Haemophilia Scotland

02/04/2026

What’s the difference between haemophilia A and B? 🤔

Both are inherited bleeding disorders, but the difference comes down to the clotting factor that’s missing.

🩸 Haemophilia A: missing Factor VIII (8)
🩸 Haemophilia B: missing Factor IX (9), sometimes known as Christmas Disease

Haemophilia A is more common, but both conditions require ongoing care, treatment, and support.

If you or someone in your family is affected, we’re here to provide information, guidance, and connection 💛

01/04/2026

How are bleeding disorders treated?

Bleeds are usually treated with an injection of the relevant clotting factor, either Factor VIII or Factor IX. This is known as on demand treatment and works best when given as soon as possible.

For people with severe haemophilia A or B, regular preventative treatment (called prophylaxis) is often used every 1 to 14 days to help stop bleeds before they happen.

But treatment is only part of the picture.

Bleeding disorders are life long conditions with no cure. They can impact mobility, employment, financial stability, and overall wellbeing, as well as limiting participation in sports and everyday activities.

That’s why ongoing support, access to care, and a strong community are so important 💛

At Haemophilia Scotland, we’re here to support you every step of the way.

27/03/2026

The reality of living with a bleeding disorder 💬

For people with conditions like haemophilia, bleeds often happen in joints and muscles, sometimes without an obvious cause. These can be extremely painful and over time may cause long term joint damage if not treated quickly.

For women and girls, heavy or prolonged periods can be a key symptom, and one that is often overlooked or dismissed.

These experiences aren’t always visible, but they can have a significant impact on day to day life, from work and education to physical and emotional wellbeing.

Raising awareness helps people recognise the signs earlier and access the care and support they need.

If this sounds familiar to you or someone you know, we’re here to help 💛

23/03/2026

Could your symptoms be more than “just one of those things”? 💬

Many women live with bleeding disorders for years without a diagnosis. Haemophilia Scotland's Women’s Group brings women together to share experiences, exchange information, access trusted resources, and support one another - because no one should have to navigate a bleeding disorder alone.

Looking for more information? Head to our website 👇

www.haemophilia.scot/women

23/03/2026

19/03/2026

Something exciting is on the way 👀

Our 2026 Events Programme is coming soon - and it’s set to be our biggest yet!

If you didn't know, we run free events throughout the year for everyone living with or connected to a bleeding disorder. Because we know it’s not just individuals who are affected - mums, dads, siblings and partners are a vital part of this community too.

Looking to take part? All events are free, just complete the simple form on our website to register your interest 👇

https://haemophilia.scot/support/events/

16/03/2026

Planning a trip? ✈️🌍

If you’re living with a bleeding disorder, a little extra preparation can make all the difference. From carrying the right documentation to making sure your treatment is stored and transported correctly, taking simple steps before you travel can give you peace of mind while you’re away.

At Haemophilia Scotland, we’re here to help you travel confidently - whether that’s within the UK or overseas. We recommend planning ahead, ensuring you have appropriate insurance, and knowing where your nearest Haemophilia Centre is at your destination.

For our full travel checklist and detailed guidance, visit our website before you set off. Safe travels 💛

16/03/2026

We’re excited to share that our Women’s Bleeding Disorders Conference will take place on Saturday 6th June at the Stirling Highland Hotel.

It’s a day designed by women, for women affected by a bleeding disorder to come together, hear from expert speakers, and build meaningful connections.

📅 More information, including how to register, is coming soon.
But for now, pop the date in your diary and stay tuned.

Funded by Women's Fund for Scotland

16/03/2026

We want to give a massive shout‑out to Dana, who took on the Supernova Kelpies Run on Saturday night — and did it side‑by‑side with her son. They lit up the route together to raise awareness and funds for people and families across Scotland affected by bleeding disorders.

We’re so grateful for their energy, kindness, and commitment to our community. Moments like this remind us how powerful it is when families come together to support others.

If you’d like to support Dana’s amazing effort, her fundraising page is still open:
https://www.justgiving.com/page/dana-ferrar-6

13/03/2026

Living with a bleeding disorder can sometimes feel isolating. Like no one else truly understands. Like you have to figure everything out on your own.

While Scotland’s Haemophilia Centres offer excellent clinical care, there’s something incredibly powerful about speaking to someone who’s been there too.

That’s why Haemophilia Scotland brings people together from across the country - to share experiences, raise concerns, and access helpful resources that make everyday life easier.

We run events and support activities for our whole community, including dedicated groups for:

👨‍👩‍👧 Children & Families
🧑 Young Adults
👩 Women
👴 Older Adults

If you or someone in your family is affected by a bleeding disorder, why sit it out? Join a community that understands, supports, and advocates for you.

13/03/2026

Tomorrow night, Dana will be joining hundreds of runners as the Kelpies light up for the Supernova Run — and she’s doing it to support people and families across Scotland affected by bleeding disorders.

We’re so proud to have her representing Haemophilia Scotland. Taking on a night run in March is no small thing, and her commitment means so much to our community.

If you’d like to back her efforts, you can support her fundraising here:
https://www.justgiving.com/page/dana-ferrar-6

Good luck, Dana — you’ve got this! 🌟

12/03/2026

Our friends at The Haemophilia Society UK are jointly hosting a live online Q&A with the University of Liverpool for anyone interested in learning more about gene therapy for haemophilia. Taking place on Monday 23rd March, 7:00pm–9:00pm, the session will feature Joseph Dulac, who received gene therapy for haemophilia B in 2025, alongside a panel of experts who support patients through the treatment journey. It’s a relaxed and informative opportunity to better understand what gene therapy can involve and to ask questions during the session. Find out more and how to join via the link below.

https://haemophilia.org.uk/events/events-calendar/gene-therapy-webinar-2303/