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Monday 9:30am - 5:30pm Tuesday 9:30am - 5:30pm Wednesday 9:30am - 5:30pm Thursday 9:30am - 5:30pm Friday 9:30am - 5:30pm

Haemophilia Scotland

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Haemophilia Scotland

A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

12/02/2026

We're introducing a range of improvements to carer benefits.

From March 2026, we will

💚introduce a new payment for carers who look after more than one person
💚replace Carer's Allowance Supplement with Scottish Carer Supplement, meaning carers receive extra support more consistently and regularly
💚increase the time carers are financially supported if the person they look after passes away

11/02/2026

🧬 What are Inhibitors in Haemophilia?

Inhibitors are antibodies that can block the effectiveness of standard factor VIII or IX treatments—making bleeds harder to control. They often appear early in treatment, especially in severe haemophilia A, and need specialist care like immune tolerance therapy, bypassing agents (e.g., aPCC, NovoSeven), or newer options like Hemlibra
Learn more about inhibitors on our website:

www.haemophilia.scot/inhibitors

09/02/2026

Living with a bleeding disorder can make you experience a range of emotions.

Learn more about the emotional side of bleeding disorders on our website:
https://haemophilia.scot/information/living-with-a-bleeding-disorder/the-emotional-side-of-bleeding-disorders/

06/02/2026

New Year, New You?!

If your resolutions included getting on top of your finances our Financial Wellbeing Officer can help with debts and budgeting as well as income maximisation.

Why not call or email and see if you can start the new year your way.
https://haemophilia.scot/financial-wellbeing-service/

04/02/2026

We’re incredibly proud of Mark, who is taking on two marathons in 2026 — Manchester on 19th April and Edinburgh on 24th May — to support Haemophilia Scotland in honour of his little boy, Theo.

Theo lives with Haemophilia B, a rare genetic bleeding disorder, and faces every challenge with remarkable courage. Mark is running for him, for their family, and for everyone across Scotland affected by bleeding disorders.

If you’re able to donate and share his incredible challenge with your network of family and friends, your donation will help us continue providing support, advocacy, and community for families like theirs. 💙🏃‍♂️

Donate now via JustGiving:
https://www.justgiving.com/page/markandtheo

03/02/2026

Very excited to be in Dublin over the next two days attending the EAHAD 2026 Congress and hearing from leading experts from around the world on advances in healthcare for people living with bleeding disorders.

30/01/2026

We are encouraging families and carers to apply for over £300 of financial help for primary school aged children.

School Age Payment is worth £319.80 for each child to help with the cost of preparing for primary school.

Parents and carers have until midnight on 28 February 2026 to apply for the payment that can help with additional costs during this key stage in their child’s development.

The payment is part of Social Security Scotland's Best Start Grant package and has been delivered to more than 114,000 parents and carers.

Please share with your networks to ensure nobody misses out on financial support they may be entitled to. People can check their eligibility and apply on MyGov.Scot:

mygov.scot/best-start-grant-best-start-foods/how-to-apply

27/01/2026

Our latest comic book, launched at last year's Members' Day & AGM, shares personal stories from people across Scotland affected by bleeding disorders – including individuals, carers, parents, and siblings. It’s a fantastic resource for families, friends, schools, and groups to learn more about life with a bleeding disorder. 💙

Thank you to everyone who took part in the workshops and shared your stories. A huge thank you also to Paul and the Magic Torch Comics CIC team for capturing everyone’s stories so brilliantly!

📖 You can read Volume 2 online now – and don’t forget, Volume 1 (released in 2023) is also available to read on our website. If you’d prefer hard copies of either volume, just email hello@haemophilia.scot and we’ll send them out to you. Copies are also being sent to all haemophilia centres across Scotland.

https://haemophilia.scot/information/publications/

The project was funded by The Essentia Foundation - Scotland, administered by Foundation Scotland

23/01/2026

If you move to Scotland from the rest of the UK, the way you claim benefits from Social Security Scotland has changed:

From 6 November 2025, people who move from the rest of the UK to Scotland who receive Personal Independence Payment, Disability Living Allowance for children or Carer’s Allowance must:
- Inform their current benefit provider about the move
- Apply for the equivalent benefit with Social Security Scotland

From 23 February 2026 these changes will extend to people receiving:
-Disability Living Allowance for adults
- Attendance Allowance

Clients who receive either of these benefits who move to Scotland from the rest of the UK will need to:
- Inform their current benefit provider about the move
- Request the equivalent benefit from Social Security Scotland

22/01/2026

Put on your tartan, lace up your boots, and join Team Haemophilia Scotland at this year’s Kiltwalk! Whether you’re taking on the Mighty Stride, Big Stroll, or Wee Wander, the Kiltwalk is one of the most fun and inclusive ways to support our Scottish bleeding disorders community. Every penny you raise comes straight to charity, plus any eligible Gift Aid — making your efforts go even further.

This year, we’re aiming to have Haemophilia Scotland teams across all four Kiltwalk locations, and we’d love to see as many members, families, and supporters involved as possible.

If you’d like to join us, please register your interest on our webpage and sign up through the official Kiltwalk website to secure your place.

https://haemophilia.scot/support-us-with-the-kiltwalk-in-2026/

Let’s walk together, raise awareness, and make a real difference for our community. 💙

20/01/2026

We have new Looking After Someone guides for 2025/26!

These have up to date information and advice on all aspects of caring in Scotland.

Order printed copies (supplied free, pay postage only) or find the link to the online version here: https://www.shopcarersuk.org/en/products/view_products/information-booklets/looking-after-someone-2025-26-scotland

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday	9:30am - 5:30pm
Tuesday	9:30am - 5:30pm
Wednesday	9:30am - 5:30pm
Thursday	9:30am - 5:30pm
Friday	9:30am - 5:30pm

Telephone

+448458744004

Website

http://www.haemophilia.scot/

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Who are Haemophilia Scotland?

Haemophilia Scotland is a Scottish Charity for individuals and families with inherited bleeding disorders such as haemophilia, von Willebrand, factor deficiencies, or platelet disorders. We are Scottish Incorporated Charitable Organisation (SCIO) and our Charity Number is SC044298. It is free to join Haemophilia Scotland and attend our events. Membership is open to anyone who supports our work.

We provide clear and patient friendly information. Our regular events and online spaces help people affected by bleeding disorders in Scotland meet and support each other. We also work closely with everyone involved in providing haemophilia services to continually improve treatment and care. We do this primarily through the Scottish Inherited Bleeding Disorders Network (SIBDN). We are also members of the Scottish Parliament Cross Party Group on Rare Diseases.

Our largest funder is the Scottish Government but we are also grateful for support from many of the pharmaceutical companies which produce clotting factor products, a variety of trusts and grant giving bodies, and the donations and fundraising efforts of our members and supporter. We are a member of a variety of umbrella organisation including the Scottish Council for Voluntary Organisations (SCVO), the Scotland Malawi Partnership, the Small Charities Coalition, and The Health and Social Care Alliance. We are also a Living Wage Employer.

Although not affiliated, we have strong working relationships with the World Federation of Hemophilia (WFH), The Europe Haemophilia Consortium (EHC), The Haemophilia Society (THS), the Scottish Infected Blood Forum (SIBF), the Scottish Infected Blood Support Scheme (SIBSS), and Haemophilia Wales (HW).