ve ever met! I’m so proud to be your mummy.

💪 You fill my heart with endless joy and happiness every single day. 🥰

This year alone, you’ve already achieved so much:

🏥 👩‍⚕️You got through all your treatment and are now in remission from Stage 4 cancer!

🌿 You learnt to walk again! No matter how many times you fell, you always got back up and tried again.

🗣️ You found your voice, and even if not everyone understands your little words, we do. And we love every single one of them.

🎒 You started nursery!

🦽 You upgraded your wheelchair, because you no longer need the extra support! Your body is growing as strong as your mind!

Every goal your amazing team sets, you smash right through it. The strength you carry in your heart is truly incredible. You are our very own superhero. 🦸‍♂️💖

I can’t promise there won’t be tears today, but I can promise they’ll be tears of happiness. We are beyond blessed to have you as our son. 💫

Cameron and Louisa worked so hard last night decorating the house with all your favourite things, they can’t wait to show you all their hard work! 🎈🎂

💙 Happy Birthday, beautiful boy. We love you endlessly.💙

13/10/2025

💛🎗 MYLES UPDATE 🎗💛

This Wednesday, Myles turns 4!!! 🎉🎂✨

This is such a HUGE milestone! This time last year, we weren’t even sure we’d get to celebrate his 4th birthday. 💔 But here we are...his first birthday cancer free since his very first one! 🎗💪💛

Myles, we cannot wait for you to open your presents and for all your family to sing Happy Birthday to you! 🎁🎶

I can’t wait to see you surrounded by love, laughter, and everyone who adores you. 💕

This is a BIG DEAL! Our brave little warrior is about to turn FOUR!!! 🦁💛🎉

With love,

The Loves ❤️

09/10/2025

💛🎗 Myles Update 🎗💛

This week has been tough, mentally and physically.
Life with a child in remission from stage 4 cancer is scary…so scary. Everything always seems to come back to CANCER.

We are beyond thankful that our beautiful boy is in remission 🙏, but we can’t help wishing he never got cancer in the first place. Because once cancer enters your life, the thought of it never truly leaves. 💔

Myles hasn’t been feeling well 😔 he’s fighting a chest infection, an ear infection and severe pain in his arm from his fall. Whenever something happens, a sniffle, a fall, a cough, a virus. Our minds instantly go to the darkest place: what if it’s back? The fear never really leaves us.

❓ Why is Myles walking that way? Could it be a tumour?

❓ Why did he sleep an extra 20 minutes today? Is that the cancer making him tired?

❓ Why is he being sick? Is it back?

Every little thing makes us question:

🤧 Cold… or cancer?

🤒 Virus… or cancer?

😴 Tired… or cancer?

We are exhausted and scared. Even in our sleep, nightmares chase us. I still hear doctors’ voices in my head:

“He’s not responding.”
“He’s not responding to pain.”

They shout his name, and I’m helpless…there’s nothing I can do. That moment will haunt me forever, and I never, ever want to be in that place again.

This post is to highlight what life is like with a child in remission. You may be out of the fire...but it still burns. 🔥

With love,

💞 The Loves 💞

03/10/2025

💛🎗 Myles Update 🎗💛

Myles’ first week at school went really well! 🌟

Yesterday was tough however, and he became very upset when he realised that when he goes to school, Mummy and Daddy don’t stay with him. 💔 He got so overwhelmed that he was sick, but the amazing staff were right there to comfort him and helped him feel safe and happy again. 🙏💛

Sadly, Myles has another ear infection which has affected his balance. Yesterday, he took a bad fall and broke his collarbone 💔. Because of his cancer treatment, his little bones are more brittle, which makes injuries like this more likely.

Right now it’s lots of painkillers, rest, and endless cuddles for our brave little warrior. 🛌🧸💪

With love,
The Loves ❤️

29/09/2025

💛🎗 MYLES UPDATE 🎗💛

Today was a HUGE milestone for our brave boy...Myles went to nursery all on his own without me or Jon!! 🥹✨

We’ve never been apart from him before, and honestly the thought of it was so scary 💔 but his new school has been absolutely incredible, supporting us every step of the way as Myles begins this new journey. 🌟 This week, a nurse will be with him to finish training his teacher on Myles’ gastrostomy care, which gives us so much peace of mind. 💉👩‍⚕️

Myles absolutely LOVED nursery! 💛

Meanwhile, we couldn’t sit still and missed him like crazy, but deep down we know he’s ready to begin his nursery adventure, and it makes it so much easier knowing his teachers are simply AMAZING! 🙌

With all our love,

💖 The Loves 💖

25/09/2025

💛🎗 Myles Update 🎗💛

Just a little update from yesterday’s appointments…

👂 The hearing test went better than expected! They managed to get a baseline for Myles’ hearing. Unfortunately, they couldn’t complete the full test as his attention span ran out and he became really upset 💔. But the good news is they got enough results to show that his hearing is no worse than before and he doesn’t need to be put to sleep this time. We’re very happy about that! 💛

🩺 At his oncology appointment, Myles had a urine test sent off to check for any cancer biomarkers. These results take about a week to come back, so now we wait 🤞. Fingers crossed for clear results. 💛✨

📋 Today, Myles has a TAFF meeting, where all the professionals come together with me and Jon to share updates on Myles’ care and discuss ways they can support us. They are truly an amazing team, and we couldn’t ask for better people to be by our side 💕.

📸 Here’s a picture of our strong, beautiful boy showing Stitch what he’s made of 🤣💪. This was taken at the MediCinema in the hospital. They’re an incredible charity that brings a magical cinema experience to sick children 🎬✨. Volunteers collect the kids from their wards and take them to the hospital cinema, where they can enjoy a film in super comfy leather seats, or even in their hospital bed if they are too poorly. Truly amazing, and we just had to give them a mention! 🌟

With love,
The Loves ❤️

24/09/2025

💛🎗 Myles Update 🎗💛

🌅 Early start for us this morning as we head to both hospitals in Newcastle.

👂 First stop ➡️ the Freeman for Myles’ hearing test.
Because of his additional needs, this is really tough for him. He struggles to stay focused, hates being in a room with the door closed (it makes him feel trapped 🚪😔), and if it’s left open, he’ll just get up and leave.

The test also has to be done without his hearing aids, which makes it even harder and very distressing. On the positive side ✨, we’ve learned more signs to communicate with him while his aids are out, which helps a lot 💛. The only alternative would be putting him to sleep 😴 for the test, but that comes with its own risks. This hearing test is important, as the cancer treatment Myles is currently on can affect his hearing further.

🏥 After the Freeman, we’ll head over to the RVI for a meeting with Myles’ oncology team.

🙏 Huge thank you to my parents and siblings for helping us get Cameron and Louisa to school this morning ❤️👨‍👩‍👧‍👦.

📲 We’ll post another update once we’re home.

With love,
The Loves ❤️

10/09/2025

Today is a really special day - it’s Myles’ very first settling in session at nursery! 💙 We honestly couldn’t be prouder to see him reaching milestones that, this time last year, felt like something we could only dream about.

He has fought so hard to be able to enjoy the little “normal” things in life, and while it may only be a settling in day, to us it’s huge. It’s a moment to celebrate just how far our beautiful boy has come.

He’ll be back at clinic at the end of the month, and we’re really hoping the good news keeps coming. Every day we thank God that we still have our amazing little warrior, fighting strong and making us smile. 💪✨

He didn’t manage to get his “nursery haircut” because his hair is still falling out from treatment - but honestly, Myles rocks any hairstyle! 😍

With love,

The Loves ❤️

08/09/2025

Myles singing his favourite song from his new favourite movie...belting the high notes! 🤣❤️

Myles' Journey

10/11/2025

08/11/2025

05/11/2025

15/10/2025

13/10/2025

09/10/2025

03/10/2025

29/09/2025

25/09/2025

24/09/2025

10/09/2025

08/09/2025

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