06/11/2025
Kobi was born at just 29 weeks, weighing only 3.3lbs.
At first, everything seemed fine. Then, in the middle of the night, doctors rushed into the room. His tiny lung had collapsed and he’d had a severe brain bleed. His parents, Kirsty and Daniel, were told to prepare for the worst.
“Against all odds, Kobi pulled through. Eight agonising days later, we finally got our first cuddle with him. It felt like a miracle.”
Kobi’s challenges didn’t end there. He developed meningitis twice, needed blood transfusions, lumbar punctures and was having up to 10 seizures a day. Then, he was diagnosed with hydrocephalus - a dangerous build-up of fluid on the brain.
“The only option was brain surgery to install a shunt. Our boy has endured 16 surgeries. Sixteen times we’ve handed him over, not knowing if he’d come back.”
Facing hospital alone is terrifying. But thanks to your support, ECHC has been there for Kobi and his family.
“The support we’ve received from ECHC is what’s keeping our family together. The charity’s Hub has been a godsend - especially for Hope, Kobi’s big sister. It gives her space away from the beeping machines, the clinical smells, the constant worry. It allows her to be a kid again.
“The team has helped her to cope and helped us as parents too. Just having someone who listens, who really understands what you’re going through. It’s been a lifeline.”
“Without ECHC, we would have had to face all this alone. They’ve been here for us every step of the way. But we’re the lucky ones.”
No one should face hospital alone, especially at Christmas.
Please donate today to help children and families like Kobi’s. ❤
https://bit.ly/3X9IZpX
