PBC Foundation

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PBC Foundation

The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

22/04/2026

Today’s unique “Lion’s Den” sessions brought together industry partners and Patient Advocacy Groups (PAGs). This unique format supports PAGs in staying informed, empowering them to better support and educate their patient communities. A strong reminder that equity in access to knowledge is essential for meaningful impact.

22/04/2026

Our next Men with PBC session is next week on Wednesday 29 April at 7pm UK time.

These meetings are an opportunity to meet and chat with other men affected by PBC. Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Here's what one of the attendees has said about these meetings: "By attending the monthly session with other men I don't feel alone. I look forward to chatting with others who understand."

Visit our events for more details on how to join https://www.pbcfoundation.org.uk/events/

22/04/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week.

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

21/04/2026

Day 2 of the International PBC Summit 💜

A clear focus on priorities for 2026 and beyond, with shared accountability across our global community.

21/04/2026

Day 2 of the Summit begins with a presentation from Mo Christie, sharing the reality of living with PBC and the unmet need within our community💜

A powerful and personal perspective to start the day — bringing lived experience to the heart of the conversation.

20/04/2026

Today we’ve brought together diverse voices across the PBC Foundation Clinical Advisory Board, Patient Advocacy Groups, and Industry partners— a strong sense of collaboration is setting the tone for Day 2.

20/04/2026

The PBC International Summit convenes with a welcome from Robert Mitchell-Thain, CEO of the PBC Foundation.

20/04/2026

Our next Choose Me Tuesday online self-care session is tomorrow at 6pm - 7pm (UK time).

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/

If you would like to find out more about self-care, we have a page on our website dedicated to this topic: https://www.pbcfoundation.international/living-with-pbc/self-care/

If you have any questions about the Choose Me Tuesday sessions or would like more information, please email cheryll@pbcfoundation.international

19/04/2026

Jo & Mo are set-up ready to welcome our guests for the International PBC Summit.

19/04/2026

Join Collette & Linda tomorrow Monday 20 April 2026 at 2pm for an on-line Community Café.
Community cafés are designed to help reduce isolation and bring people together in a relaxed, welcoming environment.

They provide an opportunity to connect with others impacted by PBC, share conversation and community and learn about the services and support available through the PBC Foundation.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

You can read more about our café’s here: https://www.pbcfoundation.international/connecting-through-community-cafes/

19/04/2026

This , we stand with everyone living with liver conditions.

Today, we’re encouraging people to talk about Primary Biliary Cholangitis (PBC) a rare liver disease that often goes unrecognised.

Early symptoms like persistent fatigue and itching can be easy to overlook, but they matter. Getting the right diagnosis early can make a real difference.

With proper care, treatment and support, people living with PBC can lead full, healthy lives.

Know the signs. Trust your body. Don’t hesitate to speak to your GP.
https://www.pbcfoundation.international/wp-content/uploads/2026/03/PulseCPD_GPLealfet.pdf

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue

KY113BZ

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 16:30

Telephone

+441315566811

Website

http://www.pbcfoundation.org.uk/

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