Dylan's Duchenne Journey

03/11/2025

15/09/2025

A fresh cut always feels good ❤️

19/08/2025

Just an update regarding Dylan.

Dylan was obviously in his wheelchair a lot more in Japan, and when he did walk it wasn't for long. I have decided that it's time to take action at home. While he builds a big "catio" outside for my beautiful girlies, I will be renovating inside. Unfortunately we've had to make the decision to bring Dylan's bedroom downstairs as it's becoming dangerous and with only downstairs bathroom/toilet it's safer. Recarpeting the whole house. My living room will be Dylan's bedroom, my dining room will be my living room, Dylan's old/upstairs bedroom will be my bedroom and my old bedroom will be a storage room. I've never had storage here, very limited space and no outdoor shed so that room will come in handy.

We are still on the council house list and still not any sort of decent priority despite how many medical letters they have received. We are still being offered 2 bed flats that are not accessible, some ground floor, some top floor. I wish they'd understand that British people are entitled to family homes. Flats aren't a bother but I'm 33 years old and would like my forever home with a garden, driveway and garage in a nicer area for Dylan.

Many will offer help, of which I'm humbled and grateful, but there's a plan in place with my boyfriend, dad and close friends to make this renovation smoother, too many cooks spoil the broth so we'll be sticking to military regime with this because it has to be perfect ❤️

I'm a little out of sorts with this so bear with me, I'll be back to posting soon, I'm still grieving also and requiring a lot of space ❤️

19/08/2025

Tokyo ❤️

My boy has had the best dream holiday you could imagine. Here's a compilation! He was in his wheelchair at least 98% of the time but I'll show you the rare times he stood and walked.

Thank you Yardbirds Rock, Deadly Bakes, Sallyann Newborn, Sarah, Burton, all donaters of the gofundme and cash donation for making this happen through raising money for him, I could never afford Tokyo without this. The biggest thank you to the best man I've ever met Jack, for everything ❤️ if I have forgotten anyone, huge apologies but big big thanks it's been a big year for us!!

We arrived back last Thursday and only just finding our feet again. 12 hours there, 15 hours back alongside a little bit of jetlag ❤️

08/08/2025

Day 2 -

Teamlabs borderless was absolutely unbelievable. I've never seen Dylan so excited, and he walked most of the way round!! Tokyo tower was pretty cool until vertigo washed over everyone 😂😂😂

Beautiful start to our holiday ❤️

07/08/2025

Flight & day 1 in Tokyo

That flight was really really hard and I'm hoping to be more prepared for the way back!

It topped at 35 degrees and 58% humidity today so needless to say we've struggled 😂😂🥵

05/08/2025

We're leaving on a jet plane, dont know when I'll be back again 🛩

25/07/2025

I've never felt so sad. We're all so proud of you dude, your grandma will be beaming watching you on your last day ❤️