PBC Foundation

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PBC Foundation

The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

31/03/2026

Registration is open for our Patient Conference 2026!

Across the weekend, we’ll be covering topics that matter most to our community — and we’ll be guided by what you tell us matters most to you.

This includes understanding PBC and treatments, managing symptoms, emotional wellbeing, and the realities of day-to-day living — alongside opportunities to hear about research and connect with others who truly understand.

More information on our website https://www.pbcfoundation.international/patient-conference-2026/

30/03/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week.

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

30/03/2026

Our next Choose Me Tuesday online self-care session is tomorrow at 6pm - 7pm (UK time).

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.

This is a quote we received after a recent session
“These sessions are so useful and a great way to connect and share tips with the PBC community. We are so lucky to have access to this resource and Cheryll as a passionate, knowledgeable facilitator. Thank you PBC Foundation!"

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/

If you would like to find out more about self-care, we have a page on our website dedicated to this topic: https://www.pbcfoundation.international/living-with-pbc/self-care/

If you have any questions about the Choose Me Tuesday sessions or would like more information, please email cheryll@pbcfoundation.international

28/03/2026

Community Cafés are designed to help reduce isolation and bring people together in a relaxed, welcoming environment.

They provide an opportunity to connect with others impacted by PBC, share conversation and community and learn about the services and support available through the PBC Foundation
In-person cafés are hosted by staff or volunteers, and online cafés are hosted by staff.
Here is the Community Café meeting coming up over the next week:

☕ Wednesday 1 April: US Online Community Café | 8am PT | 9am MT | 10am CT | 11am ET

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/
You can read more about our café’s here: https://www.pbcfoundation.international/connecting-through-community-cafes/

26/03/2026

Our Q&A with Dr Martin Weltman & Mo from this morning is now available on our YouTube channel and can be viewed here: https://youtu.be/xoXtkAdZMtM

Topics this week include:
High cholesterol and statins
Taking oestrogen
PBC & AIH overlap
Thyroid issues and PBC
Fibrosis and cirrhosis
PBC and autonomic dysfunction
Vitamin supplements
Abdomen pain as a symptom of PBC

You can submit a question for a future sessions by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

You can view details of upcoming Q&A’s in the events section of our website:
https://www.pbcfoundation.org.uk/events/

Please remember that these sessions provide general medication information and guidance.
Our doctors are not able to give individual medical advice or comment on personal treatment plans, as they do not have access to your full medical history.

If your question relates to your own care, we would always recommend speaking with your healthcare team.

If you need support on that please reach out to us.

This Q&A was sponsored by Mirum Pharmaceuticals, who did not participate in the session or have input into its content.

25/03/2026

Our next Transplant Journey online meeting is tomorrow, Thursday 26 March at 6pm UK time.

Research and experience show that when patients - and their loved ones - meet someone who has successfully gone through a liver transplant, see how well they're doing years later, and have the opportunity to ask questions about the process, it can be both informative and deeply reassuring.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/

Please email Mo mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

25/03/2026

** Note different time

Join our next Q&A session tomorrow at 5am UK / 4pm Sydney time when Dr Martin Weltman will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

This Q&A is sponsored by Mirum Pharmaceuticals, who will not be participating in the session and have had no input into its content.

24/03/2026

We're excited to announce that registration for our 2026 Patient Conference will open one week from today on Tuesday 31 March 2026.

You can register from our website https://www.pbcfoundation.international/patient-conference-2026/

Any issues with the registration form please contact us at the office on +44(0)131 556 6811 or email info@pbcfoundation.org.uk

24/03/2026

Our next Men with PBC session is tomorrow, Wednesday 25 March at 7pm UK time.

These meetings are an opportunity to meet and chat with other men affected by PBC. Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Here's what one of the attendees has said about these meetings: "By attending the monthly session with other men I don't feel alone. I look forward to chatting with others who understand."

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join the session. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/

23/03/2026

** Note different time

Join our next Q&A session on Thursday at 5am UK / 4pm Sydney time when Dr Martin Weltman will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

This Q&A is sponsored by Mirum Pharmaceuticals, who will not be participating in the session and have had no input into its content.

23/03/2026

Our next Choose Me Tuesday online self-care session is tomorrow at 6pm - 7pm (UK time).

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.

This is a quote we received after a recent session
“Thank you for tonight I really enjoyed it and found it so helpful!
A much needed reminder that I don’t speak kindly to myself, it’s something I struggle but it’s something I am determined to work on.
I’m definitely aiming to tune into that kindness radio more.
Thank you!”

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/

If you would like to find out more about self-care, we have a page on our website dedicated to this topic: https://www.pbcfoundation.international/living-with-pbc/self-care/

If you have any questions about the Choose Me Tuesday sessions or would like more information, please email cheryll@pbcfoundation.international

22/03/2026

Join Collette & Linda tomorrow Monday 23 March 2026 at 2pm for an on-line Community Café.

Community cafés are designed to help reduce isolation and bring people together in a relaxed, welcoming environment.

They provide an opportunity to connect with others impacted by PBC, share conversation and community and learn about the services and support available through the PBC Foundation

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

You can read more about our café’s here: https://www.pbcfoundation.international/connecting-through-community-cafes/

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue

KY11 3BZ

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 16:30

Telephone

+441315566811

Website

http://www.pbcfoundation.org.uk/

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