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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 4:30pm

PBC Foundation

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PBC Foundation

The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

13/11/2025

Today is World Kindness Day.

Small acts of kindness can make a big difference to someone's day.

This can be anything from holding the door open for someone or getting some shopping for an unwell neighbour to sending an encouraging message to a friend.

Don't forget to be kind to yourself too! Our self-care webpage is a great place to start for hints and tips: https://www.pbcfoundation.international/living-with-pbc/self-care/. We also host online self-care sessions every Tuesday evening called 'Choose Me Tuesday' at 6pm UK time - check our events page for information: https://www.pbcfoundation.international/events/

Let's sprinkle kindness throughout today and beyond 💜

We would love to hear your experiences of acts of kindness today, whether received by you or something you have done, or plan to do, for someone else ⬇️

12/11/2025

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 13 November.

The Q&A will return next week on Thursday 20 November, when Prof David Jones will be answering your PBC questions. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – in these sessions we aim to provide general medical information and not medical advice. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

10/11/2025

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 13 November.

The Q&A will return next week on Thursday 20 November, when Prof David Jones will be answering your PBC questions. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, why not make yourself a cuppa and head over to our YouTube channel where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – in these sessions we aim to provide general medical information and not medical advice. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

10/11/2025

Make some time for you and join us for our next Choose Me Tuesday self-care session tomorrow at 6pm UK time.

The theme this week is: calming the chaos

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

09/11/2025

The Liver Meeting, hosted by the American Association for the Study of Liver Diseases (AASLD) is currently under way.

This meeting runs from Friday 07 November to Tuesday 11 November in Washington DC, US.

The PBC Foundation is attending! Come and see us at our booth if you're attending, we'd love to talk to you.

08/11/2025

Join us for a chat at one of the Community Café sessions coming up this week.

Community Café sessions are social events and all are welcome.

Here are the Community Café meetings coming up this week:

☕ Monday 10 November: Derry Community Café (in person) at 12pm UK time

☕ Wednesday 12 November: Wiltshire Community Café (in person) at 10am

☕ Thursday 13 November: Devon Community Café (in person) at 10:30am

☕ Saturday 15 November: County Antrim Community Café (in person) at 10:30am

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

07/11/2025

This week's Q&A with Prof David Jones and Mo Christie (Head of Patient Services) is now available on our YouTube channel and can be viewed here: https://youtu.be/_aFYhwfZXvo

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

06/11/2025

Today, the PBC Foundation is attending CamRARE's RAREsummit25 in Cambridge and PULSE 365 in Belfast.

If you are attending either of these events, please visit our stand - we'd love to talk to you.

05/11/2025

Our next Q&A session is tomorrow at 2pm UK time when Prof David Jones will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

04/11/2025

Our wonderful Hampshire volunteers Jo, Jane and Gail are running a pop up shop until Friday 7th Nov to raise vital funds for the PBC Foundation.

If you are in the area please pop along.

Venue - Whitchurch Hants - Rotations premise in Whitchurch, Hampshire on London Road.
9.30 am - 4.30 pm

Please support
https://www.justgiving.com/page/pbc-popupshop

03/11/2025

Our next Q&A session is on Thursday at 2pm UK time when Prof David Jones will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

03/11/2025

Our next Choose Me Tuesday self-care session is tomorrow at 6pm UK time.

The theme this week is: mindfulness.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue
Edinburgh
KY113BZ

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 4:30pm

Website

http://www.pbcfoundation.org.uk/

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