PBC Foundation

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PBC Foundation

The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

17/01/2026

Join us for a chat at a Community Café meeting.

There are a few opportunities to join a Community Café meeting this week:

☕ Monday 19 January: South Hampshire Community Café (in person) | 10:30am - 12:30pm UK time

☕ Saturday 24 January: Essex Community Café (in person) | 10:00am - 12:00pm UK time

☕ Sunday 25 January: Nottinghamshire Community Café (in person) | 11:00am - 1:00pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

16/01/2026

**New campaign: This is My PBC **

This is My PBC is a disease awareness initiative developed and funded by Ipsen, that seeks to raise awareness of the need for people living with PBC to know more about their disease and understand that everyone’s experience is different – and valid.

Getting to know your PBC can help you to take charge of your PBC journey. By understanding your own condition, your own biochemistry, your symptoms and how PBC affects you, you will have more influence on your daily quality of life.

Discover resources to help you get the most out of your appointments and real experiences from people living with PBC.

Visit our 'This is My PBC' webpage here: https://www.pbcfoundation.international/living-with-pbc/this-is-my-pbc/

15/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 15 January.

The Q&A will return next week when Prof David Jones will be answering your PBC questions. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

12/01/2026

Join us tomorrow at 6pm (UK time) for our next Choose Me Tuesday self-care session.

The theme this week is: Winter Wellbeing.

Here's what one of the regular Choose Me Tuesday attendees has said about the sessions:
"Thank you for the Choose me Tuesday sessions they have really helped me. I no longer feel alone with PBC and have met some lovely people."

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

10/01/2026

Join us for a chat at a Community Café meeting.

There are a few opportunities to join a Community Café meeting this week:

☕ Sunday 11 January: Northamptonshire Community Café (in person) | 11am - 12:30pm UK time

☕ Thursday 15 January: Devon Community Café (in person) | 10:30am - 12:30pm UK time

☕ Saturday 17 January: Suffolk Community Café (in person) | 10:30am - 12:30pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

07/01/2026

** Cancelled Community Café **

Community Café update: the in-person Sussex Community Café meeting due to take place tomorrow, Thursday 08 January, has been cancelled due to the weather.

Keep an eye on this page for information about upcoming meetings.

07/01/2026

We are excited to announce that, in collaboration with Umecrine Cognition, a new survey is now available in the PBC Foundation app: Fatigue in PBC.

Here’s what Rebecca West, Head of Research & Education at the PBC Foundation, says about the survey:
"Patients living with PBC have a powerful voice. By taking part in research studies and patient surveys, you help scientists and clinicians better understand the disease, develop improved treatments, and shape care around real patient needs. Your experience matters—engaging in research today can lead to better outcomes for the entire PBC community tomorrow."

Find out more in our News article: https://www.pbcfoundation.international/new-survey-available-fatigue-in-pbc/

07/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 08 January.

The Q&A will return next week. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

05/01/2026

Join us for a chat at a Community Café meeting.

There are a few opportunities to join a Community Café meeting this week:

☕ Tuesday 06 January: Online Community Café | 7pm - 8pm UK time

☕ Thursday 08 January: Sussex Community Café (in person) | 2:30pm - 4pm UK time

☕ Sunday 11 January: Northamptonshire Community Café (in person) | 11am - 12:30pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

05/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 08 January.

The Q&A will return next week. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

05/01/2026

As we head into 2026, start the year by making some time for you and join us tomorrow at 6pm (UK time) for our first self-care Choose Me Tuesday session of the year.

The theme this week is: Winter Wellbeing.

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue

KY113BZ

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 16:30

Telephone

+441315566811

Website

http://www.pbcfoundation.org.uk/

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