Epilepsy Society

22/11/2025

If you see someone having a tonic clonic seizure, remember:

Stay CALM
CUSHION their head
CALL for help

Our aim is to make sure everyone knows how to support someone with 💜

For more information: https://bit.ly/4nbWdh0

21/11/2025

As part of our Epilepsy Awareness Month campaign, we asked you to share the misconceptions you often encounter regarding epilepsy.

Your responses highlighted a wide range of issues, but some themes came up time and again. To reflect this, we’ve created a series of Myth vs Reality slides, featuring common misconceptions alongside your voices that set the record straight.

Awareness starts with understanding. Share these facts and help us turn misconceptions into knowledge.

21/11/2025

19/11/2025

Today is International Men’s Day

Epilepsy isn’t just about seizures; it can touch every part of life. For many men, it can feel at odds with outdated ideas of masculinity like always being in control and never showing vulnerability.

These old-fashioned views of manhood are damaging for everyone and they can make life even harder for men with epilepsy, who might face challenges around independence or need extra support and end up hiding their epilepsy, not wanting to be seen as “different” or “weak.”

But qualities like determination, humility and courage that men with epilepsy show every day reflect a more modern, healthy and inclusive version of what it is to be a man.

Masculinity isn’t about being invincible, it’s about honesty and character.

If you ever need support or just need to have a chat with someone, we are always here to speak with you on our helpline: 0300 102 0024.

18/11/2025

Neuroimaging offers sophisticated techniques that enable us to look deep inside the brain and can help us to understand more about a person's and whether, in some cases, they may be suitable for surgery.

Learn more at our research hub http://bit.ly/2E2UF4V

18/11/2025

Researchers at Cambridge University Hospitals NHS Foundation Trust (CUH) are testing a wearable ‘cap’ for premature and newborn infants at high risk of developing brain conditions such as epilepsy, cerebral palsy and learning difficulties.

This wearable device, which fits like a swimming cap, can speed up diagnosis and care for children with epilepsy and other neurological conditions and could be available in every UK hospital within the next decade following conclusion of this three-year study.

Currently the traditional way of looking at the brain in sick and premature infants is to use a cranial ultrasound and MRI. Both cranial ultrasound and MRI methods have limitations in predicting the nature of the injury and any future impairment.

Nicola Swanborough, Head of External Affairs at the Epilepsy Society said: “This could spell real hope in the future for newborns who are at a high risk of developing conditions such as epilepsy. Early interventions and treatments will hopefully improve long-term outcomes for these babies.”

To read more, click here: https://bit.ly/49rflUS

Photos courtesy of Cambridge University Hospitals NHS Foundation Trust.

Cambridge University Hospitals NHS Foundation Trust

17/11/2025

A new approach to seizure monitoring is being trialled in North-East England and Cumbria.

Six people have been given brain implants which monitor and record seizure activity. Currently, seizure information is recorded by patients in a diary or in hospital by an EEG machine following an induced seizure.

If the trial is successful, it could mean that in the future, more accurate seizure data can be provided to medical teams, paving the way for more personalised treatment for people with epilepsy.

To read more on this story, click here: https://bbc.in/4oL6XEv

Adam Atkinson has an implant in his brain which is tracking the seizures he experiences.

16/11/2025

Thank you so much to Chailey, Chris and Charlie who have raised a massive £2,630.86 for Epilepsy Society in memory of Chailey's brother-in-law Kieran.

Kieran tragically passed away in April this year due to epilepsy. He was only 26 years old.

Chailey: ‘It’s been a really difficult few months, but I wanted to do something that truly celebrated him. Halloween was Kieran’s favourite time of year he loved the fun and especially dressing up so it felt right to honour him in the way he’d have loved most… I’m so proud of what we achieved and beyond grateful to everyone who donated, came along, or helped make the night so special.’

A huge thank you to Chailey, Chris, Charlie and all those involved who came together to celebrate Kieran.

15/11/2025

To live full and active lives, and look after our physical and emotional wellbeing, we all need time to rest, relax and exercise. How we spend our leisure time is important and individual to us all, whether or not we have epilepsy.

Our information in the link below looks at some popular leisure activities and suggests how they might be made safer for people with epilepsy. These are only suggestions, and any decisions about leisure activities need to be made on an individual basis.

For leisure activities you need to consider what risk the activity involves as well as how your epilepsy affects you. For example, If you have seizures where you lose consciousness this needs to be factored into any leisure activities you take part in.

Epilepsy is a very individual condition. How it affects you may be very different to how it affects someone else. Most people with epilepsy live full and active lives, and do the leisure activities that they want to.

Some people with epilepsy, especially if they still have seizures, may have concerns about the safety of some activities. Read more 👉

Exercise and sport improve fitness, energy, and mood, and can help to relieve stress. Improving...

14/11/2025

Happy 77th birthday to His Majesty King Charles III, The Royal Family

Today we join the nation in celebrating the birthday of King Charles III, born on 14 November 1948.

His Majesty has shown dedication to public service and championed causes close to his heart, including the environment and community wellbeing. This includes serving as the patron of the Epilepsy Society. His support helps us continue our work to improve the lives of people affected by epilepsy through research, advocacy, and care.

We deeply appreciate this ongoing commitment and join others in wishing His Majesty a happy birthday.

14/11/2025

Are you a Welsh-speaking person living with epilepsy?

Iaith mewn Iechyd (Language in Health), an NHS Wales project, tests Welsh translations of medical questionnaires to make sure they’re clear and easy to understand. They are currently working on an epilepsy questionnaire that has been translated into Welsh and are looking for Welsh-speaking volunteers with epilepsy to test the translation.

The process is quick and simple and done via a short remote Teams call.

You can sign up via the QR code in the poster or visit the Iaith mewn Iechyd Instagram: .

13/11/2025

This week, Epilepsy Society attended the launch of the Public Attitude to Research & Development Report 2025 by the Campaign for Science and Engineering.

The report is significant since Research & Development (R&D) can transform lives and drive solutions to societal challenges. Understanding R&D and utilising it fully can help us more effectively tackle health issues, including epilepsy.

Our Communications Manager, Cat, attended the event where former Australian PM Julia Gillard delivered the opening speech. She highlighted a crucial finding: we need to tell better stories about how R&D solves the problems people care about—especially in uncertain times.

You can download a copy of the report here: https://bit.ly/43Zi3x3

To learn more about Epilepsy Society’s cutting-edge research, click here: https://epilepsysociety.org.uk/research